In This Week’s Issue:
 
1. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
2. DREDF Comments on Tenncare III and Impact on People with Disabilities. Click here to view the comments.
3. PIPC Chairman Tony Coelho Applauds HHS Report Acknowledgment of Equity and Access Implications of Discriminatory Metrics and Urges Policymakers to Avoid One-Size Fits-All Value Judgements. See details below.
4. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Hypertrophic Cardiomyopathy, click to view the letter.
5. PIPC Comments on PCORI Proposed National Priorities for Health, click here to read the letter.
6. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data - DUE October 1, 2021, see details below.
7. New Funding Opportunities are Due October 5. Click here to read more.
8. New Disability Equity Collaborative Paper Identifies Research Priorities for Advancing Equitable Care for People with Disabilities. Click here to read the press release.
9. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
10. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. IVI to Hold Second Methods Summit, click here to learn more.
14. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Chairman Tony Coelho Applauds HHS Report Acknowledgment of Equity and Access Implications of Discriminatory Metrics and Urges Policymakers to Avoid One-Size Fits-All Value Judgements. See details below.
2. PIPC Comments on PCORI Proposed National Priorities for Health, click here to read the letter.
3. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data, see details below.
4. New Funding Opportunities Open September 7th. Click here to read more.
5. New Disability Equity Collaborative Paper Identifies Research Priorities for Advancing Equitable Care for People with Disabilities. Click here to read the press release.
6. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Myasthenia Gravis. Click here to read the letter.
7. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
8. Value Assessment in the News, see details below.
9. Announcing the Disability Equity Collaborative. Click here to visit the new website.
10. Is the QALY Fit for Purpose? Click here to read the journal.
11. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. IVI to Hold Second Methods Summit, click here to learn more.
15. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
16. Upcoming Events and Webinars, see details below.
17. Medical Journal Articles, see details below.
18. AHRQ Effective Program Updates, see details below.  

​In a report from the U.S. Department of Health and Human Services (HHS) to the White House laying out a “Comprehensive Plan for Addressing High Drug Prices,” HHS acknowledged the equity implications of certain methodologies, such as quality-adjusted-life-years (QALYs), for people of all ages with disabilities and chronic conditions and stated that drug pricing reforms should avoid utilization of methodologies that adversely impact access to needed medications for vulnerable populations.  

In This Week’s Issue:
 
