In This Week’s Issue:
1. Chairman’s Corner: Examining Episode Payment Models, click here to read the blog.
2. PIPC Patient Blog: United Cerebral Palsy Discusses the Benefits of Patient-Centered Outcomes Research, click here to read the blog.
3. CMS Seeking Nominations for Technical Expert Panel (TEP), click here to apply.
4. CMS/CMMI: Oncology Care Model Stakeholder Feedback Opportunity, click here for details.
5. Fierce Health: Insurers Use Data to Drive Value-Based Contracts, Identify Gaps in Care, click here to read the article.
6. Pharmaceutical Executive -- Patient-Centric Care: It's Not Just About the Medication Anymore, click here to read the article.
7. ASCO Post: Can You Hear Me Now? Listening to the Cancer Patient, click here to read the article.
8. PCORI Blog -- Progress and Promise: Celebrating PCORI's PCORnet Initiative, click here to read the blog.
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.
1. Chairman’s Corner: Examining Episode Payment Models, click here to read the blog.
2. PIPC Patient Blog: United Cerebral Palsy Discusses the Benefits of Patient-Centered Outcomes Research, click here to read the blog.
3. CMS Seeking Nominations for Technical Expert Panel (TEP), click here to apply.
4. CMS/CMMI: Oncology Care Model Stakeholder Feedback Opportunity, click here for details.
5. Fierce Health: Insurers Use Data to Drive Value-Based Contracts, Identify Gaps in Care, click here to read the article.
6. Pharmaceutical Executive -- Patient-Centric Care: It's Not Just About the Medication Anymore, click here to read the article.
7. ASCO Post: Can You Hear Me Now? Listening to the Cancer Patient, click here to read the article.
8. PCORI Blog -- Progress and Promise: Celebrating PCORI's PCORnet Initiative, click here to read the blog.
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.
1. Chairman’s Corner: Examining Episode Payment Models
PIPC Chairman Toney Coelho’s latest Chairman’s Corner blog outlines the most recent comments submitted by PIPC to CMMI regarding recently proposed episode payment models. “I applauded the agency for making a deliberate and conscious effort to solicit authentic patient feedback about their proposed new payment models. Although I’ve been critical in the past, I told them that I appreciated their seizing of this opportunity to forge a new path forward on engaging stakeholders, particularly patients, in the development, implementation and evaluation of alternative payment models.”
“Engaging the patient community is a complex task that requires more than the notice and comment processes traditionally used by regulatory agencies. However, a more structured process for patient engagement that leverages CMMI’s own best practices, along with creative methods employed by organizations such as the Patient-Centered Outcomes Research Institute (PCORI) and the Food and Drug Administration’s Patient Focused Drug Development Initiative, will ensure that the patient perspective is well represented in CMMI’s model tests and improve their likelihood of success.” Click here to read the blog.
2. PIPC Patient Blog: United Cerebral Palsy Discusses the Benefits of Patient-Centered Outcomes Research
Checkout PIPC’s latest patient blog featuring United Cerebral Palsy touting the benefits of patient-centered outcomes research. “Whatever your association with the word, research means many different things to many different people. It can sometimes be difficult to encourage people to engage as active participants in healthcare research, particularly if their associations with the concepts are less than positive. For many people who have a disability, the idea of research has a complicated history that may do little to spark the desire to become involved with the research process. Traditionally, research involving people with disabilities revolved around controversial subjects such as finding a cure, or treatments that solely focused on an individual’s primary disability or condition with little regard for the person as a whole. It comes as no surprise then, that engaging people with disabilities in health research can be a difficult task.” Click here to read the blog.
3. CMS Seeking Nominations for Technical Expert Panel (TEP)
CMS is seeking nominations for a TEP entitled “Quality Measure Development: Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures.” From CMS: “As part of continued efforts to assist CMS with the process of improving measure development efforts, Battelle is forming a Technical Expert Panel (TEP) titled “Quality Measure Development: Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures.” TEP representatives will include CMS MIDS Measure Developer contractors, non-CMS measure developers, EHR vendors, hospital/clinician system representatives, and patient advocacy group representatives. TEP members will provide input during one two-hour TEP meeting via webinar and four full-day in-person meetings in Baltimore, Maryland. Meetings will take place between July 2017 and late summer 2018.” Click here to apply.
