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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
      • 2020
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The PIPC Blog

PIPC Weekly Update - May 23, 2016

5/23/2016

 
​In This Week’s Issue:
  1. Libertarian Republic: Proposed Medicare Rule Would Use Metric Banned During Obamacare Death-Panel Debate, click here to view the article.
  2. New York Times: Proposal to Reduce Medicare Drug Payments Is Widely Criticized, click here to view the article.  
  3. Putting Cost Ahead of Medical Outcomes, click here to view the article.
  4. Health Affairs Blog: Patient-Driven Research Will Lead To Better Health, click here to view the article.
  5. The New Era of Informed Consent: Getting to a Reasonable-Patient Standard Through Shared Decision Making, click here to view the article.
  6. PCORI Blog: Placing Arthritis Research in Patients' Hands, click here to view the blog post.
  7. Video: Dr James Whitfill on Engaging Physicians and Patients in ACOs, click here to view the video.

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PIPC Weekly Update - May 16, 2016

5/16/2016

 
In This Week’s Issue:
  1. PIPC Call to Action: Grassroots Campaign to Oppose National Cost-Effectiveness Thesholds in Medicare, see details below.
  2. PIPC in the News: Proposed Medicare Rule Would Use Metric Banned During Obamacare Death-Panel Debate, click here to view the article.
  3. Healthcare Dive: Patient Groups Criticize CMS’ Proposed Part B Model, click here to view the article.
  4. Clinton Adviser: Next Administration Would Have To Review Phase 2 Of Part B Drug Demo, click here to view the article (subscription only).
  5. United Cerebral Palsy Launches ‘Speak for Yourself’ Survey, click here to take the survey.
  6. Inside Health Policy: Stakeholders Craft Patient Engagement Paper In Bid To Steer FDA Policy, click here to view the article (subscription only).
  7. Network to Explore How Patient-Centered Outcomes Research Can be Incorporated into Clinical Practice, click here to view the article.
  8. AHRQ Grants $1.9 Million for Patient-Centered Outcomes Research Network, clickhere to view the article.

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Healthcare Dive: More than 40 patient groups criticize CMS' proposed Part B model

5/12/2016

 
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An article in Healthcare Dive highlights the Partnership to Improve Patient Care (PIPC)'s recent letter to the Centers for Medicare and Medicaid (CMS), which voices their opposition to the agency's Medicare Part B demo. The group expressed concerns over CMS' proposed use of comparative effectiveness research and cost effectiveness as national Medicare standards in phase two of the proposal and urged the agency not to move forward with the proposed rule unless it accommodates people with disabilities.


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Libertarian Republic: Proposed Medicare Rule Would Use Metric Banned During Obamacare Death-Panel Debate

5/12/2016

 
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An article posted today in The Libertarian Republic highlights the fact that the Centers for Medicare and Medicaid Services' (CMS) recent Medicare Part B demonstration proposal would use a quality-adjusted life years (QALYs) metric for rationing health care, which was banned following the Affordable Care Act (ACA) death-panel debate. 

The article also features the concerns of patient advocacy groups, including the Partnership to Improve Patient Care (PIPC), over the demonstration's potential to limit drug access for the elderly and physically disabled. They expressed concern that the QALYs metric fails to take real-life consequences into account - like doctors being pushed toward cheaper yet possible less effective treatment options. 


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PIPC Weekly Update - May 9, 2016

5/9/2016

 
In This Week’s Issue:

1. FINAL DAY TO SIGN! PIPC/AAPD Letter Opposing Use of CER and Cost-Effectiveness in Medicare, click here to view the current list signatories and here to view the comment letter.
2. PIPC Call to Action: Grassroots Campaign to Oppose National Cost-Effectiveness Thresholds in Medicare, see details below.
3. PIPC/AAPD in Wall Street Journal: Lawmakers Criticize Medicare Plan for Costly Drugs, click here to view the article. 
4. U.S. News: The New Health Care Rationing, click here to view the article.
5. AJMC: Inculcating the Patient Voice in the Development of Value Models, click here to view the article. 
6. Kaiser Health News: Patients’ Assessment Of Their Health Is Gaining Importance In Treatment, click here to view the article. 
7. Health Affairs: Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care, click here to view the article.
8. National Forum for Heart Disease and Stroke Prevention Launches Value and Access Initiative, see details below. 

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PIPC Weekly Update - May 9, 2016

5/9/2016

 
In This Week’s Issue:
  1. FINAL DAY TO SIGN! PIPC/AAPD Letter Opposing Use of CER and Cost-Effectiveness in Medicare, click here to view the current list signatories and here to view the comment letter.
  2. PIPC Call to Action: Grassroots Campaign to Oppose National Cost-Effectiveness Thresholds in Medicare, see details below.
  3. PIPC/AAPD in Wall Street Journal: Lawmakers Criticize Medicare Plan for Costly Drugs, click here to view the article. 
  4. U.S. News: The New Health Care Rationing, click here to view the article.
  5. AJMC: Inculcating the Patient Voice in the Development of Value Models, click here to view the article. 
  6. Kaiser Health News: Patients’ Assessment Of Their Health Is Gaining Importance In Treatment, click here to view the article. 
  7. Health Affairs: Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care, click here to view the article.
  8. National Forum for Heart Disease and Stroke Prevention Launches Value and Access Initiative, see details below. ​

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Politico Pulse: PIPC Leads Patient Groups in Complaints on Phase 2 of Part B Demo

5/9/2016

 
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This morning's edition of Politico Pulse highlighted the Partnership to Improve Patient Care's (PIPC) leadership among patient groups in voicing concerns over Phase 2 of the Centers for Medicare and Medicaid Services (CMS) planned Part B demonstration project. PIPC, along with over 40 other groups, are sending a letter to CMS acting administrator Andy Slavitt highlighting issues with the proposed change to lower the add-on payment for drugs in phase 2 of the proposed demo. 


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WSJ: Lawmakers Criticize Medicare Plan for Costly Drugs; Concerns on Alternative Payments for Drugs

5/5/2016

 
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An article posted today in The Wall Street Journal outlined lawmakers' concerns with the Centers for Medicare and Medicaid Services' (CMS) recent proposal to reduce Medicare's profit incentives to doctors who administer drugs. WSJ notes bipartisan concerns with the program, including the demands of dozens of House Republicans for the proposal to be withdrawn. 


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PIPC Weekly Update - May 2, 2016

5/2/2016

 
In This Week’s Issue:
​
1. PIPC Grassroots Call on Congress: We Need More Voices Opposing Cost-Effectiveness in Medicare! Share note below with your networks!
2. PIPC Poll: Americans Support Patient-Centered Solutions, Oppose Government Determining Value, click here to view the full survey results. 
3. PCORI Board Approves $44.4 Million for 21 New Patient-Centered Research Projects, click here to view the press release.
4. CMS Blog: Pursuing Health Equity for the Nation, click here to view the blog post.
5. AHRQ Names New Director, click here to view the article. 
6. Blog: TIME Magazine Recognizes Two PCORI Awardees, click here to view the blog post.

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