Blog Archives

PIPC Weekly Update - October 31, 2016

10/31/2016

In This Week’s Issue:
1. Sign and Share Petition to Give Patients and People Served by Health Systems a Voice in Healthcare, click here to view and sign the petition.
2. PCORI Annual Meeting and Patient Networking Reception, click here to register.
3. The Huffington Post: Why Isn’t Healthcare the Star of the 2016 Election? click here to view the article.
4. Care for Your Mind: Tony Coelho Reiterates that Patients Need to be Involved in Policy-making, click here to view the article.
5. Arthritis Foundation Blog: Patient Voice Has Strong Representation at 2016 Arthritis Industry Forum, click here to view the blog post.
6. Cardiovascular Business: Stroke Survivors Benefit from Spending Time at Home, click here to view the study.
7. Califf: Nothing Prohibits FDA From Using Real-World Evidence In Decisions, click here to view the article (Paid subscription required.)
8. JAMA: AHRQ Director Sets Course for Agency's Health Services Research, click here to view the article.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

PIPC Weekly Update - October 24, 2016

10/24/2016

In This Week’s Issue:
1. PCORI Annual Meeting and Patient Networking Reception, click here to register.
2. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Voices of Patients and People at Center of Health Debate, click here to view the letter.
3. Care for Your Mind: Tony Coelho Reiterates that Patients Need to be Involved in Policy-making, click here to view the article.
4. PIPC Launches New Website!, click here to view the site.
5. PCORI: Enlisting the Brain in the Fight against Pain, click here to read the article.
6. A Letter from CMS to Clinicians in the Quality Payment Program: We Heard You and Will Continue Listening, click here to view the letter.
7. The Healthcare Blog: The Fine Print of MACRA's Final Rule: Good for Patients? click here to view the response.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.

PIPC Weekly Update - October 17, 2016

10/17/2016

In This Week’s Issue:
1. PCORI Annual Meeting and Patient Networking Reception, click here to register.
2. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Voices of Patients and People at Center of Health Debate, click here to view the letter.
3. PIPC Launches New Website!, click here to view the site.
4. PCORI Blog: PCORI's Latest Milestones, click here to view the blog post.
5. Alliance for Aging Research and Bipartisan Policy Center Event: Maximizing the Value of Healthy Aging to Society, click here to register for the event.
6. Dermatology Times: Crowdsourcing Pinpoints Unmet Needs in Eczema Research, click here to view the article.
7. Video: Real World Evidence, click here to view the video.
8. Video: The Rise of Precision Medicine, click here to view the video.
9. Video: Francesco Chiappelli - The Theory and Practice of Comparative Effectiveness Research, click here to view the seminar.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.

PIPC Weekly Update - October 11, 2016

10/11/2016

In This Week’s Issue:
1. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Voices of Patients and People at Center of Health Debate, click here to view the letter.
2. PIPC Submits Letter to CMS on Achieving Patient-Centeredness in Cardiac and Joint Replacement Models, click here to read the letter.
3. PIPC Launches New Website!, click here to view the site.
4. BioCentury: Patients Want Bigger Role in ICER Assessments, click here to view the article.
5. Dr. Don Dizon: Evidence Should Not Be Used to Enforce Mandates, click here to view the article.
6. Tom Brokaw: Learning to Live With Cancer, click here to view the article.
7. PCORI Blog: Helping Survivors of Breast Cancer Watch Out for Recurrences, click here to view the blog post
8. Video: Impacting the Outcomes of Healthcare Research, click here to view the video.
9. Medical Journal Articles, see details below.
10. Upcoming Events and Webinars, see details below.
11. AHRQ Effective Program Updates, see details below.

PIPC 'Open Letter' Published in Leading Newspapers Across the Country

10/7/2016

PIPC joined over 60 groups representing patients and people served by health systems in signing onto an Open Letter that was published in several leading newspapers across the country, including the St. Louis Dispatch, the Cleveland Plain Dealer, the Detroit Free Press, and the Miami Herald. The letter called on the Presidential candidates and the Presidential debate moderators to give voice to patients and people served by health systems and to give them a voice in health care. Furthermore, it calls for the creation of a health care system that rewards the outcomes that matter to patients, and emphasizes that when it comes to dictating patients’ treatment options, no patient is "average."

Open Letter: We Deserve a Voice

10/7/2016

In an open letter published today in several leading newspapers across the country, over 50 leading patient groups and people served by health systems call on political leaders to give voice to our concerns in the healthcare debate. We call for creation of a health care system that rewards the outcomes that matter to us, and emphasize that when it comes to treatment options, none of us are "average."

PIPC Weekly Update - October 3, 2016

10/3/2016

In This Week’s Issue:
1. PIPC Launches New Website!, click here to view the site.
2. PIPC Submits Letter to HHS on Oregon Medicaid Health Plan Extension, Calls for Patient Engagement and Critiques Use of QALYs, click here to view the letter.
3. JAMA: Tailoring Complex Care Management for High-Need, High-Cost Patients, click here to view the article.
4. Policy and Medicine: Value Frameworks: Are They the Way of the Future? click here to view the article.
5. The Hill: Getting it Right on Value Frameworks, click here to view the blog post.
6. HHS Announces Winners of Challenge to Improve Medical Bills for Patients, here to view the press release.
7. The Pink Sheet: As Drug Value Frameworks Gain Traction, Patients Seek More Input, click here to view (subscription only).
8. Video: Dr. Kate Goodrich Discusses Success of CMS Move to Value-Based Payment, click here to view the video.
9. Video: Dr. Leonard Fromer on Personalized Versus Precision Medicine, click here to view the video.
10. Medical Journal Articles, see details below.
11. Upcoming Events and Webinars, see details below.
12. AHRQ Effective Program Updates, see details below.

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