1. Joint Letter with 50 Signatures to CMMI Emphasizing Early Patient Engagement in New Payment Models, click here to read the letter.
2. PIPC Patient Blog: Our Children Are Worth It, click here to read the blog.
3. National Meeting on Active Duty and Veteran Women’s Health, see details below.
4. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar, click here to take the survey.
5. Patient EngagementHIT: Patient-Provider Communication, Education Key for Opioid Prescribing, click here to read the article.
6. The PCORI Blog: PCORI-Funded Projects Aim to Use Telehealth to Address Disparities, click here to read the blog.
7. 2018 PCORI Annual Meeting, click here for details.
8. PCORI Peer Review Opportunity, click here to apply.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.
Almost 50 leading organizations representing patients and people with disabilities submitted a joint letter with PIPC to the Centers for Medicare and Medicaid Innovation (CMMI), urging the agency to act on their statute’s call for alternative payment models to be evaluated based on patient-centeredness criteria. PIPC Chairman Tony Coelho emphasized that when it comes to payment model development, CMMI must engage patients early in their work to develop and implement new models. Specifically, the letter offers three concrete steps to establish the criteria called for by CMMI’s statute: (1) Establish the “patient-centeredness criteria” mandated under Section 1115A of the Affordable Care Act, which requires evaluation of alternative payment models (APMs) against patient-centeredness criteria; (2) convene patient and consumer advisory panels for each of the Innovation Center models under development as well as those currently being implemented; and (3) define “informed decision-making” as a core criterion of patient-centeredness and a goal of each alternative payment model. Click here to read the letter.
2. PIPC Patient Blog: Our Children Are Worth It
In PIPC’s newest Patient Blog, Stephanie Bozarth provides a firsthand perspective of why cost effectiveness analysis are wrong for persons with disabilities. “Should one consider the life of a person with a disability less valuable than the life of a person without a disability? Alarmingly, states are increasingly relying on policies that do just that, in order to determine the value of health care services and treatments. For children suffering from life-threatening and debilitating disorders, like my daughter, reliance on any standard that considers her life less valuable than someone without a disability, is simply unacceptable.” Click here to read the blog.
3. National Meeting on Active Duty and Veteran Women’s Health
Do you have patients that are active duty and veteran women? Register to attend the National Meeting on Active Duty and Veteran Women’s Health in Washington, DC on August 27 to discuss best practices in and new research on delivering quality care to military women, particularly in traditional clinical settings. The meeting is free to attend and will be live streamed here for those unable to attend in person.
4. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar
The Depression and Bipolar Support Alliance and the Milken Institute Center for Strategic Philanthropy have partnered for a new initiative that seeks to understand how adults affected by depression and bipolar describe wellness and what types of research matter most to them. “If you or a loved one have been affected by depression or bipolar disorder, we want to hear YOUR voice. Your experiences are needed to discover, develop, and deliver better medical products and care services. The Milken Institute and DBSA hope to bring thousands of voices from the community to the forefront of mental health treatment and research conversations. Take and share this survey so that we can include the diversity of voices in the discussion of mental health research.” Click here to take the survey.
5. Patient EngagementHIT: Patient-Provider Communication, Education Key for Opioid Prescribing
In an article for Patient EngagementHIT, Sara Health reports on a MGMA report noted that meaningful patient-provider communication and patient education can help reduce the opioid epidemic. “The report, Combatting the Opioid Epidemic: Effective Policies and Communication Strategies – An MGMA Research & Analysis report, revealed three key elements to managing the opioid crisis. Chief among them was clear communication strategies between patient and provider, as well as different provider stakeholders. Specifically, patients and providers must have meaningful communication in order to determine the best treatment protocol for patient needs. Patients experiencing pain may not always benefit from an opioid-based treatment and instead should be directed to non-opioid interventions.” Click here to read the article.
6. The PCORI Blog: PCORI-Funded Projects Aim to Use Telehealth to Address Disparities
Penny Mohr, Dionna Attinson and Anum Lakhia, discuss recent PCORI-funded research that look into how telehealth can reduce health disparities. “...Research has shown that telehealth can provide care to technologically literate communities with good access to the internet, but many groups at risk for health disparities haven't been able to receive care using telehealth. For instance, roughly one-third percent of rural Americans lack access to high-speed internet, the Pew Research Center reports. PCORI-funded studies are examining whether there are methods of delivering telehealth to rural populations that can alleviate healthcare disparities.” Click hereto read the blog.
