1. PIPC Welcomes Dr. Alicia Fernandez to PCORI Board of Governors, click here to view the statement.
2. PCORI Announces the Patient and Family Engagement Rubric, click here to view the summary.
3. PCORI Offers $206M in Research Support through Latest Funding Announcements; Includes $15M to Study Avoidable Hospital Readmissions, click here and here to view the press releases.
4. PCORI Director Selby: Focusing on High-Impact Comparative Studies: Cardiovascular Disease in the Spotlight, click here to view the op-ed.
5. PCORI Blog: Advisory Panels: An Exciting Start to 2014, click here to view the blog post.
6. Pink Sheet: To Get the Most Out Of Health CER, Hire a Mathematician, Conferees Say, click here for the article (subscription required).
7. Behavioral Healthcare: ACA-funded "Comparative Effectiveness" Research Group Invites Behavioral Health Grant Applications, click here to read the article.
PIPC welcomes Alicia Fernandez, MD, as the newest member of the PCORI Board of Governors. PIPC Chairman Tony Coelho stated, “I want to congratulate Dr. Fernandez on her appointment to the PCORI Board of Governors. I look forward to learning more about her work to engage patients in research, and particularly her insight on how to make research relevant to subpopulations that often receive disparate care in our healthcare system. It is important that the PCORI Board of Governors represent diverse stakeholder views, as was intended by Congress. PIPC’s members look forward to working with Dr. Fernandez to advance PCORI’s work in a manner that engages patients and clinicians so that research findings are useful at the point of healthcare decision-making.” Click here to view the statement.
According to a press release from PCORI, “Fernandez, a professor of clinical medicine at the University of California, San Francisco, and attending physician at San Francisco General Hospital, was named by the U.S. Comptroller General to fill one of the seven Board slots representing healthcare providers. In addition to maintaining an active clinical practice, Fernandez conducts research on immigrant and Latino health with an emphasis on chronic disease, particularly diabetes. She also studies the role of language and cultural barriers in health disparities. Fernandez has served as an adviser on disparities projects for many organizations, including the Robert Wood Johnson Foundation, National Quality Forum, American Medical Association, and American Board of Internal Medicine. She contributed her expert insights on Latinas’ unique health needs and their perspectives on engaging in research at PCORI’s Latina Roundtable held in April 2013.” Click here to view the press release.
2. PCORI Announces the Patient and Family Engagement Rubric
Last week, PCORI announced the release of the Patient and Family Engagement Rubric. The rubric was created by identifying promising practices of engagement within PCORI’s first three funding cycles. PCORI noted, “while we are providing the rubric as a tool for applicants, we do not want to stifle innovation and encourage applicants to continue to bring their most creative engagement ideas forward. The rubric simply provides a variety of options for incorporating engagement, where relevant, into the research process, and is not intended to be prescriptive or comprehensive. The rubric will be used as an evaluation tool during the merit review process and as we observe and collect information about the engagement activities in our funded projects”. Click here to view the summary.
3. PCORI Offers $206M in Research Support through Latest Funding Announcements; Includes $15M to Study Avoidable Hospital Readmissions
Recently, the Patient-Centered Outcomes Research Institute (PCORI) issued eight new PCORI Funding Announcements (PFAs) offering up to $206 million in support for a range of patient-centered comparative effectiveness research (CER) projects. The funding opportunities include the latest two to focus on specific high-impact topics and PCORI’s first call for proposals through its new Pragmatic Clinical Studies Initiative. This initiative will fund large, patient-centered pragmatic clinical studies, or large simple trials, that compare two or more interventions in real-world settings in an effort to more rapidly and efficiently produce evidence that is generally applicable to a wide spectrum of patients’ needs and clinical care settings. Click here to view the press release.
PCORI will also provide up to $15 million to support a three-year, comprehensive study of the effectiveness of transitional care services. PCORI states that it is specifically interested in understanding which service clusters are most effective for different at-risk subpopulations, such as people with limited caregiver support or limited health coverage, and in different healthcare contexts, such as integrated delivery systems and medical homes. Click here to view the press release.
4. PCORI Director Selby: Focusing on High-Impact Comparative Studies: Cardiovascular Disease in the Spotlight
PCORI’s Executive Director Joe Selby recently wrote on The Healthcare Blog, “even with broad awareness of heart disease, expansive research and a number of clinical and public health efforts to prevent, diagnose and treat cardiovascular conditions, it remains the leading cause of death in the nation. As a research institute dedicated to helping patients and those who care for them make better informed decisions that lead to better outcomes, the Patient-Centered Outcomes Research Institute (PCORI) is acutely interested in producing new information that supports more effective cardiovascular care. The directive in our establishing legislation to consider “disease incidence, prevalence, and burden” when prioritizing research funding is a clear call for studies of cardiovascular conditions. I’m proud to say that PCORI has answered that call. Cardiovascular disease, including heart disease and stroke, is the most commonly studied topic in our research portfolio. Click here to view the op-ed.
5. PCORI Blog: Advisory Panels: An Exciting Start to 2014
In a blog entry last week, Dr. Bryan Luce, PCORI’s Chief Science Officer, and Emma Djabali, a Project Assistant, announced “we just closed out our call for applications for the two newest PCORI Advisory Panels and for open slots on two of our four current panels. And we couldn’t have asked for a better gauge of the healthcare community’s interest in helping to guide our work. As we’ve often noted, one of PCORI’s core principles is that our work is guided by patients, caregivers, and the broader healthcare community. That commitment is exemplified in our advisory panels, which include patients, caregivers, clinicians, and other healthcare decision makers. Their expertise and experience are invaluable to us in determining which comparative effectiveness research questions are most important to study.” Click here to view the blog post.
6. Pink Sheet: To Get the Most Out Of Health CER, Hire a Mathematician, Conferees Say
Last week, Gregory Twachtman of the Pink Sheet reported, “...[PCORI Deputy Executive Director Anne Beal] said, ‘I think that for those of us who are in the health services world, we were grounded in theories around epidemiology that were very, very fundamental and basic. But the world that mathematicians live in, to be able to harness this type of data patients are generating and that we are generating on behalf of patients, is a new world.’” Click here for the article (subscription required).
7. Behavioral Healthcare: ACA-Funded "Comparative Effectiveness" Research Group Invites Behavioral Health Grant Applications
Alison Knopf, contributing writer for Behavioral Healthcare, reported on PCORI’s new grant cycle. Her article explained comparative effectiveness research (CER) in an effort to amplify PCORI’s message. “...For an example of what patient-centered comparative effectiveness research looks like, [Christine Stencel, associate director of media relations, PCORI] pointed to a PCORI-funded study that compared the impact of peer-group support to clinician-led support in improving stress levels and other quality-of-life outcomes among Latina breast cancer survivors, their spouses and caregivers. The study is looking at whether culturally relevant support groups make a difference in the outcome. Patient contribution to study design is essential.” Click here to read the article.