Blog Archives

PIPC Weekly Update - December 22, 2014

12/22/2014

In This Week’s Issue:
1. Save the Date: PIPC’s Patient Empowerment Webinar, see details below.
2. PIPC Comments on PCORI Dissemination and Implementation Action Plan, click here to view.
3. PCORI Seeking Nominations to Advisory Panels, click here to view the post.
4. Midland Daily News: Call to Action: Patient Centered Care, click here to view the full article.
5. Bloomberg: PCORI's Board Backs Efforts To Fund Hepatitis C Treatment Research, click here to view the article (subscription required).
6. The Health Care Blog: Health Care Registries: Powerful Tool, Narcoleptic Name, click here to view the post.
7. Medical Journal Articles, see details below.
8. AHRQ Effective Program Updates, see details below.

PIPC Weekly Update - December 15, 2014

12/15/2014

In This Week’s Issue:
1. Chairman's Corner: Five Years Closer to a Patient-Centered Health System, click here to view the full blog.
2. PIPC Patients Blog: Ronni Marks, click here to view the full post.
3. PIPC: Statement on Hepatitis C Research at PCORI, click here to view the statement.
4. PIPC Attends Webinar on PCORI Dissemination and Implementation Plan, click here to view the webinar slides.
5. Star-Tribune: ‘Big Data' is Changing American Medical Care, click here to view the full article.
6. PCORI, NIH Partnership to Fund Research Asking How to Reduce Hypertension Disparities, click here to view the full blog post.
7. New York Times: Don't Homogenize Health Care, click here to view the full article.
8. PCORI: In New Process, PCORI Will Invite Resubmission of Selected Applications, click here to view the full post.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.

PIPC Statement on PCORI and Hepatitis C Funding

12/8/2014

Today, the Patient-Centered Outcomes Research Institute (PCORI) Board of Governors approved $50 million in targeted funding for four specific areas of research related to hepatitis C resulting from its expert advisory group meeting held on October 17, 2014. Patients and patient advocates applauded PCORI for convening diverse stakeholders and for using a process that, with continued patient engagement, will prioritize the research questions that matter most to patients.

PIPC Weekly Update - December 8, 2014

12/8/2014

In This Week’s Issue:
1. PCORI Board of Governors to Meet Today, Discussing Research Strategy and Hepatitis C Funding, click here for the agenda.
2. Mathematica Webinar on PCORI Dissemination and Implementation Plan, click here to register.
3. PIPC signs on to Appeal From Patient Organizations On Clinical Pathways, click here to view the full letter.
4. PCORI Announces $4 Million in Grants to Expand Pipeline to Proposal Initiative, click here to view the full announcement.
5. New AHRQ Tools Available To Support Shared Decision-Making, click here to view the tool.
6. CQ Health Beat: NIH Pushes to Centralize Patient-Protection Pacts, click here to view the full article.
7. JCO: Debating the Oncologist's Role in Defining the Value of Cancer Care: We Have a Duty to Society, click here to view the full article.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.

PIPC Patient Blog: Ronni Marks

12/8/2014

My name is Ronni Marks, and I was first diagnosed with Hepatitis C (HCV) in 1997. Before people began to talk about things like “comparative effectiveness” or “patient-centeredness,” patients like me were just focused on where to go for help. Treatment options back then were painful, protracted, and unpredictable. And while my friends and family tried to support me as best they could, they didn’t understand the enormity of what HCV was or what I was experiencing. At that time, the Internet was new, and there were no HCV support groups.

Chairman's Corner: Five Years Closer to a Patient-Centered Health System

12/2/2014

On November 19, 2014, PIPC held its 5th annual forum in Washington, DC. It is hard to believe that just 5 years ago we had Senator Baucus here talking to us about his vision for a patient-centered research institute that would support patient-centered care delivery. And today, the Patient-Centered Outcomes Research Institute (PCORI) is up and running. PCORI is changing the culture of research by engaging and including patients throughout the research process—from prioritizing research questions to engaging in research design and helping disseminate findings into practice. But as you know, and I know, it doesn’t stop there. For the investment in patient-centered outcomes research to have meaning, we must also have a health system that embraces the same principles of patient-centeredness.

The PIPC Blog

PIPC Weekly Update - December 22, 2014

PIPC Weekly Update - December 15, 2014

PIPC Statement on PCORI and Hepatitis C Funding

PIPC Weekly Update - December 8, 2014

PIPC Patient Blog: Ronni Marks

Chairman's Corner: Five Years Closer to a Patient-Centered Health System

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