7. 2018 PCORI Annual Meeting
The 2018 PCORI Annual Meeting will take place on Wednesday, October 31, 2018 to Friday, November 2, 2018 in Washington, DC. “As part of this year's theme, ‘From Evidence to Impact: Putting What Works into Action,’ attendees will hear about results from PCORI’s comparative clinical effectiveness (CER) studies, efforts to promote essential findings, and those findings’ impacts. We will also discuss important trends in patient-centered outcomes research and connect with colleagues to share ideas for future research opportunities that will help patients and those who care for them make better-informed healthcare decisions. We are pleased to host two keynote speakers, Amy Berman, RN, Senior Program Officer, John A. Hartford Foundation, and Mark Smith, MD, founding president, California Health Care Foundation.” Click here for details.
8. PCORI Peer Review Opportunity
PCORI is seeking patients and stakeholders to review for upcoming PCORI-funded research studies that have reached completion. Of particular need are reviewers who have had, or have considered, bariatric surgery, as well as those who identify as African American and/or Latino who are living with asthma or serve as a caretaker for an older adult with asthma are of a particular need. The goal of peer review is to ensure that the primary research studies funded by the Patient Centered Outcomes Research Institute (PCORI) are held to the highest standards of scientific integrity, methodological rigor, and usefulness to patients, caregivers, clinicians, and other healthcare stakeholders. If you’re interested or know someone who is interested in participating in this capacity, please contact Kira Lesley with Editorial Office for PCORI Peer Review at firstname.lastname@example.org. Click here for additional details. Click here to apply for a scholarship to attend.
9. Upcoming Events and Webinars
Putting Patients First in Drug Development: A Dialogue on FDA's Guidance
August 10, 2018
Click here for details.
PCORI Type 2 Diabetes Mellitus Expert Meeting
August 27, 2018
Click here for details.
eyeforpharma Value Summit 2018
November 7-8, 2018
Click here for details.
Advisory Panel on Clinical Effectiveness and Decision Science Fall 2018 Meeting
November 30, 2018
Click here for details.
2019 NEC Symposium
June 2 - 5, 2019,
Click here for details.
10. Medical Journal Articles
Inverting the Patient Involvement Paradigm: Defining Patient Led Research, click here to view.
Stakeholder-Driven, Consensus Development Methods to Design an Ethical Framework and Guidelines for Engaged Research, clickhere to view.
The Effect of Medical Technology Innovations on Patient Outcomes, 1990-2015: Results of a Physician Survey, click here to view.
The Impact of Individual Patient Data in a Network MetaAnalysis: An Investigation into Parameter Estimation and Model Selection, click here to view.
Patient Similarity for Precision Medicine: A Systematic Review, click here to view.
Multi-Stakeholder Engagement in Health Services Research, click here to view.
Care Transitions From Patient and Caregiver Perspectives, click here to view.
Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind? Click here to view.
A Framework for Identifying Treatment-Covariate Interactions in Individual Participant Data Network Meta-Analysis, click here to view.
Nursing Research, CER, PICO and PCORI, click here to view.
Comment & Response: Measures of the Burden of Medical Expenses, click here to view.
11. AHRQ Effective Program Updates
Randomized Trial of a Patient-Centered Decision Aid for Promoting Informed Decisions about Lung Cancer Screening: Implementation of a PCORI Study Protocol and Lessons Learned, click here to view.
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Registries for Evaluating Patient Outcomes: A User’s Guide Call for Case Examples, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
Mobile Health Applications for Self-Management of Diabetes, click here to view.
Role of Immunotherapy in the Treatment of Asthma, click here to view.
Library of Common Data Definitions: Atrial Fibrillation, click here to view.
Library of Common Data Definitions: Asthma, click here to view.
Patient or Participant Generated Registries, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors, click here to view.
Prioritization and Selection of Harms for Inclusion in Systematic Reviews, click here to view.