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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
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The PIPC Blog

PIPC Weekly Update - August 29, 2016

8/29/2016

 
In This Week’s Issue:
1. See How Health Stakeholders Can Partner with Policymakers! Click here to fill out PIPC’s survey, click here to view compiled list.
2. PIPC Member HCMSG Listed as Best HCV Blog of 2016 by Healthline, click here to for details.
3. LAN Releases Population-Based Payment Fact Sheets, see details below.
4. PCORI Blog: Engaging Clinicians in Patient-Centered Research, click here to view the blog post.
5. Are Insurance Policies Saving Patients Money, or Keeping Them from the Treatment They Need?, click here to view the article.
6. Medical Journal Articles, see details below.
7. Upcoming Events and Webinars, see details below.
8. AHRQ Effective Program Updates, see details below.

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Thought Leaders Discuss Comparative and Cost-Effectiveness in Policy Decision-Making

8/18/2016

 
Hon. Tony Coelho
PIPC Chairman, Patient Advocate
Proposals for Medicare and private payers to use CER are understandable, but concerning. Understandable because the challenge of rising costs is real, and policy-makers naturally reach for familiar policy tools. Concerning because it would pull CER away from individualized patient decisions and back towards centralized payer decisions. The end result would be limited choice of treatments based on one-size-fits-all determinations of 'value' for the average patient.

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PIPC Weekly Update - August 15, 2016

8/15/2016

 
In This Week’s Issue: 
  1. Despite Latest Report, ICER Still Limits Patient Input and Maintains Strong Ties To Insurers, click here to view the article.​
  2. The Tennessean: Why Patients Need a Louder Voice in Medical Research, click here to view the article.
  3. Stat: How Can We Encourage Cancer Patients to Share Their Health Data?, click here to view the article.
  4. PCORI Blog: A Silver Medal for Patient of PCORI Awardee, click here to view the blog post.

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PIPC Weekly Update - August 11th, 2016

8/11/2016

 
​In This Week’s Issue:
  1. Patrick Conway: CMS’ Core Quality Measures Collaborative: A Rationale And Framework For Public-Private Quality Measure Alignment, click here to view the blog post.
  2. New York Times: Cancer Doctors Offer Way to Compare Medicines, Including by Cost, click here to view the article.
  3. Healthcare Informatics: Centers of Excellence to Study Dissemination of Evidence-Based Care Practices, click here to view the article.
  4. Blog: Here Are the 5 Reasons Republicans Are Trying to Cut Research on Evidence-Based Medicine, click here to view the article.

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‘Patient Voices’ on Value Frameworks

8/10/2016

 
Picture
In response to CMS’ recently proposed Medicare Part B drug demonstration, dozens of individual patients and patient advocacy groups have mobilized to voice their concerns with the model’s use of "comparative effectiveness" research and "cost-effectiveness" data to make coverage decisions. Indeed, patients have expressed a wide range of concerns – from the reliance on assessments such as those generated by the Institute for Clinical and Economic Review (ICER), to the lack of patient engagement in the development of the new reimbursement model. 


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PIPC Weekly Update - August 8, 2016

8/8/2016

 
​In This Week’s Issue:
  1. ​Forbes: Are You Just a Number? How New Healthcare Value Frameworks Miss the Point, click here to view the article.
  2. ICER: Scoping Document for Review of Rheumatoid Arthritis Drugs Posted for Public Comment, click here to view the release.
  3. Morning Consult: Health Care Payment Is Shifting to Reward Value, but Can Information on Health Care's Value Be Shared?, click here to view the op-ed.  
  4. Video: Dr. Marcia Wilson Discusses the Patient's Role in Quality Measurements, click here to view the video. 
  5. Morning Consult: Value Frameworks Are Expanding For Drugs & Devices, click here to view the article.
  6. PCORI Awards Nearly $700,000 to 46 Projects Through Pipeline to Proposal Awards, click here to view the press release. 

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PIPC Weekly Update - August 1, 2016

8/1/2016

 
In This Week’s Issue:
  1. Tell Policymakers and Health Stakeholders How You Can be a Partner TODAY! Clickhere to fill out PIPC’s survey.
  2. Huffington Post: Nothing NICE About ICER, click here to view the article.
  3. The Limits of Google: How Patients Can Find Out What Works in Medical Care, clickhere to view the article.
  4. Clinical Leader: Can We Make Clinical Research More Useful?, click here to view the article.
  5. Morning Consult: Value Frameworks Are Expanding For Drugs & Devices, click here to view the article.
  6. ICER Opens National Call for Proposed Improvements to its Value Assessment Framework, click here to view the press release.

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