The Partnership to Improve Patient Care (PIPC) was joined by several hepatitis C patients and advocates today in sending a letter to the Patient-Centered Outcomes Research Institute (PCORI) applauding PCORI for convening stakeholders to prioritize potential hepatitis C research questions, while providing guidance on how to ensure the prioritized questions are truly patient-centered. The letter stated, "It was clearly articulated by patients and providers at the workshop that the most important patient-centered outcome in the case of hepatitis C is a cure for every patient diagnosed with this infectious disease. To be truly patient-centered, we feel strongly that PCORI’s prioritization process should capture the research questions that are best suited to help patients achieve this outcome - a cure for all patients.” PIPC and hepatitis C patients urged PCORI to give weight to the questions that were prioritized by patients, and to allow the public to comment on the draft priorities as is required by PCORI's statute.
| pipc_hep_c_letter_to_pcori.pdf |