The Partnership to Improve Patient Care (PIPC) was founded on principles of patient-centeredness that cannot be achieved without engaging patients and people with disabilities. PIPC is now working to make sure the patient voice is heard in three key areas that are defining health care value: value-based payment, value assessment frameworks, and research on comparative value. With respect to value-based payment, patients must have a seat at the table as these models are developed and tested. A more consistent strategy for engaging patients would yield small, controlled model tests that effectively engage and protect patients and incorporate a patient-centered perspective on value.
As part of its “Patient Voices, Patient Value” Initiative, PIPC is offering a roadmap for consistent patient engagement in the CMMI model design and testing process. This roadmap draws on best practices employed by CMMI in the development of earlier model tests, as well as best practices for patient engagement that have demonstrated success at the Patient Centered Outcomes Research Institute (PCORI), Food and Drug Administration (FDA), and Office of the National Coordinator for Health Information Technology (ONC). Specifically, PIPC recommends:
- Improve oversight of CMMI by creating a Patient Advisory Panel to ensure patient-centeredness in the agency’s work.
- Require CMMI to follow a consistent process to seek input from patients and caregivers both early in the development of new demonstrations and throughout the implementation and evaluation process.
- Improve the transparency of model test designs and evaluation results.
Given the complexity of the patient population, and that patient perspectives differ on an individual level, it is important that CMMI increase patient involvement to best understand this stakeholder groups’ unique perspectives on their individual needs, preferences, and care choices to align new payment models with care that patients value. Increasing the level of patient participation throughout the model development process will improve the impact of value-based payment models by yielding tests that put patient safety, care needs, and preferences first.