Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
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The PIPC Blog

PIPC Weekly Update: March 26, 2018

3/26/2018

 
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In This Week’s Issue:
 
1. The Hill: PIPC Chairman calls on Congress to Protect Patients from MedPAC Consideration of Cost-per-QALY in Medicare, click here to read the op-ed. 
2. PIPC Submits Comments to Senators Addressing Barriers to Price and Information Transparency, click here to read the letter.
3. Health Affairs Blog: The Need For A New Patient-Centered Decision Tool For Value-Based Treatment Choices In Oncology, click here to read the blog.
4. PatientEngagementHIT: How to Use Patient Outreach Technology in Patient-Centered Care, click here to read the article.
5. AHRQ: Bringing the Patient Voice to Evidence Generation: Patient Engagement in Disease Registries, click here to read the blog. 
6. Brown Daily Herald: Study shows half of patients forget doctors’ instructions, click here to read the article. 
7. PCORI Seeking New Patient Engagement Advisory Panel Members, click here to apply
8. FDA Public Meeting: Evaluating Inclusion and Exclusion Criteria in Clinical Trials, click here to register.  
9. GAO Report: Comparative Effectiveness Research: Activities Funded by the Patient Centered Outcomes Research Trust Fund, click here to read the report.  
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.



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PIPC Weekly Update: March 19, 2018

3/19/2018

 
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In This Week’s Issue:
 
1. The Data Mine: Tufts University Study Highlights Failure of Cost Effectiveness Analysis to Account for Variability Among Patients, click here to read the blog.
2. Opinion: Improving Children’s Medical Care Starts With Patient-Centered Research, click here to read the op-ed
3. The PCORI Blog: The Power of Collaboration in the Fight against Cardiovascular Disease, click here to read the blog.
4. Everyday Health: MS Treatments the Subject of PCORI-Funded Research, click here to read the blog.
5. HBR: We Won’t Get Value-Based Health Care Until We Agree on What “Value” Means, click here to read the article.
6. PCORI Seeking New Patient Engagement Advisory Panel Members, click here to apply
7. FDA Public Meeting: Evaluating Inclusion and Exclusion Criteria in Clinical Trials, click here to register.  
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.


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PIPC Weekly Update: March 12, 2018

3/12/2018

 
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In This Week’s Issue:
 
1. The Data Mine: Tufts University Study Highlights Failure of Cost Effectiveness Analysis to Account for Variability Among Patients, click here to read the blog.
2. PCORI Seeking New Patient Engagement Advisory Panel Members, click here to apply
3. FDA Public Meeting: Evaluating Inclusion and Exclusion Criteria in Clinical Trials, click here to register.  
4. CancerCare Report: Study Highlights Barriers to Aligning Treatment Strategies with Patient Priorities, click here to read the report.
5. HealthIT Analytics: CMS Announces Patient-Centered Data Sharing Initiative, click here to read the article.
6. Healthcare Informatics: ONC Execs Double Down on Patient-Centered Healthcare, Believe it’s “Nonsense” that Patients Aren’t Ready, click here to read the article.
7. Upcoming Events and Webinars, see details below.
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below.


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The Data Mine: Tufts University Study Highlights Failure of Cost Effectiveness Analysis to Account for Variability Among Patients

3/6/2018

 
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Researchers from a leading university have released a study confirming some of stakeholders’ most significant concerns about the utilization of cost-effectiveness research; namely, the failure of cost-effective analyses (CEA) to account for important, meaningful differences among patients.

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PIPC Weekly Update: March 5, 2018

3/5/2018

 
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​In This Week’s Issue:
 
1. Well + Good:  This Is What It’s Like to Live with A Rare Autoimmune Disease, click here to read the article. 
2. PCORI Video: Improving Communication to Help Manage Chronic Pain, click here to watch the video
3. FDA Public Meeting: Evaluating Inclusion and Exclusion Criteria in Clinical Trials, click here to register.  
4. The PCORI Blog: Changing the Landscape of Rare Disease Research, click here to read the article.
5. AJMC: FDA Moves to Era of Active Participant in Drug Development, click here to read the article.
6. Diagnostic Imaging: Patient-Centered Care: How to Involve Patients in Research and Dissemination, click here to read the article.
7. Upcoming Events and Webinars, see details below.
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below


Read More

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