In this week's edition...
 
— HEMA Finalizes Report on Economic Evaluation. View PIPC’s critique of the draft report here. View the final report here.
— PIPC Responds to Continued Consideration of Virginia PDAB Legislation. 
Click here to read the letter.
— HIV+HEP Submits letter Opposing GUARD Model. View the press release and letter here.
— President of NDSS Publishes Opinion Opposing Policies Importing QALYs. Click here to read the full piece. Click here to learn more about Most Favored Nation and concerns related to importing QALYs.
— PQA to Hold Heart Failure Technical Expert Panel. A self-nomination form is available for patients, caregivers and patient advocates. A TEP information document provides details on the panel and what is required for nominations. See PQA's recent blog for more information.
— PIPC Submits Comments to Connecticut Legislature Opposing Use of QALYs and Similar Measures. View the PIPC letter here. View the letter from Color of Gastrointestinal Illnesses (COGI) here.
— PIPC Responds to SOTU and Most Favored Nation. View the statement here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here.
— Rare Disease Toolkit for Value Our Health. The rare disease toolkit is available here. View the newest element of the toolkit, a chart outlining QALY utility values for certain rare diseases here.
— Chairman's Corner: OHE Report Confirms Nearly All Countries Referenced in GLOBE, GUARD Models Reference QALYs. View the blog here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

In this week's edition...
 
— CMS Extends Deadline to March 18 to Register for Public Engagement Events. View the drugs being reviewed here and get help preparing to tell your story by registering for the Patient Inclusion Council here. Register to participate by March 18 in a CMS' virtual, patient-focused roundtable event or speak at the virtual, livestreamed town hall meeting focused on clinical considerations regarding the selected drugs. Public engagement events will be held in April 2026. Reach out to [email protected] using the subject line “Public Engagement” with any questions. 
— PIPC Responds to Continued Consideration of Virginia PDAB Legislation. 
Click here to read the letter.
— HIV+HEP Submits letter Opposing GUARD Model. View the press release and letter here.
— President of NDSS Publishes Opinion Opposing Policies Importing QALYs. Click here to read the full piece. Click here to learn more about Most Favored Nation and concerns related to importing QALYs.
— PQA to Hold Heart Failure Technical Expert Panel. A self-nomination form is available for patients, caregivers and patient advocates. A TEP information document provides details on the panel and what is required for nominations. See PQA's recent blog for more information.
— PIPC Submits Comments to Connecticut Legislature Opposing Use of QALYs and Similar Measures. View the PIPC letter here. View the letter from Color of Gastrointestinal Illnesses (COGI) here.
— PIPC Responds to SOTU and Most Favored Nation. View the statement here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here.
— Rare Disease Toolkit for Value Our Health. The rare disease toolkit is available here. View the newest element of the toolkit, a chart outlining QALY utility values for certain rare diseases here.
— Chairman's Corner: OHE Report Confirms Nearly All Countries Referenced in GLOBE, GUARD Models Reference QALYs. View the blog here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
— California Patients and People with Disabilities: Attend the Patient and Consumer Forum on Health Care Affordability! The meeting will be held on March 10 at 1pm. View details here. 
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

In this week's edition...
 
— President of NDSS Publishes Opinion Opposing Policies Importing QALYs. Click here to read the full piece. Click here to learn more about Most Favored Nation and concerns related to importing QALYs.
— PIPC Submits Comments to Connecticut Legislature Opposing Use of QALYs and Similar Measures. View the PIPC letter here. View the letter from Color of Gastrointestinal Illnesses (COGI) here.
— PIPC Responds to SOTU and Most Favored Nation. View the statement here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here.
— Rare Disease Toolkit for Value Our Health. The rare disease toolkit is available here. View the newest element of the toolkit, a chart outlining QALY utility values for certain rare diseases here.
— Chairman's Corner: OHE Report Confirms Nearly All Countries Referenced in GLOBE, GUARD Models Reference QALYs. View the blog here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
— Partnership for Part D Access: Action Alert. View the Action Alert HERE.
— California Patients and People with Disabilities: Attend the Patient and Consumer Forum on Health Care Affordability! The meeting will be held on March 10 at 1pm. View details here. 
— Roll Call: Bipartisan call for Congress to ban metric that devalues people with disabilities. View the Roll Call opinion here. View the Open Letter here from over 100 groups. View PIPC's one pager here. 
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

In this week's edition...
 
— PIPC Responds to SOTU and Most Favored Nation. View the statement here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here.
— Rare Disease Toolkit for Value Our Health. The rare disease toolkit is available here. View the newest element of the toolkit, a chart outlining QALY utility values for certain rare diseases here.
— Chairman's Corner: OHE Report Confirms Nearly All Countries Referenced in GLOBE, GUARD Models Reference QALYs. View the blog here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
— Partnership for Part D Access: Action Alert. View the Action Alert HERE.
— California Patients and People with Disabilities: Attend the Patient and Consumer Forum on Health Care Affordability! The meeting will be held on March 10 at 1pm. View details here. 
— Florida Bill Would Import QALYs, Devalue People with Disabilities. Learn more about the experiences of patients and people with disabilities in other countries here. View the letter from PIPC here. View a constituent letter from The Speak Foundation here.
— Roll Call: Bipartisan call for Congress to ban metric that devalues people with disabilities. View the Roll Call opinion here. View the Open Letter here from over 100 groups. View PIPC's one pager here. 
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

​PIPC shared concerns with the Connecticut legislature related to Section 6 of House Bill 5040 and its potential use of third-party comparative effectiveness reviews of prescription drugs in a manner that may allow for use of cost effectiveness analyses using quality-adjusted life years (QALYs) and similar measures from entities like the Institute for Clinical and Economic Review (ICER).