In This Week’s Issue:
 
1. PIPC Submits Comments to CMS on Proposed Cancellation of Episode Payment Models, click here to read the letter.
2. FDA’s Patient Engagement Committee Launches, click here.
3. The New York Times: Why I Almost Fired My Doctor, click here to read the article. 
4. Pasadena Now: The U.S. Health Insurance Crisis: ‘Blame the System, Not the People,’ click here to read the article. 
5. Full List of Selected Recipients for “Spreading OpenNotes in New York State,” click here to view.
6. The PCORI Blog: Results That Make A Difference, click here to read the blog.
7. CMS Releases RFI on New Direction for CMMI - Comments Due November 20! Click here to view the RFI.  
8. CMS Measure Development Education and Outreach Series, see details below
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
10. Upcoming Events and Webinars, see details below
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. CMS Releases RFI on New Direction for CMMI - Comments Due November 20! Click here to view the RFI.
2. Washington Post: Here’s one place where the doctor is always in and happy to talk, click here to read the article. 
3. NEJM: Making Patients and Doctors Happier - The Potential of Patient-Reported Outcomes, click here to read the article.
4. RTI International: How can patient-centered research plus consumer technologies improve health decisions? Click here to read the article. 
5. Modern Medicine: The next wave of patient-centered health IT, click here to read the article. 
6. CMS Measure Development Education and Outreach Series, see details below.
7. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
8. Upcoming Events and Webinars, see details below
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
 

In This Week’s Issue:
 
1. Washington Post: When His Elderly Mother Broke Her Hip, Things Didn’t Go Well, click here to read the article. 
2. CMS Releases RFI on New Direction for CMMI, click here to view.
3. PatientEngagementHIT: What Patient Complaints Say About the Patient Experience, click here to read the article.
4. NPC Releases Guiding Practices for Patient-Centered Value Assessment, click here to read the article
5. CMS Measure Development Education and Outreach Series, see details below.
6. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
7. Upcoming Events and Webinars, see details below
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. CMS Releases RFI on New Direction for CMMI, click here to view.
2. Lupus: Patient-Focused Drug Development Meeting, click here to watch the webcast.
3. The PCORI Blog: What 30 Years of Living with Pain Taught Me about Advancing Research, see details below.
4. Healthcare Informatics: New Patient-Centered Studies Take Advantage of PCORnet Infrastructure, 
5. Morning Consult: Evidence About Effectiveness Offers Hope for Reversing Opioid Crisis, click here to read the op-ed. 
6. HealthITAnalytics: CMS Requests Input on “New Direction” in Patient-Centered Care, click here to read the article.
7. CMS Measure Development Education and Outreach Series, see details below.
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. PIPC Submits Letter to CMS on Rule Regarding Medicare Shared Savings Requirements, click here to read letter.  
2. KMWorld: Creating a Knowledge Infrastructure for the ‘Learning Health System,’ click here to read the article
3. PatientEngagementHIT: What is the Patient Activation Measure in Patient-Centered Care? Click here to read the article.
4. mHealthIntelligence: PCORI Eyes mHealth, Telehealth Treatments for Multiple Sclerosis, click here to read the article. 
5. HealthInnovation.org: Research Roundup: Patient Engagement Pitfalls and Possibilities, click here to read the article.
6. NHC Webinar: Value Frameworks and Assessment: What do Patient Groups Need to Know? Click here to register.
7. RSVP: Addressing America's Opioid Problem: The Need for Evidence-Based Strategies, click here to RSVP..
8. CMS Measure Development Education and Outreach Series, see details below.
9. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
10. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
11. Lupus: Patient-Focused Drug Development Meeting, click here to register!
12. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
13. Upcoming Events and Webinars, see details below
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. PIPC Submits Letter to CMS on Rule Regarding Medicare Shared Savings Requirements, see details below.  
2. PIPC Chairman Tony Coelho in RealClearHealth: Prioritizing Health Care: Patient or Payer First?, click here to view the op-ed.
3. PIPC Patient Blog: Policymakers Can't Turn a Blind Eye to Patients With Disabilities, click here to view the blog post.
4. Washington Post: Why I hate buying a new wheelchair, click here to read the article.
5. NASEM Health and Medicine: Communicating Clearly About Medicines — Proceedings of a Workshop, click here to read the publication.
6. NHC Webinar: Value Frameworks and Assessment: What do Patient Groups Need to Know? Click here to register.
7. RSVP: Addressing America's Opioid Problem: The Need for Evidence-Based Strategies, see details below.
8. CMS Measure Development Education and Outreach Series, see details below.
9. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
10. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
11. Lupus: Patient-Focused Drug Development Meeting, click here to register!
12. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
13. Upcoming Events and Webinars, see details below
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. PIPC Chairman Tony Coelho in RealClearHealth: Prioritizing Health Care: Patient or Payer First?, click here to view the op-ed.
2. PIPC Patient Blog: Policymakers Can't Turn a Blind Eye to Patients With Disabilities, click here to view the blog post.
3. Washington Post: My Son Has Autism. Discrimination Almost Cost Him His Life, click here to view the article
4. NQF: Measuring What Matters to Patients: Integrating the Patient Experience into Quality Measures, click here to watch the webinar.
5. RSVP: Addressing America's Opioid Problem: The Need for Evidence-Based Strategies, see details below.
6. CMS Measure Development Education and Outreach Series, see details below.
7. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
8. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
9. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
10. Lupus: Patient-Focused Drug Development Meeting, click here to register!
11. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
12. Upcoming Events and Webinars, see details below
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.

