PIPC conducted a national survey of 1,500 registered voters between May 28 – June 5, 2013 to ascertain public opinion regarding CER and attitudes concerning the appropriate role of a federal CER Institute.
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On Monday, June 10, 2013, the Partnership to Improve Patient Care (PIPC) and the American Association of People with Disabilities (AAPD) convened a roundtable representing people with disabilities in an effort to provide PCORI with consensus recommendations to develop research contracts beneficial to the disability community. PCORI researchers were present to outline the parameters for the research projects that PCORI can fund, as well as the process for working with PCORI.
In an article published in Inside Health Policy, Partnership to Improve Patient Care (PIPC) Chair Tony Coelho reacts to PIPC's absence from PCORI's roundtable on data dissemination, as well as a new poll which highlights the need to communicate research with the patient community. According to the article, "[Chairman] Coelho says PCORI is not involving enough patient representatives in PCORI's work to disseminate comparative effectiveness research findings, but a spokesperson for the Patient-Centered Outcomes Research Institute says the July 29 roundtable on CER dissemination includes representatives from patient, caregiver and consumers organizations, including a PIPC member organization. PCORI is holding a roundtable on Monday (July 29) to plan for communicating CER findings to the public, and PIPC was not invited, despite several requests to participate, Coelho says. Coehlo says the roundtable should include more patient representatives, and PCORI indicated to him that including consumer representatives satisfies the requirement to get patient input.
In This Week’s Issue:
1. PCORI Meeting Materials: Latino Roundtable, click here to view the meeting agenda, and here to view the presentation slides. 2. PCORI Blog: Digging Deeper into PCORI's Cycle II Awards, click here to view the blog post. 3. PCORI to Host Roundtable, Webinar on Data Dissemination, click here to register for the webinar, and here to submit questions and responses. 4. PIPC Chairman Comments on Living with a Disability, Patient Centered CER, click hereto view the blog post. 5. It's Time for Insurers to Pony Up PCORI Fees, click here to view the article (subscription only). 6. Pink Sheet: Woodcock Pushes Standardization to Speed Rx Development, But Will Uniformity Cripple Innovation?, click here to view the article (subscription only). In This Week’s Issue
1. PIPC Launches New Website: PIPCpatients.org, click here to view the new website. 2. Summary of PIPC's 2012 Roundtable Series, click here to view. 3. PCORI Schedules Roundtable to Discuss Dissemination and Implementation, clickhere for more information, and to register for the webinar. 4. PCORI-NIH Partnership on Fall-Related Injury Prevention Yields Request for Applications, click here to view the press release. 5. Video: ACRO Interview with PIPC Chairman and Executive Director, click here to view part one of the interview, and here to view part two. 6. PCORI Blog: Learning from Clinical Data, click here to view the blog post. 7. Pink Sheet: Dissemination Of CER Evidence Remains Key Challenge, PCORI Survey Suggests, click here to view the article (subscription only). 8. NEJM Opinion: Communicating and Promoting Comparative-Effectiveness Research Findings, click here to view the article. 9. Wall Street Journal: Slowdown in Health Spending Could Be at Risk, click here to view the article (subscription only). State-of-the-Art web platform will allow PIPC to drive greater awareness around the issue of comparative effectiveness research and its importance to patients.
Since the creation of PCORI, it has been clear to PIPC that it would be crucial for patients and physicians to work together in support of an agenda that is responsive to our shared needs at the point of treatment decision-making. To that end, PIPC supported a series of roundtables with leading physician and patient organizations beginning in early 2012 to identify, discuss, and define potential next steps in key areas of PCORI’s work. Leading medical societies that serve on PIPC’s Steering Committee – such as the American College of Cardiology and American Association of Neurological Surgeons – were instrumental in helping organize several of these roundtables.
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