No patient is average. As the new Congress and administration advance much-needed policies to address patient affordability, entities such as the Patient-Centered Outcomes Research Institute (PCORI) have the potential to play an invaluable role in demonstrating the differential impact of treatments on subpopulations, allowing the United States to advance patient-centered policies uniquely suited to its diverse health system.
- President-elect Joe Biden’s responses to the AAPD/NCIL questionnaire, page 7
- Statement against QALYs in DNC Platform, page 31
- Republican position against use of QALYs in Medicaid, New York Times, 1992
- Colloquy, remarks by former Senator Michael Enzi opposing cost effectiveness research, 2009, p. S1796
- PCORI information
Since its founding, the Partnership to Improve Patient Care (PIPC) has been at the forefront of applying principles of patient-centeredness to the nation’s health care system – from the generation of comparative clinical effectiveness research at the Patient-Centered Outcomes Research Institute (PCORI), to the translation of evidence into patient care in a manner that achieves value to the patient. Having driven the concepts of patient-centeredness and patient engagement in the conduct of research, PIPC looks forward to bringing the voices of patients and people with disabilities to the discussion of how to advance patient-centered principles throughout an evolving health care system.