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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010

The PIPC Blog

PIPC Weekly Update: January 29, 2018

1/29/2018

 
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In This Week’s Issue:
 
1. PIPC Patient Blog: Seeing the Promise in Gene Therapy, click here to read the blog.
2. The PCORI Blog: PCORI at Age Seven: Results That Matter, with Much More to Come, click here to read the blog.
3. AHRQ: Academy Health Journal Accepting Manuscripts on Patient-Centered Clinical Decision Support, Deadline: Wednesday, Jan. 31 click here to submit.  
4. EHRIntelligence: Apple Debuts Patient-Centered EHRs With Health Records App, click here to read the article. 
5. Paper: Patient Variability Seldom Assessed in Cost-Effectiveness Studies, click here to read the blog. 
6. Submit 2018 Fly-Ins, Advocacy Days and Conferences to Democratic Caucus, click here to submit.
7. Upcoming Events and Webinars, see details below.
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below.


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PIPC Weekly Update: January 22, 2018

1/22/2018

 
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In This Week’s Issue:
 
1. PIPC Patient Blog: Seeing the Promise in Gene Therapy, click here to read the blog.
2. PCORI Video: Bringing Researchers and Patients Together to Improve Outcomes, click here to watch the video.
3. AHRQ: Academy Health Journal Accepting Manuscripts on Patient-Centered Clinical Decision Support,click here to submit.  
4. HomeCare: The New Challenge of the Home-Based Care Industry, click here to read the article.
5. NPC: A Precision Paradigm for Value Assessment: How Frameworks Can Account for Personalized Medicine to Inform Payers, Providers, Innovators and Patients, click here to read the blog. 
6. Submit 2018 Fly-Ins, Advocacy Days and Conferences to Democratic Caucus, click here to submit.
7. Upcoming Events and Webinars, see details below.
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below.


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PIPC Weekly Update: January 16, 2018

1/16/2018

 
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In This Week’s Issue:
 
1. PIPC Patient Blog: Seeing the Promise in Gene Therapy, click here to read the blog.
2. #PIPCForum17: Patient Voices, Patient Value: Changing the Culture of How We Pay for Care, click here to read the recap. 
3. Morning Consult: Well-Informed Patients Play a Key Role in Value-Based Care, click here to read the article. 
4. Renal and Urology News: Guidelines Disconnect: Patients' Voice Absent, click here to read the article. 
5. American Academy of Dermatology Issues New Guidelines for Treatment of Nonmelanoma Skin Cancer, click here to read the article
6. Healthcare IT News: Telemedicine's market momentum prompts vendors to expand, connect with larger patient populations, click here to read the article. 
7. AHRQ: Academy Health Journal Accepting Manuscripts on Patient-Centered Clinical Decision Support, click here to submit.  
8. Health Catalyst: Improve Patient Satisfaction: 5 Things Healthcare Organizations Can Learn From Disney, click here to read the article
9. Webinar: CMS Measures Inventory Tool (CMIT) and the CMS Measures Inventory: Updates to the System and the Data, click here to register.
10. Submit 2018 Fly-Ins, Advocacy Days and Conferences to Democratic Caucus, click here to submit.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.


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PIPC Patient Blog: Seeing the Promise in Gene Therapy

1/12/2018

 
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By: Janni Lehrer-Stein

​A 10-year-old girl sees her mother’s face for the first time. An 11-year-old boy races through the aisles of Target, marveling at toys he never knew existed. Both children had mere glimmers of vision, and were destined to lose even that because of an inherited eye disease with no treatment or cure. But thanks to the miracles of modern-day medicine, what was once only possible in science fiction novels is now becoming reality. 


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PIPC Weekly Update: January 8, 2018

1/8/2018

 
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In This Week’s Issue:
 
1. #PIPCForum17: Patient Voices, Patient Value: Changing the Culture of How We Pay for Care, click here to read the recap. 
2. Modern Medicine: New patient-centered tool could help measure value in healthcare, click here to read the article.  
3. AJMC Survey: Survey: Disconnect in Perceptions of Healthcare Experience Among Stakeholders, click here to read the article
4. Academy Health: Working to Create More Bridges and Achieve Person-Centered Care, click here to read the blog
5. The PCORI Blog:  Researchers and Stakeholders Describe Engagement Challenges and Strategies, click here to read the blog.
6. Healthcare IT News: Intermountain, Press Ganey partnership hopes to boost quality, safety, patient experience, click here to read the blog.
7. PMLiVE: Patient Involvement in Health Technology Assessment, click here to read the article.
8. JMIR Publications: Communication at Transitions – One Audacious Bite at a Time, click here to read the journal. 
9. FDA Voice: New Patient Engagement Collaborative, Call for Nominations, click here to read the blog.
10. Submit 2018 Fly-Ins, Advocacy Days and Conferences to Democratic Caucus, click here to submit.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.


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PIPC’s 8th Annual Forum: Patient Voices, Patient Value: Changing the Culture of How We Pay for Care

1/8/2018

 
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​Health care value is being defined through new payment incentives and value standards proposed and implemented by health care payers, policy-makers, and providers, but has long discounted the inclusion of patient perspective. As part of an effort to advance a “new direction” for the government agency, the Centers for Medicare & Medicaid Servcies (CMS) has issued a Request for Information (RFI) seeking insights on how to better advance innovation in care and payment more representative of patient-centered care as part of the agency’s Innovation Center (CMMI). At the Partnership to Improve Patient Care (PIPC) Annual Forum, Ms. Amy Bassano, the Acting Director of CMMI, explained how CMS might test market-driven reforms that empower beneficiaries as consumers, provide price transparency, increase choices and competition to drive quality, reduce costs, and improve outcomes. 


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