1. PIPC Roundtable on PCORI’s Evaluation Framework, click here to view the meeting summary and recommendations.
2. Forbes: Column: Who Will Own the Future of Healthcare? Click here for the full article.
3. Viewpoint: Is Big Data the New Frontier for Academic-Industry Collaboration? Click here for the full article.
4. Tulsa World: Op-ed: It's the Value, Not the Cost, click here for the full article.
5. Time: Google's Flu Project Shows the Failings of Big Data, click here for the full article.
6. Sanofi Appoints 'Chief Patient Officer,' click here for the full article.
On March 7, 2014, the Partnership to Improve Patient Care (PIPC) convened a group of its Steering Committee members, along with individuals serving on the Patient-Centered Outcomes Research Institute (PCORI) Patient Engagement Advisory Panel (PEAP) and PCORI staff. The purpose of the roundtable was to discuss how PCORI should evaluate its activities against a patient-centered framework using metrics that are most useful to patients. PIPC concluded that a strong evaluation framework should validate to patients that PCORI takes patient engagement seriously, and intends to measure its use and its impact both within PCORI, and outside PCORI. This mission-related evaluation framework should be developed to show outcomes over the next 3 years.
Additionally, PCORI should embrace the brand “research done differently” so that it is communicated and understood and embraced by patients, patient groups, caregivers and providers. An important step in developing this brand is to better define, through its evaluation metrics, what makes PCORI truly different from other research organizations. PIPC recommended that PCORI utilize not only quantitative but qualitative metrics, i.e. standing ovations, as part of the evaluation framework. Click here to view the meeting summary and recommendations.
2. Forbes: Column: Who Will Own the Future of Healthcare?
Writing for Forbes last week, Joon Yun commented, "Consumers are not only empowering themselves through information about health but also by becoming participants in health innovation [...] The 2010 Patient Protection and Affordable Care Act established The Patient-Centered Outcomes Research Institute, which enables patients to become directly involved in improving healthcare research and outcomes." Click here for the full article.
3. Viewpoint: Is Big Data the New Frontier for Academic-Industry Collaboration?
Sachin H. Jain, Michael Rosenblatt, and Jon Duke wrote a piece for the Journal of American Medical Association (JAMA) saying, "With the increasing use of electronic medical records in clinical practice, a new potential source for partnerships has emerged: electronic clinical data. Academic-industry collaborations involving the use of such data provide opportunities to study the value and comparative effectiveness, safety, and efficacy of medications, vaccines, and health care delivery models. As interest in such collaborations increases, so does the need for thoughtful consideration of issues associated with them." Click here for the full article.
4. Tulsa World: Op-ed: It's the Value, Not the Cost
Dr. Stanley N. Schwartz, an infectious disease specialist in Oklahoma and health-care consultant for The Holmes Organisation [sic], penned an op-ed for the Tulsa World commenting that, "Evidence based medicine is all about using the best scientific evidence, usually from research, to guide decisions about your treatment. But to be applied correctly, your physician's professional judgment and your personal preferences, ethics, faith and experience must be taken into account. Good medical evidence to guide treatment isn't available for all conditions and diseases, but for the most common problems such as heart disease, diabetes, asthma and arthritis, reliable guidelines are easy to find." Click here for the full article.
5. Time: Google's Flu Project Shows the Failings of Big Data
Mirroring themes of PCOIR’s mission, Time’s Bryan Walsh reported, "At its best, science is an open, cooperative and cumulative effort. If companies like Google keep their big data to themselves, they'll miss out on the chance to improve their models, and make big data worthy of the hype. 'To harness the research community, they need to be more transparent,' says [David Lazer]. 'The models for collaboration around big data haven't been built.' It's scary enough to think that private companies are gathering endless amounts of data on us. It'd be even worse if the conclusions they reach from that data aren't even right." Click here for the full article.
6. Sanofi Appoints 'Chief Patient Officer'
Industry web publication, PMLiVE, reported on the movement of PCORI’s former Chief Officer for Engagement to Sanofi, "The appointment reflects a tide in the industry towards a more patient-centric business model that takes into account the needs and wants of a patient at each step of the process when bringing new medicines to market." Click here for the full article.