1. PIPC Executive Director Attends PCORI Patient Engagement Advisory Panel Meeting, click here to access the slides, presentations, and agenda.
2. PIPC Chairman Tony Coelho: Why Evaluating "Patient-Centeredness" Really Matters, click here to view the post.
3. PCORI Searches for Scientific Program Officers, click here to view the release.
4. Modern Healthcare: Coordinated Care Alone May Not Yield ROI, ACPE Told, click here to view the article (subscription required.)
5. The Brookings Institution: Medical Devices and Patient Safety: A Promising Path Forward, click here to view the article.
6. RWJF: How Can Health Systems Effectively Serve Minority Communities? Use Electronic Health Records to Discover How to Improve Outcomes, click here to view the blog.
7. The Health Care Blog: 10 Ways Innovation Could Help Cure the U.S. Health Spending Problem, click here to view the blog.
8. Health Data Management: Turning the Battleship Toward Engagement, click here to view the article.
Sara van Geertruyden, PIPC’s Executive Director, attended the PCORI Patient Engagement Advisory Panel (PEAP) meetings on April 28-29. During the meetings, Dr. Joe Selby highlighted that the Government Accountability Office (GAO) is beginning its work to review PCORI. The PEAP was provided an update on the Pipeline to Proposals program. PEAP member Kristen Carman provided a review of a recent convening led by the American Institutes for Research (AIR) in partnership with the Gordon and Betty Moore Foundation with a multidisciplinary group of stakeholders to develop a “Roadmap for Patient and Family Engagement.” A report from that effort will be available in the near future. The PEAP also had the opportunity to meet jointly with the PCORI Disparities Panel, and to jointly convey their views related to the Dissemination and Implementation Action Plan being developed by Mathematica for PCORI. The PEAP discussed the recommendations of the panel’s subcommittee on evaluation, and emphasized the importance of integrating those recommendations into PCORI’s development of an Evaluation Framework. Lastly, the PEAP reviewed the work of the panel’s subcommittee on patient compensation. Click here to access the slides, presentations, and agenda.
2. PIPC Chairman Tony Coelho: Why Evaluating "Patient-Centeredness" Really Matters
In a new blog from PIPC Chairman Tony Coelho, the Chairman discusses the importance of evaluating PCORI against a patient-centered framework using metrics that are most useful to patients. He suggests that to succeed in their patient-centered mission, PCORI must continue to be identified by patients, patient groups, caregivers and providers as a critical part of the healthcare system. Chairman Coelho writes, “I am proud that PIPC’s members supported the creation of an independent institute that conducts comparative clinical effectiveness research directed by patient needs, outcomes and preferences. To succeed in its patient-centered mission, I think that we all can also agree that PCORI must continue to be identified by patients, patient groups, caregivers and providers as a critical part of the healthcare system. Therefore, in order to ensure the future of this commitment to patient-centered research, PCORI would be wise to adopt a strong evaluation framework that appropriately measures the extent to which PCORI’s work is truly being led by patients.” Click here to view the post.
3. PCORI Searches for Scientific Program Officers
According to a news release last week from the Duke University School of Nursing, “The Patient-Centered Outcomes Research Institute (PCORI) is conducting a national search for scientific program officers to support the Improving Healthcare Systems (IHS) program. The mission of the IHS program is to develop, fund, and manage comparative effectiveness research studies of strategies (e.g., policies, interventions, service designs) employed by healthcare systems and organizations to improve the quality, and efficiency of care for the patients they serve.” Click here to view the release.
4. Modern Healthcare: Coordinated Care Alone May Not Yield ROI, ACPE Told
Last week in Modern Healthcare, Andis Robeznieks spoke with PCORI’s Executive Director, Dr. Joe Selby. He reported, “The key to accomplishing PCORI's mission, [Dr. Joe Selby] said, will be getting patients engaged in research that stands to benefit them...‘Patients are ready,’ he said, describing their participation in electronically facilitated data collection as the ‘secret sauce’ needed to successfully generate timely, useful research using data already collected in electronic health records. ‘Current research is too slow, too expensive, unreliable and doesn't answer the questions that matter most to patients,’ Selby said.” Click here to view the article (subscription required.)
5. The Brookings Institution: Medical Devices and Patient Safety: A Promising Path Forward
Gregory W. Daniel, Siromi Gardina and Craig Streit collaborated on an article for The Brookings Institution this week about the coordination of big data and health care research. “Clearly, the current health care information infrastructure does not yet support a robust surveillance system,” they wrote. “This limits the ability of FDA, providers, payers, and manufacturers to respond quickly and directly when safety issues arise. We also lack the ability to incorporate patient-relevant information that supports evaluation, or can compare which devices are more effective and why; in what settings; and for whom. Although the Patient-Centered Outcomes Research Institute (PCORI) is aggressively building a national network for collecting data to conduct comparative effectiveness research, there is no straightforward approach to include medical devices without an effective tracking system.” Click here to view the article.
6. RWJF: How Can Health Systems Effectively Serve Minority Communities? Use Electronic Health Records to Discover How to Improve Outcomes.
In a blog post by the Robert Wood Johnson Foundation, authors noted that EHRs, if coded in coordination with communities across the country, could improve health in minority populations. “As a first step to compare the effectiveness of [evidence-based practice (EBP)] for minority populations, practicing nurses and nurse leaders need to advocate for implementation of EBP nursing guidelines in EHRs. Additionally, EBP guidelines must be coded with national nursing data standards to compare effectiveness within and across minority communities. Nurse researchers need to conduct comparative effectiveness research to learn how to optimize EBP guidelines for minority communities through the reuse of EHR data and to derive patient-driven evidence.” Click here to view the blog.
7. The Health Care Blog: 10 Ways Innovation Could Help Cure the U.S. Health Spending Problem
Steven Garber of The Health Care Blog provided insight into how technology could improve spending on health care. “Changing payer, provider, and patient incentives could increase demand for products likely to reduce spending. A promising approach is expanding use of value-based insurance designs (VBIDs), which require patients to pay more out of pocket the less likely a service is to benefit them. A major challenge in implementing VBIDs is determining which services are likely to benefit which patients.” Click here to view the blog.
8. Health Data Management: Turning the Battleship Toward Engagement
Last week in Health Data Management, Greg Goth reported about the need for patient engagement through data. “There was, and still is, a dearth of ways for patients to conveniently get quality, unbiased information. It's out there, but there's a lack of curation, a lack of strategy, and above all, a lack of the financial resources that truly speak to a patient needing it [...] There is a glimmer of hope. The Patient-Centered Outcomes Research Institute is funding projects like an app for caregivers of stroke survivors.” Click here to view the article.