1. PIPC Chairman Praises Comments by PCORI’s Executive Director at CAP Forum, click here to view the press release.
2. PIPC Member Spotlight: American Association of People with Disabilities, click here to view the blog post.
3. Flow Chart: Mapping the Process for Prioritizing Research, click here to view the flow chart.
4. PCORI Blog: PCORI's Commitment to Broadening the Research Community, click here to view the blog post
PIPC Chairman Tony Coelho praised comments made by Dr. Joe Selby, Executive Director of the Patient-Centered Outcomes Research Institute, at a forum hosted by the Center for American Progress. Chairman Coelho said, “I am very pleased to hear PCORI’s Executive Director, Dr. Joe Selby, explicitly recognize the value of research that engages patients, clinicians and stakeholders to improve health care decision making. Dr. Selby today underscored the importance and value of conducting patient-centered comparative effectiveness research that addresses a wide range of targeted research priorities focused on improving care delivered to each patient. This includes not only specific tests and treatments, but questions about care management, organization and delivery. […] I applaud Dr. Selby for his continued effort to follow the broad legislative mandate of PCORI to conduct comparative clinical effectiveness research in a manner that is patient-centered and ultimately useful at the point of health care decision making.” Click here to view PIPC's press release. Click here to view PCORI's press release.
The Center for American Progress (CAP) also released a report including a series of recommendations for PCORI. The report urges PCORI to rapidly scale up its investment in “high-impact” CER to at least 80 percent of its research funding by fiscal year 2016. CAP suggests that this investment should focus on studies that: 1) address gaps in evidence on treatments for common and high-cost conditions, 2) can produce actionable results in one to three years, and 3) synthesize existing CER studies.
Dr. Joe Selby, Executive Director of PCORI, responded that the Institute has pursued a keen focus on its statutory mission – and while the conduct of research is an important part of that mission, so is the dissemination of research findings. While the CAP report was critical of PCORI for investing 40 percent (according to their research findings) in high-impact CER, Dr. Selby said that the Government Accountability Office (GAO) will judge the Institute for their commitment to their mission of patient-centeredness. Dr. Selby presented data suggesting that 62 percent of primary research dollars committed or awarded through 2013 were for CER. He also said that PCORI has adopted the mantra of “research done differently,” saying that engaging patients from the beginning of the research stage makes for better research. Moreover, Dr. Selby emphasized that PCORI-funded projects consider a myriad of outcome measures beyond survival and re-hospitalization, such as functional status, symptoms, and patient preferences. Discussing the potential effect of CER on patient choice, he said that the principles of CER should enhance and improve patient choice as they make the treatment options for patients more clear.
2. PIPC Member Spotlight: American Association of People with Disabilities
In the PIPC Member Spotlight, Mark Perriello, President and CEO of the American Association of People with Disabilities (AAPD) writes, “The AAPD supports the Patient-Centered Outcomes Research Institute’s (PCORI) patient-centered approach to comparative effectiveness research (CER) and the important provisions written into the law which will ensure a continued focus on patient and provider needs and better healthcare quality. As stated so eloquently by PIPC’s Chairman Tony Coelho, we also recognize that access to treatment options is imperative to fulfill the promise of patient-centered CER to improve the quality of health care.”
Mr. Perriello continued, “We believe patient-centered research has the potential to ensure that people with disabilities and their doctors will be able to receive the best care and treatment information possible, while guaranteeing that final healthcare decisions continue to rest between the patient and doctor. As a PIPC Steering Committee member, we remain engaged in PCORI’s work to carry out the vision shared by its stakeholders and Congress, and in the broader landscape of patient-centered research and its implementation into practice.” Click here to view the blog post.
3. Flow Chart: Mapping the Process for Prioritizing Research
On Tuesday, PIPC released a new flow chart – which supplements a recent White Paper, "Road Map for Prioritizing Research” – that graphically represents PIPC's recommendations for determining comparative effectiveness research (CER) priorities. The question of how best to define research priorities, and whether to do so by proactively identifying specific topics or issuing broader solicitations for investigator-initiated prioritization, has been an area of ongoing debate in CER. Accordingly, the PIPC has long advocated for PCORI to identify a clear process for defining specific research priorities, and applauded PCORI’s recent announcements to (a) establish advisory panels to help set research priorities and (b) make more of its research funding decisions based on specific priority topics. This flow chart is intended to identify key elements and serve as a high-level “road map” for PCORI’s consideration in setting specific priorities for research. Click here to view the flow chart.
4. PCORI Blog: PCORI's Commitment to Broadening the Research Community
Dr. Anne Beal, PCORI’s Deputy Executive Director for Engagement, Suzanne Schrandt, PCORI’s Deputy Director of Patient Engagement, and Courtney Clyatt, a Senior Program Associate in PCORI’s Engagement Program, recently commented on The PCORI Blog, “PCORI developed our Pipeline to Proposal Initiative, and the broader Eugene Washington PCORI Engagement Awards, over months of careful consideration. We see these awards as an investment in an important segment of the healthcare community, that is, the end users of research—patients and the people who care for them. While recognizing that researchers are an essential and valuable source of new questions and ideas for improving patient care and outcomes, PCORI and similar organizations also know that patients, front-line clinicians, and others have important and relevant research ideas to share. We’re confident that, with a little support, they can make a difference. We look forward to helping them do so.” Click here to view the blog post.