“By acting on these recommendations, policymakers can prioritize outcomes that actually matter to patients as they seek to implement a shift from fee-for-service to value-based payment models. These recommendations make clear that when patients are meaningfully engaged in the process of developing new policies and programs—particularly as they relate to new payment models—we can make a significant contribution toward the ultimate goal of fostering a patient-centered healthcare system."
The panel recommended specific approaches for policymakers to take actions, including steps to:
- Achieve outcomes that matter to patients.
- Promote care planning that identifies patient preferences.
- Support effective shared decision-making.
- Improve electronic health records.
- Promote patient-driven care through APMs.
- Increase transparency to patients and beneficiaries.
- Support credible use of evidence.
- Use quality measures reflecting outcomes that matter to patients.
- Develop a new patient satisfaction survey and score.
Organizations represented in this roundtable included:
- Bladder Cancer Advocacy Network
- Cancer Support Community
- Cutaneous Lymphoma Foundation
- Fight Colorectal Cancer
- Friends of Cancer Research
- Lung Cancer Alliance
- National Coalition for Cancer Survivorship
- National Patient Advocate Foundation
- Partnership to Improve Patient Care
- Patient-Centered Outcomes Research Institute
Since its founding, the Partnership to Improve Patient Care (PIPC) has been at the forefront of patient-centeredness in comparative effectiveness research (CER) – both its generation at the Patient-Centered Outcomes Research Institute (PCORI), and its translation into patient care. Having driven the concept of patient-centeredness in the conduct of research, PIPC looks forward to bringing the patient voice to the discussion of how to advance patient-centered principles throughout an evolving healthcare system.
PIPC's Steering Committee is comprised of the following organizations: the Alliance for Aging Research, the American Association for Cancer Research, the American Association of Neurological Surgeons, the American Association of People with Disabilities, the American Gastroenterological Association, the American Osteopathic Association, the Association of Clinical Research Organizations, the Biotechnology Industry Organization (BIO), Easter Seals, the Epilepsy Foundation, the National Association for Hispanic Health, and PhRMA. PIPC can also be followed on Facebook and Twitter at @pipcpatients.