1. PIPC Comments on PCORI Proposed National Priorities for Health, click here to read the letter.
2. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data, see details below.
3. New Funding Opportunities Open September 7th. Click here to read more.
4. New Disability Equity Collaborative Paper Identifies Research Priorities for Advancing Equitable Care for People with Disabilities. Click here to read the press release.
5. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Myasthenia Gravis. Click here to read the letter.
6. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
7. Value Assessment in the News, see details below.
8. Announcing the Disability Equity Collaborative. Click here to visit the new website.
9. Is the QALY Fit for Purpose? Click here to read the journal.
10. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. IVI to Hold Second Methods Summit, click here to learn more.
14. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Comments on PCORI Proposed National Priorities for Health, click here to read the letter.
2. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data, see details below.
3. New Disability Equity Collaborative Paper Identifies Research Priorities for Advancing Equitable Care for People with Disabilities. Click here to read the press release.
4. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Myasthenia Gravis. Click here to read the letter.
5. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
6. Value Assessment in the News, see details below.
7. Announcing the Disability Equity Collaborative. Click here to visit the new website.
8. Is the QALY Fit for Purpose? Click here to read the journal.
9. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
12. IVI to Hold Second Methods Summit, click here to learn more.
13. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data, see details below.
2. New Disability Equity Collaborative Paper Identifies Research Priorities for Advancing Equitable Care for People with Disabilities. Click here to read the press release.
3. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Myasthenia Gravis. Click here to read the letter.
4. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
5. Value Assessment in the News, see details below.
6. Announcing the Disability Equity Collaborative. Click here to visit the new website.
7. Is the QALY Fit for Purpose? Click here to read the journal.
8. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
9. Public Comment on PCORI Proposed National Priorities for Health - Comments DUE THIS WEEK, see details below.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
12. IVI to Hold Second Methods Summit, click here to learn more.
13. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data, see details below.
2. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
3. Value Assessment in the News, see details below.
4. Announcing the Disability Equity Collaborative. Click here to visit the new website.
5. Is the QALY Fit for Purpose? Click here to read the journal.
6. PCORI Approves $254 Million to Fund 28 New Research Studies Addressing Urgent Health Problems. Click here to read the press release.
7. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
8. Public Comment on PCORI Proposed National Priorities for Health, see details below.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
11. IVI to Hold Second Methods Summit, click here to learn more.
12. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
12. Open Position: Epilepsy Foundation Is Hiring an Advocacy Coordinator. Click here to apply.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. PCORI Announces Engagement Award on Consideration of the Full Range of Outcomes Data, see details below.
2. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
3. Value Assessment in the News, see details below.
4. Announcing the Disability Equity Collaborative. Click here to visit the new website.
5. Is the QALY Fit for Purpose? Click here to read the journal.
6. PCORI Approves $254 Million to Fund 28 New Research Studies Addressing Urgent Health Problems. Click here to read the press release.
7. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
8. Public Comment on PCORI Proposed National Priorities for Health, see details below.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
11. IVI to Hold Second Methods Summit, click here to learn more.
12. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
2. Value Assessment in the News, see details below.
3. Is the QALY Fit for Purpose? Click here to read the journal.
4. PCORI Approves $254 Million to Fund 28 New Research Studies Addressing Urgent Health Problems. Click here to read the press release.
5. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
6. Public Comment on PCORI Proposed National Priorities for Health, see details below.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
9. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
10. IVI to Hold Second Methods Summit, click here to learn more.
11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. White House and Disability Advocates Celebrate the 31st ADA Anniversary. See details below.
2. It is Time to Let Go of the QALY’s Legacy of Discrimination. Click here to read the article.
3. Value Assessment in the News, see details below.
4. Is the QALY Fit for Purpose? Click here to read the journal.
5. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
6. Public Comment on PCORI Proposed National Priorities for Health, see details below.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
9. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
10. IVI to Hold Second Methods Summit, click here to learn more.
11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Value Assessment in the News, see details below.
2. Is the QALY Fit for Purpose? Click here to read the journal.
3. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
4. Public Comment on PCORI Proposed National Priorities for Health, see details below.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
6. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
7. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
8. IVI to Hold Second Methods Summit, click here to learn more.
9. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. IVI Webinar: How Should Policy Uphold Equity in Value Assessment?, click here to learn more and register.
2. Value Assessment in the News, see details below.
3. Public Comment on PCORI Proposed National Priorities for Health, see details below.
4. KQED: Step Therapy Protocols Keep Patients from Accessing Post-Partum Depression Treatment, click here to read the story.
5. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Atopic Dermatitis, see details below.
6. RECORDING AVAILABLE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar.
7. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
8. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
9. IVI to Hold Second Methods Summit, click here to learn more.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Public Comment on PCORI Proposed National Priorities for Health, see details below.
2. KQED: Step Therapy Protocols Keep Patients from Accessing Post-Partum Depression Treatment, click here to read the story.
3. PIPC Submits Comments to CMS on National Coverage Decision for Screening Lung Cancer with LDCT, click here to read the letter.
4. Health Affairs: Medicare Beneficiaries with Disabilities More Likely to Have Preventable Emergency Room Visits, click here to view the paper.
5. RECORDING AVAILABLE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar.
6. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
7. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
8. IVI to Hold Second Methods Summit, click here to learn more.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. WEBINAR TOMORROW: Public Comment on PCORI Proposed National Priorities for Health, see details below.
2. TOMORROW: AUCD Webinar on Strategies for COVID-19 Vaccine Access and Confidence for People with Disabilities, click here to register.
3. PIPC Submits Comments to CMS on National Coverage Decision for Screening Lung Cancer with LDCT, click here to read the letter.
4. Health Affairs: Medicare Beneficiaries with Disabilities More Likely to Have Preventable Emergency Room Visits, click here to view the paper.
5. RECORDING AVAILABLE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar.
6. New CDC Guidance on COVID-19 Vaccines for People with Underlying Medical Conditions, click here to read more.
7. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
8. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
9. IVI to Hold Second Methods Summit, click here to learn more.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week's Issue:

1. PIPC Submits Comments to CMS on National Coverage Decision for Screening Lung Cancer with LDCT, click here to read the letter.
2. HAPPENING TODAY: SIDM Webinar on Proposed Common Format for Diagnostic Errors, see details below.
3. RECORDING AVAILALE -- Discrimination and Health Care: How it Impacts You, click here to view the webinar.
4. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Atopic Dermatitis, click here to read the letter.
5. New CDC Guidance on COVID-19 Vaccines for People with Underlying Medical Conditions, click here to read more.
6. Transcript Available: May 24-25 PCORI Board of Governors Meeting, click here to view.
7. SECOND WEBINAR THIS IVI Webinar Series: Toward Equity in Value Assessment, click here to learn more.
8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
9. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
10. IVI to Hold Second Methods Summit, click here to learn more.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Alzheimer's Disease, Asthma, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.