In This Week’s Issue:
1. Save the Date for PIPC’s 5th Annual PIPC Forum on Building a Patient-Centered Health System: November 19, 2014 from 12pm-2pm.
2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire, click here to view the full press release.
3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff, click here for the post and InfoGraphic.
4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign, click here to view the article.
5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research, click here to view the full post.
6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research, click here to view the article (subscription required).
7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers, click here to view the full post.
1. Save the Date for PIPC’s 5th Annual PIPC Forum on Building a Patient-Centered Health System: November 19, 2014 from 12pm-2pm.
2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire, click here to view the full press release.
3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff, click here for the post and InfoGraphic.
4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign, click here to view the article.
5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research, click here to view the full post.
6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research, click here to view the article (subscription required).
7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers, click here to view the full post.
1. Save the Date for PIPC’s 5th Annual PIPC Forum on Building a Patient-Centered Health System
We anticipate a lively discussion related to the ongoing work of the Patient-Centered Outcomes Research Institute (PCORI) to develop patient-centered outcomes research and a data infrastructure, PCORnet, to support the development of the evidence base. We also will discuss the challenges and opportunities for alternative payment models such as accountable care organizations and patient-centered medical homes to support patient-centered strategies for translating evidence to practice. November 19, 2014 from 12pm-2pm.
2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire
Called “central” to the building of the Patient-Centered Outcomes Research Institute, Chief Science Officer Dr. Bryan Luce announced his retirement late last week. “According to [Executive Director Joe] Selby, Luce has agreed to continue in his current position for as long as 12 months while the search for his successor is conducted. If a successor is identified before that point, he may also stay on for the remainder of this period to facilitate and support the transition in leadership. “PCORI owes a debt of gratitude to Bryan for his generous flexibility during this period,” Selby said.” Click here to view the full press release.
3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff
Late last week, PCORI Engagement Officer Jaye Bea Smalley wrote a blog post and released an InfoGraphic for the agency, “True to the PCORI approach to research generally, PCORnet is being built in partnership with patients, caregivers, clinicians, and other healthcare stakeholders. These stakeholders participate in the governance and activities of PCORnet. There are stakeholders on the PCORnet Executive Committee, Steering Committee, and Task Forces, and there is also a PCORnet Patient Council to ensure the highest standards of patient-centeredness in the network’s policies. Click here for the post and InfoGraphic.
4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign
Patients are using the Internet, personal health records (PHRs) and mobile applications or “apps” to collect and manage personal health information. Many are seeking to share this information with their healthcare providers and clinical care teams to achieve health goals. At the same time, clinicians are beginning to recognize that information collected and shared by patients using digital technologies can lead to better outcomes and reduced costs. Patients with privacy concerns, however, will be reluctant to collect and share sensitive information through the Internet and mobile tools, because existing privacy legal protections do not cover digital technologies. Addressing patient privacy concerns could be key to enabling more widespread patient engagement in using technology to improve outcomes. Click here to view the article.
5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research
PCORI’s senior program associate for engagement, Kristen Konopka blogged last week, “To date, nearly 200 participants, or 35 percent of those who attended our five regional workshops (see table), have responded to the six-month follow-up survey. We know these responses don’t necessarily reflect the experiences of all participants, and that those who responded may be more likely to be currently involved in supporting PCOR than those we didn’t hear from. However, the surveys still provide valuable information and inspiring stories…. More than 85 percent of the respondents indicated they had done something new to conduct, promote, or use PCOR since the workshop they attended (see graph). These actions ranged from educating colleagues and community members about PCOR and PCORI to integrating patients and other healthcare stakeholders into existing research teams to creating new groups, such as a patient engagement advisory board for a local hospital.” Click here to view the full post.
6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research
(9/22, Scott Steinke, The Pink Sheet Daily) reports “...The [PCORI draft proposal] addresses topics such as registering trials with public online registries, what should be included in draft final reports submitted by researchers following completion of a research project, PCORI's process for conducting peer review and translating and posting of reports for the general public. Public comments on the draft will be accepted through Nov. 7 and will be incorporated in a proposal submitted for review by the PCORI board in February or March 2015.” Click here to view the article (subscription required).
7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers
Last week, Orlando Gonzales, Engagement Chief of Staff, and Jean R. Slutsky, Chief Engagement and Dissemination Oficer, teamed up for the PCORI Blog. “First Place ($100,000): Sean Ahrens, the founder of Crohnology.com, entered an open source, web-based, mobile-responsive application called PatientPowered.us. It is a network that connects patients with others who care about solving their health problems. Patients, health professionals, and scientists propose research ideas, in text or video, and everyone comments on those ideas, eventually building collaborations.” Click here to view the full post.
