Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
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Resource Center

PIPC Submits Comments on ICER Assessment of Sickle Cell Treatments

5/15/2023

 
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In a letter to the Institute for Clinical and Economic Review (ICER), the Partnership to Improve Patient Care (PIPC) submitted comments on ICER's assessment of gene therapies for Sickle Cell Disease (SCD).


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PIPC Submits Comments on Maryland Prescription Drug Affordability Board Draft Regulations

5/3/2023

 
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In a comment letter to the Maryland Prescription Drug Affordability Board, PIPC highlighted concerns of patients and people with disabilities related to the Board's potential use of discriminatory cost-effectiveness analyses.


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Patients and People with Disabilities Urge Robust Engagement, Avoid Use of QALYs and Similar Measures in Drug Negotiation

4/14/2023

 
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On April 14, 2023, 56 organizations representing patients and people with disabilities sent a letter to CMS related to its guidance for implementation of the Medicare Drug Negotiation Program. The letter to CMS provides the following recommendations and comments:


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PCORI Meeting: March 7, 2023 -- Board of Governors Meeting

4/12/2023

 
03-07-23_pcori.pdf
File Size: 579 kb
File Type: pdf
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PIPC Submits Comments on ICER Assessment of NASH Treatment

3/23/2023

 
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In a letter to the Institute for Clinical and Economic Review (ICER), PIPC submitted feedback on ICER's assessment of treatments ​nonalcoholic steatohepatitis (NASH). 

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Medicare Drug Price Negotiation Program: PIPC Recommendations for a Process Centered on Patients and People with Disabilities

3/15/2023

 
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PIPC has provided the Medicare Drug Negotiation Program with recommendations for a process centered on patients and people with disabilities. These recommendations may be useful references for consideration in response to the agency’s initial guidance, particularly related to the factors outlined for consideration in statute. 

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PIPC Submits Comments on PCORI Stakeholder Views on Components of 'Patient-Centered Value' in Health Care

3/3/2023

 
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In a letter to the Patient-Centered Outcomes Research Institute (PCORI), the Partnership to Improve Patient Care (PIPC) offered feedback on PCORI's draft report entitled "​Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care." 

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One-Pager: Protecting Health Care for All Patients Act

1/26/2023

 
​The Protecting Health Care for All Patients Act would advance the recommendation of the National Council on Disability calling for the bar on use of the quality-adjusted life year (QALY) and similar metrics that discriminate to be extended to all federal programs, including Medicaid. 

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PCORI Meeting: December 12, 2022 -- Board of Governors Meeting

1/23/2023

 
12-13-22_pcori.pdf
File Size: 253 kb
File Type: pdf
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PIPC Urges North Dakota Senate to Reject Use of QALYs

1/17/2023

 
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In a letter to North Dakota State Sen. Judy Lee (R-ND), the Partnership to Improve Patient Care (PIPC) offered strong criticism of legislation that would deploy the discriminatory quality-adjusted-life-years (QALY) metric as a means of addressing rising health care costs. 

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