1. PIPC Releases Poll on Comparative Effectiveness Research, click here to see the press release, and here to view the poll results.
2. Summary: PIPC/AAPD Disability Roundtable with PCORI, click here to view a summary of the roundtable.
3. PCORI Events and Meeting Materials, see details below.
PIPC conducted a national survey of 1,500 registered voters between May 28 – June 5, 2013 to ascertain public opinion regarding CER and attitudes concerning the appropriate role of a federal CER Institute. According to the results of the poll, Americans generally like their healthcare today and trust their doctors more than the government when it comes to determining their care. Further, Americans believe that an independently-run CER institute, such as the Patient Centered Outcomes Research Institute (PCORI), has great potential to benefit their lives by providing science-based, accurate, and transparent information to their doctors and the public at large. But while Americans expressed favor for a comparative effectiveness institute focused on providing information to physicians and patients, the poll findings also revealed a general consensus that research findings should not be used to influence coverage decisions.
According to PIPC Chairman Tony Coelho, "These poll results reinforce the mission of PIPC to help PCORI stay focused on its patient-centered mission, and to continue to emphasize the importance of transparency, good science, and a commitment to improving the communication of useful data to practitioners and individual patients alike.” Chairman Coelho continued, “A significant part of PCORI’s success will be getting information to the end user, the patient and doctor, in a manner that is perceived as valuable to their health care decision-making, as opposed to being implemented in a manner that limits their choices.” Click here to see the press release, and here to view the poll results.
2. Summary: PIPC/AAPD Disability Roundtable with PCORI
On Monday, June 10, 2013, the Partnership to Improve Patient Care (PIPC) and the American Association of People with Disabilities (AAPD) convened a roundtable representing people with disabilities in an effort to provide PCORI with consensus recommendations to develop research contracts beneficial to the disability community. PCORI researchers were present to outline the parameters for the research projects that PCORI can fund, as well as the process for working with PCORI.
Participants in the roundtable endorsed a number of topics for consideration for targeted PCORI funding announcements, including: integrated care coordination, barriers to access to care, and technology enabled supports. Participants also expressed intention to collaborate with PCORI in the future in order to participate in the Pipeline to Proposals, while seeking clarification on how PCORI will seek input for intermediate funders to manage engagement contracts. Further, the roundtable participants conveyed the significant challenges surrounding the development of data related to people with disabilities, and want to work with PCORI to address those needs. Lastly, the roundtable recommended that PCORI develop protocols for the dissemination of research findings in consultation with organizations and individuals representing people with disabilities. Click here to view a summary of the roundtable.
3. PCORI Events and Meeting Materials
PCORI held a roundtable on July 29, 2013 to discuss the dissemination and implementation of comparative clinical effectiveness research (CER) findings. According to PCORI, “We are commissioning the development of the PCORI Blueprint for Dissemination and Implementation of Research to complement the work with the Agency for Healthcare Research and Quality (AHRQ). The roundtable is an opportunity to provide input into the development of the request for proposal (RFP) for the commission.” Click here to view the presentation slides, and here to view the participants.
On August 23, 2013, NIA and PCORI will present a joint webinar/teleconference to assist potential applicants in submitting proposals under RFA-AG-14-009, which invites applications for funding to conduct a randomized clinical trial of a multifactorial strategy for reducing serious fall-related injuries among non-institutionalized older persons. Click here for more information and to register for the webinar.
On September 3 and 4 PCORI will hold respective town hall webinars for applicants to the Clinical Data Research Networks (CDRN) and the Patient-Powered Research Networks (PPRN). Click here to register for the events.
On September 10, the PCORI Board of Governors will hold a public webinar/teleconference to consider approval of Cycle III (April 2013) and the inaugural Improving Methods for Conducting PCOR funding awards. Click here for additional information and to register for the webinar.