The Patient-Centered Outcomes Research Institute (PCORI) has appointed PIPC’s Deputy Director, Andrew Rosenberg, JD, MP, to serve on the Institute’s new Advisory Panel on Communication and Dissemination Research (CDR). Rosenberg, who has over 20 years of experience as a healthcare and disability policy consultant, as well as a Capitol Hill staffer, brings a unique perspective to patient-centeredness – informed by his personal experience as a caregiver to his mother, who passed away after a protracted fight with a rare form of cancer.
The members of PCORI’s new CDR advisory panel will lend their expertise and experience to help the Institute identify and prioritize key topics in the field for future research. The program concentrates on comparing approaches for communicating and using comparative effectiveness research information, including different approaches for shared decision making between patients and their care providers.
“I look forward to promoting the effective communication and dissemination of evidence that patients can use to make individualized care decisions,” Rosenberg stated. “Based on my experiences both in the health policy realm and in my personal life, I understand that the healthcare system can unintentionally disempower—rather than empower—patients with information. That’s why it’s so important that we get this right.”
Along with Rosenberg, the CDR panel's members represent a range of healthcare stakeholders, including patients, clinicians, researchers, payers, and industry, among others. They bring a variety of relevant experience, including expertise in health literacy, numeracy, and risk communication, as well as dissemination and implementation research.
About PIPC
Since its founding, the Partnership to Improve Patient Care (PIPC) has been at the forefront of patient-centeredness in comparative effectiveness research (CER) – both its generation at the Patient-Centered Outcomes Research Institute (PCORI), and its translation into patient care. Having driven the concept of patient-centeredness in the conduct of research, PIPC looks forward to bringing the patient voice to the discussion of how to advance patient-centered principles throughout an evolving health care system.
PIPC's Steering Committee is comprised of the following organizations: The Alliance for Aging Research, the American Association of People with Disabilities, the American Association of Neurological Surgeons, the American Gastroenterological Association, the American Osteopathic Association, the Association of Clinical Research Organizations, BIO, Easter Seals, the Epilepsy Foundation, the National Association for Hispanic Health, the National Alliance on Mental Illness, PhRMA, and the American Association for Cancer Research. PIPC can also be followed on Facebook and Twitter at @pipcpatients.
“I look forward to promoting the effective communication and dissemination of evidence that patients can use to make individualized care decisions,” Rosenberg stated. “Based on my experiences both in the health policy realm and in my personal life, I understand that the healthcare system can unintentionally disempower—rather than empower—patients with information. That’s why it’s so important that we get this right.”
Along with Rosenberg, the CDR panel's members represent a range of healthcare stakeholders, including patients, clinicians, researchers, payers, and industry, among others. They bring a variety of relevant experience, including expertise in health literacy, numeracy, and risk communication, as well as dissemination and implementation research.
About PIPC
Since its founding, the Partnership to Improve Patient Care (PIPC) has been at the forefront of patient-centeredness in comparative effectiveness research (CER) – both its generation at the Patient-Centered Outcomes Research Institute (PCORI), and its translation into patient care. Having driven the concept of patient-centeredness in the conduct of research, PIPC looks forward to bringing the patient voice to the discussion of how to advance patient-centered principles throughout an evolving health care system.
PIPC's Steering Committee is comprised of the following organizations: The Alliance for Aging Research, the American Association of People with Disabilities, the American Association of Neurological Surgeons, the American Gastroenterological Association, the American Osteopathic Association, the Association of Clinical Research Organizations, BIO, Easter Seals, the Epilepsy Foundation, the National Association for Hispanic Health, the National Alliance on Mental Illness, PhRMA, and the American Association for Cancer Research. PIPC can also be followed on Facebook and Twitter at @pipcpatients.
