1. PIPC: Tell HHS That Patients Deserve a Seat at the Table! click here to sign letter by Friday, April 24.
2. AIR Study Finds ‘Public Deliberation’ Effectively Captures Informed Views on Complex Health Policy Issues, click here to view the press release.
3. DBSA: Join for Congressional Briefings on Peer Support Services, see details below.
4. PMC Blog: Paying for Personalized Medicine: Protecting the Future of Patient-Centered Cancer Care, click here to view the article.
5. PCORI to Begin Offering CME, CE Focused on Patient-Centered Outcomes Research Findings and Methodology, click here to view the press release.
6. IBM Positions Itself as Large Broker of Health Data, click here to view the article.
7. PCORI Blog: Convening Stakeholders to Improve Treatment of Multiple Sclerosis, click here to view the blog.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
In March 2015, the Department of Health and Human Services (HHS) announced an ambitious new framework to move our health care system away from rewarding health providers for the quantity of care they provide and toward rewarding quality. While most patient stakeholders agree that paying for “value” rather than “volume” will result in better outcomes for patients, the shift to value-based payment holds significant implications for the patient-centeredness movement and the related issues of patient access and the physician-patient relationship. That’s why it’s important that patients have a seat at the table in determining how these new payment models are implemented. By signing onto our letter, you can add your name to the list of individual patients and patient organizations—themselves representing millions of patients nationwide—who are asking HHS to recognize patients as key stakeholders in this discussion. This effort begins with including patients within the Department’s new Health Care Payment Learning and Action Network, which will accelerate the transition to alternative payment models and could play a key role in aligning them with the principles of patient-centeredness. To electronically sign the letter, click here to fill out your information by Friday, April 24.
2. AIR Study Finds ‘Public Deliberation’ Effectively Captures Informed Views on Complex Health Policy Issues
According to the results of a new trial conducted by the American Institutes for Research (AIR), “public deliberation—a way to capture in-depth perspectives on controversial issues—effectively provides informed public views on complex health policy issues, such as the role of medical evidence in treatment decisions… The U.S. health care system’s complexity [o]ften makes it difficult for policymakers to obtain informed public views to help guide decisions on complicated health care issues. Unlike surveys and focus groups designed to measure the prevalence and range of opinions—or so-called top-of-mind opinions—public deliberation encourages people to become informed about a topic and consider alternative—often competing—perspectives... Compared to the control group, public deliberation increased participants’ knowledge of medical evidence and comparative effectiveness research and shifted their attitudes about the importance of medical evidence in treatment decisions, according to the study.” Click here to view the press release.
3. DBSA: Join for Congressional Briefings on Peer Support Services
On Wednesday, April 29, the Depression Bipolar Support Alliance (DBSA) will be hosting two congressional briefings – 10am in the House (334 Cannon) and 2pm in the Senate (SVC 200) – to educate staff and policy leaders about the important role peer support services play in helping persons with a mental health condition, addiction and traumatic brain injury (TBI). According to a notice from DBSA, “use of peer support services has been shown to improve recovery and reduce cost of care by decreasing inpatient and emergency room use. Already, the Veterans Administration and commercial health systems have successfully incorporated peer support services into their care models.” To register, email email@example.com.
4. PMC Blog: Paying for Personalized Medicine: Protecting the Future of Patient-Centered Cancer Care
As detailed in a recent blog post from Dr. Amy Miller, Executive Director of the Personalized Medicine Coalition (PMC), “PMC will release a white paper [next week] on alternative payment models, Paying for Personalized Medicine: How Alternative Payment Models Could Help or Hinder the Field. The white paper highlights potential implications of alternative payment models on personalized medicine. Given the complexity of cancer, and the uniqueness of each patient's disease, such models could have a disproportionate impact on cancer patients and innovation in cancer research…. As a co-convener of the Turning the Tide Against Cancer initiative, PMC is actively engaged in the discussion of how to sustain innovation and ensure that cancer care is patient-centric. The initiative aims to bring together the cancer community and has developed policy recommendations that will foster innovation in cancer care and research.” Click here to view the article.