4. CMS/CMMI: Oncology Care Model Stakeholder Feedback Opportunity
The Oncology Care Model (OCM) team invites you to attend a public forum open to all interested OCM stakeholders. The Oncology Care Model Stakeholder Public Forum will take place on Thursday, May 11, 2017 from 1:00-4:00 pm ET. The goal of this forum is to hear stakeholder feedback about OCM. The meeting will include a brief introduction from the OCM team followed by discussion. Click here for details.
5. Fierce Health: Insurers Use Data to Drive Value-Based Contracts, Identify Gaps in Care
Evan Sweeney reports in a Fierce Health article on the new approach health plans are taking that utilizes data to drive value-based contracts. “...A new report released by the National Pharmaceutical Council and Avalere identified seven ways health insurers are using patient data and analytics...In some cases, patient data is furthering value-based payments among private insurers and altering physician networks to include top-performing physicians. Value-based contracts often include specific metrics that are tailored to physician performance. These contracts also spill over into the pharmaceutical industry where payers are more willing to cover high-priced drugs if there is evidence of better outcomes.” Click here to read the article.
6. Pharmaceutical Executive -- Patient-Centric Care: It's Not Just About the Medication Anymore
Michelle Maskaly reports in Pharmaceutical Executive about the steps pharmaceutical companies can take to truly implement the philosophy of putting the patient first. “...At Merck, the company has created new experiences to get the patient voice into the mix. The first, chief rounds: Educational seminars with global leaders on patient-related topics of interest. Second, patient input forums: Live interviews with physicians and their patients to expose employees to a ‘real-word’ patient journey for a given disease or condition. Third, patient dialogues: Facilitated input sessions, either live or e-channel, with patients and caregivers to obtain their insights on specific topics to inform strategy.” Click here to read the article.
7. ASCO Post: Can You Hear Me Now? Listening to the Cancer Patient
Ronald Piana discusses the need to listen to patients’ own quality-of-care assessments in an ASCO Post article. “At this year's ASCO Quality Care Symposium, Neeraj K. Arora, PhD, Associate Director at the Patient-Centered Outcomes Research Institute, opened his presentation by stressing that integrating the patient's voice and experience into the clinical setting produces better health outcomes...[T]here is a crucial need for postdiagnosis information that is patient-friendly and leads to proper decision-making.” Click here to read the article.
8. PCORI Blog -- Progress and Promise: Celebrating PCORI's PCORnet Initiative
In a new PCORI Blog, Joe V. Selby, MD, MPH, comments on the successes of PCORI’s PCORnet Initiative. “...The People-Centered Research Foundation (PCRF), which evolved from a work group of researchers within PCORnet, was formed in March as a private nonprofit that builds on the successes of PCORnet and furthers its mission as a sustainable platform for efficient, innovative research...PCRF will work in parallel and in collaboration with PCORnet and its participating networks to make PCORnet self-sustaining, even as the networks continue to use their current PCORI funding to build additional research infrastructure.” Click here to read the blog.
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply.
10. Upcoming Events and Webinars
Personalized Medicine Coalition: 13th Annual State of Personalized Medicine Luncheon
May 2, 2017
Click here for details.
PCORI Peer Review Webinar for Awardees
May 4, 2017
Click here for details.
PCORI Board of Governors Meeting
May 8, 2017
Click here for details.
Webinar on Adaptation of HTA Reports
May 9, 2017
Click here for details.
CMS: Oncology Care Model Stakeholder Feedback Opportunity
May 11, 2017 Public Forum
Click here for details.
PCORI: Advisory Panel on Addressing Disparities Spring 2017 Meeting
May 17, 2017
Click here for details.
