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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
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The PIPC Blog

PIPC Weekly Update: April 26, 2021

4/26/2021

 
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In This Week’s Issue:
 
1. PIPC Chairman, Tony Coelho, reiterates PIPC’s Commitment to Nondiscrimination, see details below.
2. Patient Advocates: International Reference Pricing Would Decimate Alzheimer's Disease Research, see details below.
3. Over 85 Disability and Patient Groups Sign Open Letter: Reject Health Policies that Discriminate, see details below.
4. People With Disabilities Could Soon Face Health Care Discrimination, click here to read the article.
5. IHP: QALYs in the News, see details below.
6. IHP: Advocates Sue To Overturn Trump CMS Approval Of TN Funding Demo, click here to view the article (subscription only).
7. NCD Writes to CBO on Reliance on the QALY for Budget Scores, click here to read the letter.
8. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
9. IVI Value Model on Major Depressive Disorder, see details below.
10. WEDNESDAY: AAPD Leadership Awards Gala, click here to register.
11. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below.
12. Vaccination Equity and Communication, see details below.
13. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
14. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  


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Chairman's Corner: PIPC's Commitment to Nondiscrimination

4/22/2021

 
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Image of PIPC Chairman Tony Coelho
​Today, the House reintroduced legislation - modeled on what was known as H.R. 3 when it was introduced in 2019 - that would rely on quality-adjusted life years (QALYs) to value health care, which are well known to discriminate against people with disabling and chronic conditions, especially in communities of color that are not well represented in the research literature. 

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PIPC Weekly Update: April 19, 2021

4/19/2021

 
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In This Week’s Issue:
 
1. Over 85 Disability and Patient Groups Sign Open Letter: Reject Health Policies that Discriminate, see details below.
2. NCD Writes to CBO on Reliance on the QALY for Budget Scores, click here to read the letter.
3. Op-Ed: It's Time to Get Health Value Assessment Right, click here to read the op-ed.
4. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
5. IVI Value Model on Major Depressive Disorder, see details below.
6. AAPD Leadership Awards Gala, click here to register.
7. Emerging Threats in States like CO and ME for Use of Discriminatory Metrics, see details below.
8. IVI Webinar Series: Toward Equity in Value Assessment, see details below.
9. Vaccination Equity and Communication, see details below.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 


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Advocates for People with Disabilities, Chronic Conditions and Older Adults Request Policymakers Reject Health Policies That Discriminate

4/14/2021

 
PictureAmerican Association of People with Disabilities
This press release was first issued by the American Association of People with Disabilities (AAPD) on April 14, 2021. 

Washington, D.C. – We are pleased to join the more than 90 organizations that signed a letter calling on policymakers to reject health policies that discriminate. Every life is valuable. We strongly urge policymakers to reject policies that discriminate against people with disabilities and chronic conditions, older adults, and reinforce health inequities.


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PIPC Joins Over 90 Patient and Disability Groups Urging Policymakers to Reject Policies That Discriminate

4/14/2021

 
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PIPC is proud to have joined over 90 organizations in an open letter calling on policymakers to reject health policies that discriminate. Every life is valuable. We strongly urge policymakers to reject policies that discriminate against people with disabilities and chronic conditions, older adults, and reinforce health inequities


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PIPC Weekly Update: April 12, 2021

4/12/2021

 
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In This Week’s Issue:
 
1. NCD Chair: To Improve Care for People with Disabilities, Confront the QALY, click here to read the blog post.
2. States Rely on Template Legislation that References ICER and Discriminatory Metrics, see details below.
3. Sickle Cell Mom: 'Cost Effectiveness' Does Not Consider Personal, Economic Burdens, click here to read the article.
4. IVI Webinar Series: Toward Equity in Value Assessment, see details below.
5. Emerging Threats in States like CO, ND, and ME for Use of Discriminatory Metrics, see details below.
6. THIS WEDNESDAY: 2021 AUCD Virtual Gala, click here to learn more and register.
7. Vaccination Equity and Communication, see details below.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  


Read More

PIPC Weekly Update: April 5, 2021

4/5/2021

 
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In This Week’s Issue:
 
1. NCD Chair: To Improve Care for People with Disabilities, Confront the QALY, click here to read the blog post.
2. Sickle Cell Mom: 'Cost Effectiveness' Does Not Consider Personal, Economic Burdens, click here to read the article.
3. TRANSCRIPT AVAILABLE: PCORI Board Approves Principles for Considering the Full Range of Outcomes Data, see details below.
4. Senate HELP Committee Discusses International Pricing, Germany and Health Technology Assessment, see details below.
5. Inside Health Policy: PIPC Reminds Democrats They Promised Not to Use QALYs, click here to read the article (subscription required).
6. IVI Webinar Series: Toward Equity in Value Assessment, see details below.
7. Emerging Threats in States like CO, ND, and ME for Use of Discriminatory Metrics, see details below.
8. 2021 AUCD Virtual Gala, click here to learn more and register.
9. Vaccination Equity and Communication, see details below.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  


Read More

PIPC Patient Blog: Congress Moves to Import Discriminatory Health Policies

4/1/2021

 
Partnership to Improve Patient Care logo
This piece originally appeared in RealClearHealth on March 31, 2021. 

By Adrienne Shapiro

Healthcare costs seem to be a constant discussion point both in Washington and in our state capitals. Policymakers are on a quest for a silver bullet that they can trumpet as a win to constituents, but this debate is complex, and nuanced; and will have enormous ramifications for American patients, like my daughter, Marissa, who lives with sickle cell disease and who has a new lease on life from innovative treatments.​

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