5. PCORI to Begin Offering CME, CE Focused on Patient-Centered Outcomes Research Findings and Methodology
According to a press release from the Patient-Centered Outcomes Research Institute (PCORI), “clinicians and other professionals involved in healthcare delivery will be able to access PCORI's first two interprofessional educational activities free of charge at the end of May. Baylor is developing a series of online modules and an interactive webinar that address research study design and PCORI's Methodology Standards. PRIME is creating a video that discusses the early findings of a PCORI-funded study that compared the effectiveness of intravenous and oral antibiotic treatments at preventing recurrence of serious bone infections in children once they have left the hospital.” Click here to view the press release.
6. WSJ: IBM Positions Itself as Large Broker of Health Data
As The Wall Street Journal reported last week, “[IBM] unveiled on Monday a partnership with Apple Inc., Johnson & Johnson and Medtronic Inc., as well as the acquisition of two medical-data software companies… to leverage the tech company’s analytics and health-care software businesses into a new generation of apps for patients and providers…. ‘The health-care system is highly fragmented with very little sharing of information, and outcomes are not acceptable and the cost is completely unacceptable,’ said IBM Senior Vice President John Kelly. ‘As we see health care becoming more information-based, we see a role for IBM to step in.’ [Dr. Robert Wachter] said IBM was well positioned to provide such apps because it appeared to be relatively neutral compared with medical records or insurance companies that might pool similar data.” Clickhere to view the article.
7. PCORI Blog: Convening Stakeholders to Improve Treatment of Multiple Sclerosis
In a post on The PCORI Blog, PCORI’s Diane E. Bild, MD, MPH, comments, “to help us determine whether there might be CER questions about MS that would be appropriate for PCORI to address, we turned for guidance to those who have the biggest stake in MS research: patients, clinicians and healthcare systems that treat MS patients, and companies that develop drugs to treat this condition and its symptoms. On April 2, we convened a large stakeholder workshop in Washington, DC, to consider promising CER questions that, if answered through research we'd support, could help patients and clinicians choose the best treatments for patients with MS.” Click here to view the blog.
8. Upcoming Events and Webinar
Hill Briefing: Peer Support Services
April 29, 2015, 10:00 – 11:00 AM; 2:00 – 3:00 PM
The Depression Bipolar Support Alliance (DBSA) will hosting two congressional briefings – 10am in the House (334 Cannon) and 2pm in the Senate (SVC 200) – to educate staff and policy leaders about the important role peer support services play in helping persons with a mental health condition, addiction and traumatic brain injury (TBI). To register, firstname.lastname@example.org.
Integration of Primary Care and Behavioral Health May 1, 2015, 10:00AM - 4:00PM ET Click here for details.
Research Methods Webinar on Determining the Pragmatic Characteristics of Research May 1, 2015, 1:30 - 3:00PM EST Click here for details.
PCORI Board of Governors Meeting May 4, 2015, 10:00AM - 5:00PM ET Click here for details.
ISPOR 20th Annual International Meeting May 16 - 20, 2015, Philadelphia, PA Click here for details.
Webinar: Methodological Issues in Big Data Analytics May 7, 2015, 2:00 - 3:300 PM ET Click here for details. October 2015 CEPAC Meeting: Drug Therapies for High Cholesterol October 27, 2015, 10:00 AM - 4:00 PM EDT Click here for details.
9. Medical Journal Articles
The Impact of Cochrane Reviews: A Mixed-Methods Evaluation of Outputs from Cochrane Review Groups Supported by the National Institute for Health Research, click here to view. How to Get All Trials Reported: Audit, Better Data, and Individual Accountability, click here to view. Comparison Between the Standard and a New Alternative Format of the Summary-of-Findings Tables in Cochrane Review Users: Study Protocol for a Randomized Controlled Trial, click here to view. Understanding Heterogeneity of Treatment Effect in Prostate Cancer, click here to view.
Long-Term Outcomes of Analogue Insulin Compared With NPH for Patients With Type 2 Diabetes Mellitus, click here to view.
Comparison of Switch to Fingolimod or Interferon Beta/Glatiramer Acetate in Active Multiple Sclerosis, click here to view. Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-Sectional Survey, click here to view.
Understanding Heterogeneity of Treatment Effect in Prostate Cancer, click here to view.
10. AHRQ Effective Program Updates
Renal Artery Stenosis Management Strategies: An Updated Comparative Effectiveness Review, click here to comment by April 23.
Early Diagnosis, Prevention, and Treatment of C. difficile: Update, click here to comment by May 13.