In This Week’s Issue:
 
1. Uses and Misuses of the QALY: Ethical Issues and Alternative Measures of Value, click here to read the summary. 
2. BPC: PIPC on Panel on Future of Comparative Effectiveness Research, click here to view the webcast.
3. Tuesdays with Liz: PIPC Executive Director Sara van Geertruyden Discusses Importance of Patient-Centered Care, click here to watch the video. 
4. PCORI Video: It All Started with Patient-Centeredness, click here  to watch the video.
5. Mass Device: FDA sets inaugural meeting of first-ever Patient Engagement Advisory Committee, click here to read the article.
6. AMJC Video: Dr. Clifford Goodman — A Look at the Present and Future of Value Frameworks, click here to watch the video. 
7. APPLY NOW! ONC Seeks Applications for Health Information Technology Advisory Committee, click here for additional details.
8. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
9. Comment Now! CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
10. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
11. Lupus: Patient-Focused Drug Development Meeting, click here to register!
12. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
13. Upcoming Events and Webinars, see details below
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. Register Now: PIPC on BPC Panel on The Future of Comparative Effectiveness Research, click here to RSVP.
2. PIPC Patient Blog: Megan O’Boyle, click here to read the blog. 
3. Tuesdays with Liz: PIPC Executive Director Sara van Geertruyden Discusses Importance of Patient-Centered Care, click here to watch the video. 
4. WSJ: The Smart Medicine Solution to the Healthcare Crisis, click here to read the op-ed.  
5. Clinical Psychiatry News: Engage Patients, Clinicians as Partners in Research, click here to read the article.
6. BMJ: What Your Patient is Thinking — Learning Together, click here to read the article.
7. New PCORI Initiative to Advance Shared Decision Making, click here to read the press release.
8. Comment Now! CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
9. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
10. Lupus: FDA Patient-Focused Drug Development Meeting, click here to register!
11. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
12. Upcoming Events and Webinars, see details below
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.

I’m the mother of a wonderful girl named Shannon, who has a rare genetic condition called Phelan-McDermid syndrome. For years I steered clear of research information about her condition and focused on the daily challenges of meeting her needs. It never occurred to me that beyond being Shannon’s mom and caregiver I would play another vital role – as part of the research community helping her and others like her live a better life. 

In This Week’s Issue:
 
1. Save the Date: PIPC Hosts Panel Discussion on QALYs (July 21), click here for details, and here to RSVP.
2. Register Now: PIPC on BPC Panel on The Future of Comparative Effectiveness Research, click here to RSVP.
3. PIPC Submits Comments for Reducing Regulatory Burden, click here to view.
4. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey.
5. PCPCC: The Impact of Primary Care Practice Transformation on Cost, Quality, and Utilization, click here to read the report.
6. Lupus: FDA Patient-Focused Drug Development Meeting, click here to register.
7. MedPage Today: Under the Radar — PCORI Helps Patients Make Good Decisions, click here to read the article.
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. Save the Date: PIPC Hosts Panel Discussion on QALYs (July 21), click here for details, and here to RSVP.
2. PIPC Submits Comment on RFI for Reducing Regulatory Burdens, click here to view.
3. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? click here to complete the survey.
4. Healthcare Informatics: Pilot Projects Seek to Move Patient-Centered Research Outcomes Into Clinical Decision Support, click here to read the article.
5. Lupus: FDA Patient-Focused Drug Development Meeting, click here to register
6. National Organization of Nurses with Disabilities on Need for Patient Voices, click here to view their perspectives.
7. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
8. Upcoming Events and Webinars, see details below
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. Save the Date: PIPC Hosts Panel Discussion on QALYs (July 21), click here for details, and here to RSVP.
2. PIPC Publishes White Paper on ‘Uses and Misuses of the QALY: Ethical Issues and Alternative Measures of Value,’ click here to view.
3. STAT: Missing from the Debate Over Health Care: Patients’ Voices, click here to read the article.
4. Experts Convene for Summit on Cancer Moonshot Initiative, see details below.
5. Will Value Assessment Frameworks Promote Health Value and Access for Veterans?, click here to view the blog post.
6. AARP Announces ‘Community Challenge’ Grants, click here for more information and here to submit an application.
7. Lupus: FDA Patient-Focused Drug Development Meeting, click here to register.
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.