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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
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The PIPC Blog

PIPC Weekly Update: October 28, 2019

10/28/2019

 
Picture
In This Week’s Issue:
 
1. PCORI Reauthorization Discussions Advance
2. PCORI Videos on Patient-Centered Research Advancing Quality Care, see details below.
3. PIPC, Leading Patient Groups Submit Joint Letter to ICER on Draft 2020 Value Framework, click here to read the letter.
4. Advancing the Use of Patient-Generated Data, click here to read the article.
5. Liver Cancer Hill Briefing, see below for details.
6. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
7. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
8. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
9. Report on the Value Assessment Landscape in the U.S., click here to read the report.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 


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PIPC Weekly Update: October 21, 2019

10/21/2019

 
Picture
In This Week’s Issue:
 
1. PIPC, Leading Patient Groups Submit Joint Letter to ICER on Draft 2020 Value Framework, click here to read the letter.
2. NextAvenue: ICER's Methods May Discriminate Against Older Patients, click here to read the article.
3. Advancing the Use of Patient-Generated Data, click here to read the article.
4. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
5. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
6. ICER’s Concern for Patients: Where’s the Beef?, click here to read the op-ed.
7. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
8. PIPC Comments on ICER's Type 2 Diabetes Draft Evidence Report, click here to read the letter.
9. Liver Cancer Hill Briefing, see below for details.
10. A Troubling Method of Curbing Health Care Costs Is Gaining Ground, click here to read the op-ed.
11. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
13. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  


Read More

PIPC Weekly Update: October 15, 2019

10/15/2019

 
Picture
In This Week’s Issue:
 
1. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
2. ICER’s Concern for Patients: Where’s the Beef?, click here to read the op-ed.
3. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
4. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
5. PIPC Comments on ICER's Type 2 Diabetes Draft Evidence Report, click here to read the letter.
6. Liver Cancer Hill Briefing, see below for details.
7. New PQA Patient Engagement in Quality Measurement Rubric, click here to read more and to view the rubric.
8. How ICER Discriminates Against People with Rare Diseases, click here to read the article.
9. PCORI News and Updates, see details below.
10. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
12. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  


Read More

PIPC Weekly Update: October 7, 2019

10/7/2019

 
Picture
In This Week’s Issue:
 
1. Reuters: CVS Drug Coverage Plan Based on Outside Pricing Review is Off to a Slow Start, see details below.
2. ICER Discriminates Against People with Rare Diseases, click here to read the article.
3. ICER Withdraws Draft Report on Rheumatoid Arthritis Therapies, click here to read more.
4. PCORI News and Updates, see details below.
5. Patient Advocacy Scholarships Available for Personalized Medicine Conference, click here to apply.
6. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
7. Incorporating Patient Perspectives and Transparency for Patient-Centered Value Assessment, click here to read the article.
8. Not All QALYs are Created Equal, click here to read the article.
9. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
10. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
12. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  


Read More

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