Partnership to Improve Patient Care

  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010
  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010

The PIPC Blog

PIPC Weekly Update - September, 29 2014

9/29/2014

 
In This Week’s Issue:
1. Save the Date for PIPC’s 5th Annual PIPC Forum on Building a Patient-Centered Health System:  November 19, 2014 from 12pm-2pm.
2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire, click here to view the full press release.
3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff, click here for the post and InfoGraphic. 
4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign, click here to view the article. 
5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research, click here to view the full post.
6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research, click here to view the article (subscription required). 
7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers, click here to view the full post.    
1. Save the Date for PIPC’s 5th Annual PIPC Forum on Building a Patient-Centered Health System
We anticipate a lively discussion related to the ongoing work of the Patient-Centered Outcomes Research Institute (PCORI) to develop patient-centered outcomes research and a data infrastructure, PCORnet, to support the development of the evidence base.  We also will discuss the challenges and opportunities for alternative payment models such as accountable care organizations and patient-centered medical homes to support patient-centered strategies for translating evidence to practice.  November 19, 2014 from 12pm-2pm.

​2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire

Called “central” to the building of the Patient-Centered Outcomes Research Institute, Chief Science Officer Dr. Bryan Luce announced his retirement late last week. “According to [Executive Director Joe] Selby, Luce has agreed to continue in his current position for as long as 12 months while the search for his successor is conducted. If a successor is identified before that point, he may also stay on for the remainder of this period to facilitate and support the transition in leadership. “PCORI owes a debt of gratitude to Bryan for his generous flexibility during this period,” Selby said.”  Click here to view the full press release.

3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff

Late last week, PCORI Engagement Officer Jaye Bea Smalley wrote a blog post and released an InfoGraphic for the agency, “True to the PCORI approach to research generally, PCORnet is being built in partnership with patients, caregivers, clinicians, and other healthcare stakeholders. These stakeholders participate in the governance and activities of PCORnet. There are stakeholders on the PCORnet Executive Committee, Steering Committee, and Task Forces, and there is also a PCORnet Patient Council to ensure the highest standards of patient-centeredness in the network’s policies. Click here for the post and InfoGraphic.

4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign

Patients are using the Internet, personal health records (PHRs) and mobile applications or “apps” to collect and manage personal health information. Many are seeking to share this information with their healthcare providers and clinical care teams to achieve health goals. At the same time, clinicians are beginning to recognize that information collected and shared by patients using digital technologies can lead to better outcomes and reduced costs. Patients with privacy concerns, however, will be reluctant to collect and share sensitive information through the Internet and mobile tools, because existing privacy legal protections do not cover digital technologies. Addressing patient privacy concerns could be key to enabling more widespread patient engagement in using technology to improve outcomes.  Click here to view the article.

5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research

PCORI’s senior program associate for engagement, Kristen Konopka blogged last week, “To date, nearly 200 participants, or 35 percent of those who attended our five regional workshops (see table), have responded to the six-month follow-up survey. We know these responses don’t necessarily reflect the experiences of all participants, and that those who responded may be more likely to be currently involved in supporting PCOR than those we didn’t hear from. However, the surveys still provide valuable information and inspiring stories…. More than 85 percent of the respondents indicated they had done something new to conduct, promote, or use PCOR since the workshop they attended (see graph). These actions ranged from educating colleagues and community members about PCOR and PCORI to integrating patients and other healthcare stakeholders into existing research teams to creating new groups, such as a patient engagement advisory board for a local hospital.”  Click here to view the full post.

6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research

 (9/22, Scott Steinke, The Pink Sheet Daily) reports “...The [PCORI draft proposal] addresses topics such as registering trials with public online registries, what should be included in draft final reports submitted by researchers following completion of a research project, PCORI's process for conducting peer review and translating and posting of reports for the general public. Public comments on the draft will be accepted through Nov. 7 and will be incorporated in a proposal submitted for review by the PCORI board in February or March 2015.” Click here to view the article (subscription required).

7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers

Last week, Orlando Gonzales, Engagement Chief of Staff, and Jean R. Slutsky, Chief Engagement and Dissemination Oficer, teamed up for the PCORI Blog.  “First Place ($100,000): Sean Ahrens, the founder of Crohnology.com, entered an open source, web-based, mobile-responsive application called PatientPowered.us. It is a network that connects patients with others who care about solving their health problems. Patients, health professionals, and scientists propose research ideas, in text or video, and everyone comments on those ideas, eventually building collaborations.” Click here to view the full post.

In a press release last week, PCORI announced, “‘Each of the three prize-winning apps submitted to our challenge demonstrated the power to help people share advice, stories, and ideas for studies and to promote collaboration on conditions of mutual interest. We hope their developers will continue to hone their capabilities and encourage their use,’ said Jean Slutsky, PA, MSPH, PCORI's Chief Engagement and Dissemination Officer.” Click here to view the full release. 

Comments are closed.

    Topics

    All
    Alternative Payment Models
    Chairman's Corner
    Patient Centered Research
    PIPC In The News
    PIPC Patient Blog
    PIPC Weekly Update
    Press Releases
    The Data Mine
    Value Frameworks

    Archives

    February 2023
    January 2023
    December 2022
    November 2022
    October 2022
    September 2022
    August 2022
    July 2022
    June 2022
    May 2022
    April 2022
    March 2022
    February 2022
    January 2022
    December 2021
    November 2021
    October 2021
    September 2021
    August 2021
    July 2021
    June 2021
    May 2021
    April 2021
    March 2021
    February 2021
    January 2021
    December 2020
    November 2020
    October 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    April 2020
    March 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    April 2013
    March 2013
    December 2012
    November 2012
    February 2012
    September 2011
    August 2011
    July 2011
    May 2011
    March 2011
    November 2010
    October 2010
    September 2010
    August 2010
    April 2010
    March 2010
    February 2010
    December 2009
    September 2009
    July 2009
    June 2009
    May 2009
    February 2009
    January 2009
    December 2008

About PIPC
The Issues
Resources
Blog
In the News
Press Releases
Contact Us
100 M Street, SE – Ste. 750
Washington, DC 20003