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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
      • 2020
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The PIPC Blog

PIPC Weekly Update: August 26, 2024

8/26/2024

 
​In this week's edition...
 
— Learn More About Alternative Measures for Value Assessment. Click here to learn more.
— Aimed Alliance Publishes New Resource on PDAB & IRA Implications for Rare Disorders.  Click here to view.
— Medicare Drug Price Negotiation Program: CMS Announced Prices of First 10 Drugs. See details below.  
— Tune in Tomorrow! Advancing Health Equity Through Community-Engaged Research. Click here for additional details and to watch webinar.
— PCORI Annual Meeting October 22-23, 2024. See details below.
— PIPC Submits Feedback on ICER Assessment of ATTR-CM Treatments. Click here to read the letter.
— FDA’s CBER Hosting Patient Listening Session on Gene Therapy, September 20. See details below.
— ICHOM Looking for Patient Partners! See details below.
— PCORI Engagement Awards Now Open! Click here to learn more. 
— Chairman Tony Coelho's Statement on Final Passage of H.R. 485. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

PIPC Weekly Update: August 19, 2024

8/19/2024

 
In this week's edition...
 
— Medicare Drug Price Negotiation Program: CMS Announced Prices of First 10 Drugs. See details below.  
— PIPC Submits Feedback on ICER Assessment of ATTR-CM Treatments. Click here to read the letter.
— PIPC Submits Comments on 'Cures 2.0.' RFI. See details below. 
— PCORI Annual Meeting October 22-23, 2024. See details below.
— NIH Lecture: Advancing Health Equity Through Community-Engaged Research. Click here for additional details and to watch webinar.
— FDA’s CBER Hosting Patient Listening Session on Gene Therapy, September 20. See details below.
— PIPC Submits Comments on Medicare Drug Price Negotiation Implementation Guidance. See details below.
— Due Friday! AAAS Seeks Nominations for Working Group on Disability Inclusion and Anti-Ableism. See details below.
— ICHOM Looking for Patient Partners! See details below.
— PCORI Engagement Awards Now Open! Click here to learn more. 
— Learn More About Alternative Measures for Value Assessment. Click here to learn more.
— Chairman Tony Coelho's Statement on Final Passage of H.R. 485. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

PIPC Weekly Update: August 12, 2024

8/12/2024

 
In this week's edition... 
​
— PIPC Submits Comments on 'Cures 2.0.' RFI. See details below. 

— FDA’s CBER Hosting Patient Listening Session on Gene Therapy, September 20. See details below.
— Due Wednesday! Request for Information: Strategies for Maximizing Public Engagement in NIH Supported Clinical Research. Click here for more details and to submit a comment.
— PIPC Submits Comments on Medicare Drug Price Negotiation Implementation Guidance. See details below.
— AAAS Seeks Nominations for Working Group on Disability Inclusion and Anti-Ableism. See details below.
— ICHOM Looking for Patient Partners! See details below.
— PCORI Engagement Awards Now Open! Click here to learn more. 
— Learn More About Alternative Measures for Value Assessment. Click here to learn more.
— PCORI Annual Meeting October 22-23, 2024. See details below.
— Chairman Tony Coelho's Statement on Final Passage of H.R. 485. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.

Read More

PIPC Weekly Update: August 5, 2024

8/5/2024

 
In this week's edition...
 
— PIPC Submits Comments on Medicare Drug Price Negotiation Implementation Guidance. See details below.
— AAAS Seeks Nominations for Working Group on Disability Inclusion and Anti-Ableism. See details below.
— Due Thursday! FDA Seeks Applications For Patient Engagement Collaborative. Click here for additional details and to apply.
— ICHOM Looking for Patient Partners! See details below.
— PCORI Engagement Awards Now Open! Click here to learn more. 
— Request for Information: Strategies for Maximizing Public Engagement in NIH Supported Clinical Research. Click here for more details and to submit a comment.
— Learn More About Alternative Measures for Value Assessment. Click here to learn more.
— PCORI Annual Meeting October 22-23, 2024. See details below.
— Chairman Tony Coelho's Statement on Final Passage of H.R. 485. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

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