Ms. Donna Cryer, President and CEO of the Global Liver Institute, stated, “The liver community appreciates the recognition by PCORI that Hepatitis C represents both a public health challenge, with more than 3.2 million people in the U.S. and 350 million globally currently living with the virus, and a public health opportunity, with a new generation of curative therapies available. The urgency with which PCORI has stepped in to support the development of an ethical, collaborative process to build the body of high-quality information to guide researchers, patients, and their care teams to make the most of this opportunity further demonstrates the value PCORI provides to the healthcare system.”
Ms. Angela Ostrom, a member of PIPC's Steering Committee on behalf of the Epilepsy Foundation, stated, "As a patient organization, the Epilepsy Foundation has watched closely the process undertaken by PCORI to prioritize research topics in the area of hepatitis C and applauds PCORI's use of an expert advisory panel to determine the research questions that will best meet the needs of patients in health care decision-making. Unlike the investigator-initiated process embraced by PCORI to date, PCORI's process to identify priorities for research for hepatitis C was more closely aligned with the prioritization process we envisioned under PCORI's authorizing statute. We are hopeful PCORI will do more to identify specific priorities for research in its public comment process in 2015 with similar subsequent stakeholder engagement within those priority areas to identify the most useful questions for research."