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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • MFN/IPI Webinar 2025
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
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The PIPC Blog

PIPC Weekly Update: April 25, 2022

4/25/2022

 
Picture
In This Week’s Issue:
 
1. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
2. GAO Calls for Nominations to PCORI Board of Governors. Click here to read more.
3. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
4. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
5. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
6. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  


Read More

PIPC Weekly Update: April 18, 2022

4/18/2022

 
Picture
In This Week’s Issue:
 
1. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
2. GAO Calls for Nominations to PCORI Board of Governors. Click here to read more.
3. PCORI Board of Governors Meeting - Transcript Released. Click here to view the transcript.
4. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
5. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
6. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
7. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
8. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
9. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
10. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
11. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  


Read More

PIPC Weekly Update: April 4, 2022

4/4/2022

 
Picture
In This Week’s Issue:
 
1. Opportunity to Comment on Oregon Waiver Renewal Application - Closes Next Wednesday! See details below.
2. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
3. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
4. NMQF: A Roadmap for Real-World Evidence Generation in Alzheimer’s Disease. Click here to view the white paper.
5. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
6. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  


Read More

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