In this week's edition...
 
— Former Members of Congress and Physicians Call Out How MFN Devalues Disabled Lives. View the article here.
— MFN Policies Devalue Patients, Limiting Treatments for People like Gerry. We must not import access restrictions that devalue people living with chronic illnesses.
— Access at Risk: Innovation for Health Equity in a Time of Uncertainty. Register here.
— Trump Administration Pushes Compliance Deadlines for DOJ's Title II Rule on Digital Accessibility. PIPC will continue to monitor the rule and advocate to ensure that the disabled community does not witness a deterioration in accessibility standards.
— Patients and People with Disabilities Urge Policymakers to Reject Importing Foreign Drug Pricing Policies. View PIPC’s response to the SOTU here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here. View the blog here. Learn more about the implications of importing QALYs here.
— Roll Call Publishes Article on the Current State of AHRQ. Click here to read the full piece.
— NIH Strategic Plan for Disability Health Research FY26-FY30. View the report here.
— HEMA Finalizes Report on Economic Evaluation. View PIPC’s critique of the draft report here. View the final report here.
— HIV+HEP Submits letter Opposing GUARD Model. View the press release and letter here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
— Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

​Gerry discusses his experience living with primary biliary cholangitis (PBC) and the challenges of managing the condition in Ireland. He explains the frustration of knowing that newer therapies are available in countries like the United States, while patients in Ireland face limited access.

 — Patients and People with Disabilities Urge Policymakers to Reject Importing Foreign Drug Pricing Policies. View PIPC’s response to the SOTU here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here. View the blog here. Learn more about the implications of importing QALYs here.
— Roll Call Publishes Article on the Current State of AHRQ. Click here to read the full piece.
— NIH Strategic Plan for Disability Health Research FY26-FY30. View the report here.
— Louisiana Considers MFN Bill. View the PIPC letter here. View the COGI letter here.
— HEMA Finalizes Report on Economic Evaluation. View PIPC’s critique of the draft report here. View the final report here.
-- PIPC Responds to Continued Consideration of Virginia PDAB Legislation. 
Click here to read the letter.
-- HIV+HEP Submits letter Opposing GUARD Model. View the press release and letter here.
-- PQA to Hold Heart Failure Technical Expert Panel. A TEP information document provides details on the panel. See PQA's recent blog for more information.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
-- Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

In this week's edition...

— NIH Strategic Plan for Disability Health Research FY26-FY30. View the report here.
— Louisiana Considers MFN Bill. View the PIPC letter here. View the COGI letter here.
— HEMA Finalizes Report on Economic Evaluation. View PIPC’s critique of the draft report here. View the final report here.
-- PIPC Responds to Continued Consideration of Virginia PDAB Legislation. 
Click here to read the letter.
-- HIV+HEP Submits letter Opposing GUARD Model. View the press release and letter here.
-- PQA to Hold Heart Failure Technical Expert Panel. A TEP information document provides details on the panel. See PQA's recent blog for more information.
-- PIPC Responds to SOTU and Most Favored Nation. View the statement here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here.
— Chairman's Corner: OHE Report Confirms Nearly All Countries Referenced in GLOBE, GUARD Models Reference QALYs. View the blog here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
-- Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.

​Gerry, who lives with primary biliary cholangitis (PBC), discusses his experience managing the condition and the difficulties he faces in obtaining newer therapies available in countries such as the United States but not in Ireland.
​

In this week's edition... 

— Louisiana Considers MFN Bill. View the PIPC letter here. View the COGI letter here.
— HEMA Finalizes Report on Economic Evaluation. View PIPC’s critique of the draft report here. View the final report here.
-- PIPC Responds to Continued Consideration of Virginia PDAB Legislation. 
Click here to read the letter.
-- HIV+HEP Submits letter Opposing GUARD Model. View the press release and letter here.
-- PQA to Hold Heart Failure Technical Expert Panel. A TEP information document provides details on the panel. See PQA's recent blog for more information.
-- PIPC Responds to SOTU and Most Favored Nation. View the statement here. View the letters from 119 organizations to CMS commenting on the GLOBE and GUARD models here.
— Chairman's Corner: OHE Report Confirms Nearly All Countries Referenced in GLOBE, GUARD Models Reference QALYs. View the blog here.
— Devaluing Disabled Lives, International Laws Fall Short of Protecting Equal Access to Health Care for People with Disabilities as Compared to the U.S. View the new Data Mine Blog here.
— MFN would import access restrictions – hear Paula’s story. Click here to view Paula's story.
— Health Affairs Discusses MFN Drug Pricing and QALYs. Click here to read the full article.
— Oregon PDAB Holds Forums in April/May for Patient and Disability Input. View more information here about PDAB forums. View the EACH/PIC Coalition recent report allowing respondents to explain how insurance design, cumulative health costs, and life circumstances affect their ability to access care. Get involved in telling your story here.
-- Opportunity: Sign an Open Letter Rejecting Use of QALYs and Similar Measures. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.