Integrating PROs in EHRs: Presentation of a Users' Guide and Discussion of Standardization
May 25-26, 2017
Click here for details.
ICER: Orphan Drug Assessment and Pricing Summit
May 31, 2017
Click here for details.
Webinar: Observational Research: Gathering Evidence in the 21st Century
June 1, 2017
Click here for details.
11. Medical Journal Articles
Uninterrupted Dabigatran versus Warfarin for Ablation in Atrial Fibrillation, click here to view
Improving Recruitment and Retention Rates in a Randomized Controlled Trial, click here to view
Access to Non-Statin Lipid Lowering Therapies in Patients at High-Risk of Atherosclerotic Cardiovascular Disease, click here to view
Reevaluating Eligibility Criteria — Balancing Patient Protection and Participation in Oncology Trials, click here to view
Comparative Effectiveness in Urology: A State of the Art Review Utilizing a Systematic Approach, click here to view
The Relationship Between Adherence and Total Spending Among Medicare Beneficiaries With Type 2 Diabetes, click here to view
Policies for Use of Real-World Data in Health Technology Assessment (HTA): A Comparative Study of Six HTA Agencies, click here to view
Clinical Patient Registry Recruitment and Retention: A Survey of Patients in Two Chronic Disease Registries, click here to view
Healthcare Costs and Medication Adherence Among Patients with Fibromyalgia: Combination Medication vs. Duloxetine, Milnacipran, Venlafaxine, and Pregabalin Initiators, click here to view.
Partnering with patients: how did you involve patients in your research? Click here to view.
Beyond the Label: Steering the Focus Toward Safe and Effective Prescribing. Click here to view.
EBM vs. EBM: combining evidence-based and experienced-based medicine in resuscitation research. Click here to view
Comparative Effectiveness of Cefazolin versus Nafcillin or Oxacillin for Treatment of Methicillin-Susceptible Staphylococcus aureus Infections Complicated by Bacteremia: A Nationwide Cohort Study, click here to view.
Glucagon-like peptide-1 receptor agonists: a systematic review of comparative effectiveness research, click here to view.
Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research, click here to view.
Reducing Barriers to Medication Access and Adherence for ACA and Medicaid Participants: A Peer-to-Peer, Community-Based Approach, click here to view.
Impact of a Value-Based Formulary in Three Chronic Disease Cohorts, click here to view.
Association Between Choice of Radical Prostatectomy, External Beam Radiotherapy, Brachytherapy, or Active Surveillance and Patient-Reported Quality of Life Among Men With Localized Prostate Cancer, click here to view.
12. AHRQ Effective Program Updates
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
The Role of Immunotherapy in the Treatment of Asthma, click here to view
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, click here to view.
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.
Treatments for Adults with Schizophrenia: A Systematic Review, click here to view.
Anxiety in Children, click here to view.
Patient Safety in Ambulatory Settings -- Disposition of Comments Report, click here to view.
PIPC Chairman Toney Coelho’s latest Chairman’s Corner blog outlines the most recent comments submitted by PIPC to CMMI regarding recently proposed episode payment models. “I applauded the agency for making a deliberate and conscious effort to solicit authentic patient feedback about their proposed new payment models. Although I’ve been critical in the past, I told them that I appreciated their seizing of this opportunity to forge a new path forward on engaging stakeholders, particularly patients, in the development, implementation and evaluation of alternative payment models.”
“Engaging the patient community is a complex task that requires more than the notice and comment processes traditionally used by regulatory agencies. However, a more structured process for patient engagement that leverages CMMI’s own best practices, along with creative methods employed by organizations such as the Patient-Centered Outcomes Research Institute (PCORI) and the Food and Drug Administration’s Patient Focused Drug Development Initiative, will ensure that the patient perspective is well represented in CMMI’s model tests and improve their likelihood of success.” Click here to read the blog.