By: Janni Lehrer-Stein
​​
I learned recently, many weeks after its early June announcement, that the Institute for Clinical Effectiveness Review (ICER) based in Boston will develop a report assessing the cost effectiveness of a new cure for blindness, a gene therapy for vision loss associated with a form of retinal disease. By the time I learned about it, the comment period had closed to allow stakeholders to share key information relevant to the first phase of development of the evidence report. While ICER said it would contact key patient groups and clinical experts to gain further insights on the patient perspective and clinical context of this new treatment option, I had never heard about it when I could have had a voice in the initial phase of the study.  It’s not clear how hard they worked to get the patient perspective, and I certainly have a perspective to share

In an op-ed published in RealClearHealth, PIPC Chairman Tony Coelho examines the limitations of quality-adjusted-life-years (QALYs) and how this tools for value-assessment may systematically discriminate against patients and individuals with disabilities. As he writes, "Underlying all this is the key question we must ask ourselves when considering any policy related to the payment and delivery of health care: for whom are we creating this policy? Who is the ultimate stakeholder? If the answer is not the people served by health systems -- patients and people with disabilities -- then we have a serious problem."

In This Week’s Issue:
 
1. PIPC Patient Blog: Patients are Changing the Conversation about Health Research, click here to read the blog.
2. PIPC Patient Blog: Better Information Means Better-Informed Treatment Choices, click here to read the blog.
3. PCORI Blog: A Clinician's View: Patient-Centered Research Is the Path to Better Health Care, click here to read the blog.
4. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
5. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
6. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey.
7. Lupus: Patient-Focused Drug Development Meeting, click here to register!
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. PIPC Patient Blog: Better Information Means Better-Informed Treatment Choices, click here to read the blog.
2. Patient Input Needed (DEADLINE TODAY @ 5:00) CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
3. Phil on the Hill: The Value of Comparative Effectiveness Research, click here to read the blog.
4. PCORI Video: Adding Value to Research, click here to watch the video.
5. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
6. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
7. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
8. Lupus: Patient-Focused Drug Development Meeting, click here to register!
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
10. Upcoming Events and Webinars, see details below
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.
 

In This Week’s Issue:
 
1. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
2. PCORI Video: Hearing the Patient Voice and Improving Care, click here to watch the video.
3. AJMC: From “Magic Bullets” to Precision Medicine—Ensuring More Patient-Centered Cancer Care, see details below
4. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
5. Patient Input Needed! CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
6. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
7. Lupus: Patient-Focused Drug Development Meeting, click here to register!
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. Uses and Misuses of the QALY: Ethical Issues and Alternative Measures of Value, click here to read the summary. 
2. BPC: PIPC on Panel on Future of Comparative Effectiveness Research, click here to view the webcast.
3. PCORI VIDEO: Meeting Patients on Their Terms, click here to watch the video.
4. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
5. DPAC: Says Who — Who Is Involved in Policy-Making Regarding Diabetes? Click here to read more.
6. Patients - Apply Now! Technical Expert Panel (TEP) on Quality Measure Development: Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures, click here to apply.
7. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
8. Patient Input Needed! CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
9. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
10. Lupus: Patient-Focused Drug Development Meeting, click here to register!
11. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
12. Upcoming Events and Webinars, see details below
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.