Partnership to Improve Patient Care

  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010
  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010

The PIPC Blog

PIPC Weekly Update - July 6, 2015

7/6/2016

 
​In This Week’s Issue:
1. PIPC Provides Recommendations to Senate Finance Committee on Development of Chronic Care Legislation, click here to view the letter.
2. Forbes: We Must Return To Patient-Centered Care, Compensate Physicians For End Of Life Conversations, click here to view the article.
3. Wall Street Journal: Health-Data Donors Aim to Aid Science, click here to view the article.  
4. KevinMD Blog: Patient Engagement Is in Search of a Definition, click here to view the blog post.
5. PCORI Blog: A Textbook Example of Patient-Driven Research, click here to view the blog post.
6. University of Maryland: CER and PCOR Summer Institute 2015, see details below
1. PIPC Provides Recommendations to Senate Finance Committee on Development of Chronic Care Legislation
​

Recently, the Partnership to Improve Patient Care (PIPC) sent a letter to Senate Finance Committee Chairman Orrin Hatch (R-UT) and Ranking Member Ron Wyden (D-OR) to comment on the Finance Committee's work to address chronic diseases. PIPC outlined a series of observations and recommendations focused on improving patient outcomes and empowering Medicare patients to play a greater role in managing their health and meaningfully engaging with health care providers. Specific policy recommendations included in the letter are the establishment of formalized mechanisms to provide a voice for patients in the creation and testing of alternative payment models (APMs); the expansion of available quality measures and incentivizing their production in APMs; and the fostering of informed choices from the range of clinical care options. In addition to their specific policy proposals, PIPC also urges the Committee to convene patient organizations to contribute to chronic care legislation, noting that patients are the ultimate beneficiary of this vital work. Click here to view the letter.

2. Forbes: We Must Return To Patient-Centered Care, Compensate Physicians For End Of Life Conversations

A recent commentary in Forbes highlights the importance of patient-centered care. Former Senator, Dr. Bill Frist writes that “as a heart surgeon, I have seen countless instances where patients near the end of life undergo aggressive medical interventions in order to prolong the inevitable. Yet most people, when asked, say they would want to spend their final days at home, without pain, comfortable with family and friends, and not hooked up to multiple machines in the hospital. We simply must do better and help ensure that a patient receives the health care that they want near the end of their life… I’m encouraged to see that this important issue has reached the halls of Congress, where legislators in both the House and Senate are pursuing bipartisan ways to improve the care patients receive near the end of life. One policy option being considered is reimbursing providers for discussing treatment options and care preferences with patients and their families. I wholeheartedly support this idea, and there is an immediate opportunity to make it happen.” Click here to view the article.

3. Wall Street Journal: Health-Data Donors Aim to Aid Science

Melinda Beck reported last week in The Wall Street Journal, “One of the newest ways for people to use their medical information is offering it to researchers studying health problems that affect them or their loved ones. The concept started with rare diseases and is spreading fast to more common conditions like epilepsy and depression… To date, [PCORI] has funded 18 ‘patient-powered research networks’— drawing on registries where patients with specific conditions can sign up to participate. Patients can opt to share such information their diagnoses, symptoms, treatments, genetic tests and quality-of-life measures...Having access to such detailed information allows researchers to design different kinds of studies than they are able to conduct using anonymous data collected for other purposes, as many rely on now. The registries also give researchers an easy way to find patients willing to participate in clinical trials.” Click here to view the article.  

4. KevinMD Blog: Patient Engagement Is in Search of a Definition

In a recent blog post on KevinMD.com, Richard Upton comments, “The current lack of a unified definition for patient engagement has already created significant confusion and dysfunctional initiatives due to the fact that a myriad of definitions referenced place a disproportionate degree of responsibility on the patient, while being tactical in their execution.  This might help set a lucrative target for a commercially based agenda, but it does little to add clarity and direction for the strategic goals of patient engagement's intended purpose. The health care industry already has an overabundance of examples where the pursuit of market share has threatened patient care.” Click here to view the blog post. 

5. PCORI Blog: A Textbook Example of Patient-Driven Research

As PCORI’s Executive Director Dr. Joe Selby recently commented on The PCORI Blog, “[The Immune Deficiency Foundation] has developed and makes available an electronic personal health record (ePHR) that is currently used by more than 1,600 patients... When an individual signs up for the ePHR, he or she also is invited to join PI Connect, one of the 18 Patient-Powered Research Networks (PPRNs) funded by PCORI as part of PCORnet, the National Patient-Centered Clinical Research Network. About two-thirds of the ePHR users accept this invitation, which lets them share their electronic data with researchers and other patients for the purposes of participating in research that they themselves help to plan and conduct.” Click here to view the blog post. 

6. University of Maryland: CER and PCOR Summer Institute 2015

The first annual CER-PCOR Summer Institute brings a wide range of stakeholders together to broaden their knowledge on the burgeoning field of CER-PCOR. The five-day Institute is designed for researchers, clinicians, policymakers, patient advocacy groups, faculty, and students. Participants will gain the fundamentals needed to incorporate CER-PCOR into their every-day work environment. Engaging and Informative sessions will span a broad range of topics:
  • Day 1:  Fundamentals of CER-PCOR
  • Day 2:  Patient & Stakeholder Engagement
  • Day 3:  CER-PCOR Research Methods
  • Day 4:  Health Outcome Measurement
  • Day 5:  Translation, Dissemination, and Implementation

For questions or registration, email cer-pcor@rx.umaryland.edu.

Comments are closed.

    Topics

    All
    Alternative Payment Models
    Chairman's Corner
    Patient Centered Research
    PIPC In The News
    PIPC Patient Blog
    PIPC Weekly Update
    Press Releases
    The Data Mine
    Value Frameworks

    Archives

    February 2023
    January 2023
    December 2022
    November 2022
    October 2022
    September 2022
    August 2022
    July 2022
    June 2022
    May 2022
    April 2022
    March 2022
    February 2022
    January 2022
    December 2021
    November 2021
    October 2021
    September 2021
    August 2021
    July 2021
    June 2021
    May 2021
    April 2021
    March 2021
    February 2021
    January 2021
    December 2020
    November 2020
    October 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    April 2020
    March 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    April 2013
    March 2013
    December 2012
    November 2012
    February 2012
    September 2011
    August 2011
    July 2011
    May 2011
    March 2011
    November 2010
    October 2010
    September 2010
    August 2010
    April 2010
    March 2010
    February 2010
    December 2009
    September 2009
    July 2009
    June 2009
    May 2009
    February 2009
    January 2009
    December 2008

About PIPC
The Issues
Resources
Blog
In the News
Press Releases
Contact Us
100 M Street, SE – Ste. 750
Washington, DC 20003