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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
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The PIPC Blog

PIPC Weekly Update: November 30, 2020

11/30/2020

 
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In This Week’s Issue:
 
1. PIPC Statement on Behalf of People with Disabilities and Serious Chronic Conditions on MFN Importing QALYs, see details below.
2. CCD Letter to President-elect Biden's COVID-19 Advisory Board, click here to read the letter.
3. You're Invited! PIPC Forum 2020: Putting Patients and People with Disabilities at the Center of the Value Discussion, click here to learn more and RSVP.
4. More than 40 Leading Patient and Disability Groups Join PIPC Comment Letter on PCORI Outcome Principles, click here to read the letter.
5. PIPC Primer: PCORI and ICER Background, Funding, and Impact on Patient-Centered Care, click here to view the primer.
6. PIPC Releases Targeted Literature Review on Patient-Centered Cost Outcomes, read the whole paper here.
7. New IVI Issue Brief on Open-Source Modeling for Value Assessment, click here to read the issue brief.
8. PhRMA Foundation Challenge Award Program Funding Opportunity -- LETTERS OF INTENT DUE TOMORROW, see details below.
9. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below


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PIPC Statement on Behalf of People with Disabilities and Serious Chronic Conditions on MFN

11/20/2020

 
For Immediate Release
​November 20, 2020 
Media Contact
Thayer Roberts, Deputy Director
​[email protected] 
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​Today, the Administration released an Interim Final Rule that would allow for the government to reference prescription drug prices established internationally, regardless of the metrics used by those countries or implications for access to care in those countries, for drugs covered under Part B of Medicare. The Partnership to Improve Patient Care and several other organizations expressed strong opposition to this concept when it was originally proposed in 2018. 


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PIPC Weekly Update: November 16, 2020

11/16/2020

 
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In This Week’s Issue:
 
1. Chairman Coelho Congratulates President-elect Joe Biden, see details below.
2. PIPC Primer: PCORI and ICER Background, Funding, and Impact on Patient-Centered Care, click here to view the primer.
3. PIPC Releases Targeted Literature Review on Patient-Centered Cost Outcomes, read the whole paper here.
4. Chairman Coelho to Receive Lifetime Achievement Award from the Bazelon Center, click here to learn more about the awards and to get a ticket for the live stream.
5. New IVI Issue Brief on Pandemic-Era Value Assessment, click here to read the issue brief.
6. Patient Advocate: Socialized Medicine and Rationing COVID Care Defy American Principles, click here to read the op-ed.
7. Men's Health Network Summit, 13th Annual Meeting, click here to view the Summit.
8. PhRMA Foundation Challenge Award Program Funding Opportunity, see details below.
9. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  


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PIPC Chairman Tony Coelho Congratulates President-elect Biden

11/12/2020

 
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As Chairman of the Partnership to Improve Patient Care (PIPC), I want to express my sincere congratulations to President-elect Joe Biden. Patients and people with disabilities are eager and excited to work with the President-elect and his team on policies that will improve their health and quality of life. 


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PIPC Weekly Update: November 9, 2020

11/9/2020

 
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In This Week’s Issue:
 
1. Patient Advocate: Socialized Medicine and Rationing COVID Care Defy American Principles, click here to read the op-ed.
2. PhRMA Foundation Challenge Award Program Funding Opportunity, see details below.
3. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
4. Study: Step Therapy Can Lead to Higher OOP Costs for Crohn’s Disease Patients, click here to read more.
5. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series -- Comments Open through November 13, 2020, see details below.
6. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below. 


Read More

PIPC Weekly Update: November 2, 2020

11/2/2020

 
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In This Week’s Issue:
 
1. PhRMA Foundation Challenge Award Program Funding Opportunity, see details below.
2. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
3. Study: Step Therapy Can Lead to Higher OOP Costs for Crohn’s Disease Patients, click here to read more.
4. 2020 NMQF Virtual Leadership Summit Panel on Value Assessment, see details below.
5. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series -- Comments Open through November 13, 2020, see details below.
6. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  


Read More

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