Color of Gastrointestinal Illnesses (COGI) sent a letter to the Florida House and Senate expressing concerns about a pair of bills that would import discriminatory value assessment metrics. 

In this week's edition...
 
— Roll Call: Bipartisan call for Congress to ban metric that devalues people with disabilities. View the Roll Call opinion here. View the Open Letter here from over 100 groups. View PIPC's one pager here. 
— Florida Bill Would Import QALYs, Devalue People with Disabilities. Learn more about the experiences of patients and people with disabilities in other countries here. View the letter from PIPC here. View a constituent letter from The Speak Foundation here.
 — Survey Shows Virginia Voters Trust Doctors and are Skeptical of PDABs. Click here to view.
— PIPC Responds to CMS' GLOBE and GUARD Models, Also Known as 'Most Favored Nation.' Click here to read PIPC's full statement.
— RealClear Discusses 'Most Favored Nation,' Criticizing the Policy's Impact on Patient Access. Click here to view the article.
— PIPC Data Mine Blog: Why Patients Shouldn’t Bear Individual Harms for Better Population Averages. View the new PIPC Data Mine Blog here.
— Prasad and Makary Discuss Novel FDA Plausible Mechanism Pathway. Click here to read the NEJM publication.
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Update on the Texas v. Kennedy Lawsuit. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below
— Upcoming Events and Webinars. See details below.

The SPEAK Foundation sent a letter to the Florida House and Senate expressing concerns about a pair of bills that would import discriminatory value assessment metrics. 

This piece originally ran in Roll Call on January 15, 2026

Now more than ever, we need to listen to and respect one another’s views and values, whether on the floor of Congress or in individual health care decisions. ​

In this week's edition...
 
— PIPC Responds to CMS' GLOBE and GUARD Models, Also Known as 'Most Favored Nation.' Click here to read PIPC's full statement.
— RealClear Discusses 'Most Favored Nation,' Criticizing the Policy's Impact on Patient Access. Click here to view the article.
— MFN May Also Cut Off Rural America. Click here to view the article.
— The Well News (Opinion): Most Favored Nation Drug Pricing Fails Patients and their Caregivers. View the opinion here.
— PIPC Data Mine Blog: Why Patients Shouldn’t Bear Individual Harms for Better Population Averages. View the new PIPC Data Mine Blog here.
— PIPC Chairman Coelho Testifies to Oregon Department of Consumer and Business Services. View Chairman Coelho’s testimony here. View the testimony from Disability Rights Oregon here. Learn more about the hearing here.
— White House Issues RFI on Scientific Research & AI. See details below.
— Prasad and Makary Discuss Novel FDA Plausible Mechanism Pathway. Click here to read the NEJM publication.
— Reps. Cammack and Hern Introduce QALY Ban Bill. See details below.
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Update on the Texas v. Kennedy Lawsuit. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

​In this week's edition...
 
— PIPC Responds to CMS' GLOBE and GUARD Models, Also Known as 'Most Favored Nation.' Click here to read PIPC's full statement.
— RealClear Discusses 'Most Favored Nation,' Criticizing the Policy's Impact on Patient Access. Click here to view the article.
— MFN May Also Cut Off Rural America. Click here to view the article.
— The Well News (Opinion): Most Favored Nation Drug Pricing Fails Patients and their Caregivers. View the opinion here.
— PIPC Data Mine Blog: Why Patients Shouldn’t Bear Individual Harms for Better Population Averages. View the new PIPC Data Mine Blog here.
— PIPC Chairman Coelho Testifies to Oregon Department of Consumer and Business Services. View Chairman Coelho’s testimony here. View the testimony from Disability Rights Oregon here. Learn more about the hearing here.
— White House Issues RFI on Scientific Research & AI. See details below.
— Prasad and Makary Discuss Novel FDA Plausible Mechanism Pathway. Click here to read the NEJM publication.
— Reps. Cammack and Hern Introduce QALY Ban Bill. See details below.
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Update on the Texas v. Kennedy Lawsuit. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.