2. PIPC Patient Blog: United Cerebral Palsy Discusses the Benefits of Patient-Centered Outcomes Research
Checkout PIPC’s latest patient blog featuring United Cerebral Palsy touting the benefits of patient-centered outcomes research. “Whatever your association with the word, research means many different things to many different people. It can sometimes be difficult to encourage people to engage as active participants in healthcare research, particularly if their associations with the concepts are less than positive. For many people who have a disability, the idea of research has a complicated history that may do little to spark the desire to become involved with the research process. Traditionally, research involving people with disabilities revolved around controversial subjects such as finding a cure, or treatments that solely focused on an individual’s primary disability or condition with little regard for the person as a whole. It comes as no surprise then, that engaging people with disabilities in health research can be a difficult task.” Click here to read the blog.
3. CMS Seeking Nominations for Technical Expert Panel (TEP)
CMS is seeking nominations for a TEP entitled “Quality Measure Development: Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures.” From CMS: “As part of continued efforts to assist CMS with the process of improving measure development efforts, Battelle is forming a Technical Expert Panel (TEP) titled “Quality Measure Development: Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures.” TEP representatives will include CMS MIDS Measure Developer contractors, non-CMS measure developers, EHR vendors, hospital/clinician system representatives, and patient advocacy group representatives. TEP members will provide input during one two-hour TEP meeting via webinar and four full-day in-person meetings in Baltimore, Maryland. Meetings will take place between July 2017 and late summer 2018.” Click here to apply.
4. CMS/CMMI: Oncology Care Model Stakeholder Feedback Opportunity
The Oncology Care Model (OCM) team invites you to attend a public forum open to all interested OCM stakeholders. The Oncology Care Model Stakeholder Public Forum will take place on Thursday, May 11, 2017 from 1:00-4:00 pm ET. The goal of this forum is to hear stakeholder feedback about OCM. The meeting will include a brief introduction from the OCM team followed by discussion. Click here for details.
5. Fierce Health: Insurers Use Data to Drive Value-Based Contracts, Identify Gaps in Care
Evan Sweeney reports in a Fierce Health article on the new approach health plans are taking that utilizes data to drive value-based contracts. “...A new report released by the National Pharmaceutical Council and Avalere identified seven ways health insurers are using patient data and analytics...In some cases, patient data is furthering value-based payments among private insurers and altering physician networks to include top-performing physicians. Value-based contracts often include specific metrics that are tailored to physician performance. These contracts also spill over into the pharmaceutical industry where payers are more willing to cover high-priced drugs if there is evidence of better outcomes.” Click here to read the article.
6. Pharmaceutical Executive -- Patient-Centric Care: It's Not Just About the Medication Anymore
Michelle Maskaly reports in Pharmaceutical Executive about the steps pharmaceutical companies can take to truly implement the philosophy of putting the patient first. “...At Merck, the company has created new experiences to get the patient voice into the mix. The first, chief rounds: Educational seminars with global leaders on patient-related topics of interest. Second, patient input forums: Live interviews with physicians and their patients to expose employees to a ‘real-word’ patient journey for a given disease or condition. Third, patient dialogues: Facilitated input sessions, either live or e-channel, with patients and caregivers to obtain their insights on specific topics to inform strategy.” Click here to read the article.
7. ASCO Post: Can You Hear Me Now? Listening to the Cancer Patient
Ronald Piana discusses the need to listen to patients’ own quality-of-care assessments in an ASCO Post article. “At this year's ASCO Quality Care Symposium, Neeraj K. Arora, PhD, Associate Director at the Patient-Centered Outcomes Research Institute, opened his presentation by stressing that integrating the patient's voice and experience into the clinical setting produces better health outcomes...[T]here is a crucial need for postdiagnosis information that is patient-friendly and leads to proper decision-making.” Click here to read the article.
