PIPC Chairman Tony Coelho moderated a forum today on Building a Patient-Centered Health System. At the forum, Congressional staffers discussed their ongoing work in Congress and appreciation for PIPC’s work to keep patients at the center of health care. Ms. Sue Sheridan provided the audience with an update on the ongoing work of PCORI to engage patients in research. Dr. Kristin Carman presented the Patient and Family Engagement Roadmap developed by the American Institutes for Research (AIR). Ms. Sally Okun discussed the work of PatientsLikeMe to connect networks of patients and their recent work on an Open Research Exchange. And finally, Dr. Tanisha Carino discussed the ongoing work of Avalere to support alternative payment models, and particularly their work on the use of Patient-Reported Outcome Measures.
Chairman Coelho closed the event by stating, "I come away from this discussion knowing that investments in patient-centered outcomes research and dissemination, quality measures, patient-reported outcome measures, and shared decision-making tools can support an evolution to a patient-centered health system.” Please see the slides attached below.