In a press release last week, PCORI announced, “‘Each of the three prize-winning apps submitted to our challenge demonstrated the power to help people share advice, stories, and ideas for studies and to promote collaboration on conditions of mutual interest. We hope their developers will continue to hone their capabilities and encourage their use,’ said Jean Slutsky, PA, MSPH, PCORI's Chief Engagement and Dissemination Officer.” Click here to view the full release.
We anticipate a lively discussion related to the ongoing work of the Patient-Centered Outcomes Research Institute (PCORI) to develop patient-centered outcomes research and a data infrastructure, PCORnet, to support the development of the evidence base. We also will discuss the challenges and opportunities for alternative payment models such as accountable care organizations and patient-centered medical homes to support patient-centered strategies for translating evidence to practice. November 19, 2014 from 12pm-2pm.
2. Patient-Centered Outcomes Research Institute's Chief Science Officer to Retire
Called “central” to the building of the Patient-Centered Outcomes Research Institute, Chief Science Officer Dr. Bryan Luce announced his retirement late last week. “According to [Executive Director Joe] Selby, Luce has agreed to continue in his current position for as long as 12 months while the search for his successor is conducted. If a successor is identified before that point, he may also stay on for the remainder of this period to facilitate and support the transition in leadership. “PCORI owes a debt of gratitude to Bryan for his generous flexibility during this period,” Selby said.” Click here to view the full press release.
3. PCORI: In the Field with PCORnet: The Greater Plains Collaborative Kickoff
Late last week, PCORI Engagement Officer Jaye Bea Smalley wrote a blog post and released an InfoGraphic for the agency, “True to the PCORI approach to research generally, PCORnet is being built in partnership with patients, caregivers, clinicians, and other healthcare stakeholders. These stakeholders participate in the governance and activities of PCORnet. There are stakeholders on the PCORnet Executive Committee, Steering Committee, and Task Forces, and there is also a PCORnet Patient Council to ensure the highest standards of patient-centeredness in the network’s policies. Click here for the post and InfoGraphic.
4. Engaging Patients While Addressing Their Privacy Concerns: The Experience of Project HealthDesign
Patients are using the Internet, personal health records (PHRs) and mobile applications or “apps” to collect and manage personal health information. Many are seeking to share this information with their healthcare providers and clinical care teams to achieve health goals. At the same time, clinicians are beginning to recognize that information collected and shared by patients using digital technologies can lead to better outcomes and reduced costs. Patients with privacy concerns, however, will be reluctant to collect and share sensitive information through the Internet and mobile tools, because existing privacy legal protections do not cover digital technologies. Addressing patient privacy concerns could be key to enabling more widespread patient engagement in using technology to improve outcomes. Click here to view the article.
5. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research
PCORI’s senior program associate for engagement, Kristen Konopka blogged last week, “To date, nearly 200 participants, or 35 percent of those who attended our five regional workshops (see table), have responded to the six-month follow-up survey. We know these responses don’t necessarily reflect the experiences of all participants, and that those who responded may be more likely to be currently involved in supporting PCOR than those we didn’t hear from. However, the surveys still provide valuable information and inspiring stories…. More than 85 percent of the respondents indicated they had done something new to conduct, promote, or use PCOR since the workshop they attended (see graph). These actions ranged from educating colleagues and community members about PCOR and PCORI to integrating patients and other healthcare stakeholders into existing research teams to creating new groups, such as a patient engagement advisory board for a local hospital.” Click here to view the full post.
6. The Pink Sheet Daily: Reimbursement Briefs: Medicare Part B, PCORI Research
(9/22, Scott Steinke, The Pink Sheet Daily) reports “...The [PCORI draft proposal] addresses topics such as registering trials with public online registries, what should be included in draft final reports submitted by researchers following completion of a research project, PCORI's process for conducting peer review and translating and posting of reports for the general public. Public comments on the draft will be accepted through Nov. 7 and will be incorporated in a proposal submitted for review by the PCORI board in February or March 2015.” Click here to view the article (subscription required).
7. PCORI Blog: High-Tech Matchmaking: PCORI Rewards Apps that Connect Patients and Researchers
Last week, Orlando Gonzales, Engagement Chief of Staff, and Jean R. Slutsky, Chief Engagement and Dissemination Oficer, teamed up for the PCORI Blog. “First Place ($100,000): Sean Ahrens, the founder of Crohnology.com, entered an open source, web-based, mobile-responsive application called PatientPowered.us. It is a network that connects patients with others who care about solving their health problems. Patients, health professionals, and scientists propose research ideas, in text or video, and everyone comments on those ideas, eventually building collaborations.” Click here to view the full post.
In a press release last week, PCORI announced, “‘Each of the three prize-winning apps submitted to our challenge demonstrated the power to help people share advice, stories, and ideas for studies and to promote collaboration on conditions of mutual interest. We hope their developers will continue to hone their capabilities and encourage their use,’ said Jean Slutsky, PA, MSPH, PCORI's Chief Engagement and Dissemination Officer.” Click here to view the full release.