8. PCORI Blog -- Progress and Promise: Celebrating PCORI's PCORnet Initiative
In a new PCORI Blog, Joe V. Selby, MD, MPH, comments on the successes of PCORI’s PCORnet Initiative. “...The People-Centered Research Foundation (PCRF), which evolved from a work group of researchers within PCORnet, was formed in March as a private nonprofit that builds on the successes of PCORnet and furthers its mission as a sustainable platform for efficient, innovative research...PCRF will work in parallel and in collaboration with PCORnet and its participating networks to make PCORnet self-sustaining, even as the networks continue to use their current PCORI funding to build additional research infrastructure.” Click here to read the blog.
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply.
10. Upcoming Events and Webinars
Personalized Medicine Coalition: 13th Annual State of Personalized Medicine Luncheon
May 2, 2017
Click here for details.
PCORI Peer Review Webinar for Awardees
May 4, 2017
Click here for details.
PCORI Board of Governors Meeting
May 8, 2017
Click here for details.
Webinar on Adaptation of HTA Reports
May 9, 2017
Click here for details.
CMS: Oncology Care Model Stakeholder Feedback Opportunity
May 11, 2017 Public Forum
Click here for details.
PCORI: Advisory Panel on Addressing Disparities Spring 2017 Meeting
May 17, 2017
Click here for details.
Integrating PROs in EHRs: Presentation of a Users' Guide and Discussion of Standardization
May 25-26, 2017
Click here for details.
ICER: Orphan Drug Assessment and Pricing Summit
May 31, 2017
Click here for details.
Webinar: Observational Research: Gathering Evidence in the 21st Century
June 1, 2017
Click here for details.
11. Medical Journal Articles
Uninterrupted Dabigatran versus Warfarin for Ablation in Atrial Fibrillation, click here to view
Improving Recruitment and Retention Rates in a Randomized Controlled Trial, click here to view
Access to Non-Statin Lipid Lowering Therapies in Patients at High-Risk of Atherosclerotic Cardiovascular Disease, click here to view
Reevaluating Eligibility Criteria — Balancing Patient Protection and Participation in Oncology Trials, click here to view
Comparative Effectiveness in Urology: A State of the Art Review Utilizing a Systematic Approach, click here to view
The Relationship Between Adherence and Total Spending Among Medicare Beneficiaries With Type 2 Diabetes, click here to view
Policies for Use of Real-World Data in Health Technology Assessment (HTA): A Comparative Study of Six HTA Agencies, click here to view
Clinical Patient Registry Recruitment and Retention: A Survey of Patients in Two Chronic Disease Registries, click here to view
Healthcare Costs and Medication Adherence Among Patients with Fibromyalgia: Combination Medication vs. Duloxetine, Milnacipran, Venlafaxine, and Pregabalin Initiators, click here to view.
Partnering with patients: how did you involve patients in your research? Click here to view.
Beyond the Label: Steering the Focus Toward Safe and Effective Prescribing. Click here to view.
EBM vs. EBM: combining evidence-based and experienced-based medicine in resuscitation research. Click here to view
Comparative Effectiveness of Cefazolin versus Nafcillin or Oxacillin for Treatment of Methicillin-Susceptible Staphylococcus aureus Infections Complicated by Bacteremia: A Nationwide Cohort Study, click here to view.
Glucagon-like peptide-1 receptor agonists: a systematic review of comparative effectiveness research, click here to view.
Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research, click here to view.
Reducing Barriers to Medication Access and Adherence for ACA and Medicaid Participants: A Peer-to-Peer, Community-Based Approach, click here to view.
Impact of a Value-Based Formulary in Three Chronic Disease Cohorts, click here to view.
Association Between Choice of Radical Prostatectomy, External Beam Radiotherapy, Brachytherapy, or Active Surveillance and Patient-Reported Quality of Life Among Men With Localized Prostate Cancer, click here to view.
12. AHRQ Effective Program Updates
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
The Role of Immunotherapy in the Treatment of Asthma, click here to view
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, click here to view.
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.
Treatments for Adults with Schizophrenia: A Systematic Review, click here to view.
Anxiety in Children, click here to view.
Patient Safety in Ambulatory Settings -- Disposition of Comments Report, click here to view.
