For over a decade, the Partnership to Improve Patient Care (PIPC) has championed centering health care on patients and people with disabilities. In this literature review, we offer the Centers for Medicare & Medicaid Services (CMS) recommendations to create a systematic engagement process that goes beyond written comment periods and ad hoc listening sessions.
Drawing on robust frameworks from leading organizations including National Health Council (NHC), the Patient-Centered Outcomes Research Institute (PCORI), the PATIENTS Program at the University of Maryland, the Innovation and Value Initiative (IVI), and AcademyHealth, our recommendations prioritize authentically involving patients and people with disabilities in agency decisions. By synthesizing insights from these frameworks, PIPC advocates best practices to foster meaningful dialogue with patients, caregivers, and people with disabilities across CMS. The insights from their lived experience will allow CMS to advance policies and practices improving health care value and patient outcomes.
Our recommendations are as follows:
Our recommendations are as follows:
- CMS should develop a formalized process to ensure continuous, robust engagement of patients and people with disabilities at multiple levels.
- Using patient insights, CMS should clearly communicate how it intends to use the input it receives, and how that input is reflected in the final negotiated prices.
- CMS should solicit input from diverse communities to ensure representation of the diversity of the patients and communities affected by the topic.
- CMS should ensure that opportunities for patient engagement are accessible.
- To gauge both successes and challenges, CMS should establish a structured process for continuous review and assessment of its engagement strategy.
- CMS should avoid one-size fits all value metrics.
| pipc_recommendations_for_patient_engagement_final.pdf |
