In This Week’s Issue:
1. PIPC Patient Blog: Abigail Lore, click here to view the blog post.
2. PCORI Blog: PCORI Projects Put Findings into Action, Click here to view the blog post.
3. Moving AHRQ Into The NIH: New Beginning Or Beginning Of The End? Click here to view the article.
4. Video: Susan A. Cantrell on the Evolution of Value Frameworks, Click here to watch the video
5. 5 Thoughts on Why Value Based Care Will Survive Partisanship Over Healthcare, Click here to view the article.
6. Can Value-Based Purchasing Work with Pharmaceutical Companies? Click here to view the article.
7. FDA’s Califf to Head New Clinical Research Foundation, see details below.
8. Guidelines for Designing Patient-Centered Research Initiatives, Click here to view the article.
9. CMS: Commenting Open on Pediatric Alternative Payment Model Opportunities, Click here to view the announcement.
10. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, Click here to apply.
11. NYT: Informed Patient? Don’t Bet on It, Click here to view the article.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.
1. PIPC Patient Blog: Abigail Lore, click here to view the blog post.
2. PCORI Blog: PCORI Projects Put Findings into Action, Click here to view the blog post.
3. Moving AHRQ Into The NIH: New Beginning Or Beginning Of The End? Click here to view the article.
4. Video: Susan A. Cantrell on the Evolution of Value Frameworks, Click here to watch the video
5. 5 Thoughts on Why Value Based Care Will Survive Partisanship Over Healthcare, Click here to view the article.
6. Can Value-Based Purchasing Work with Pharmaceutical Companies? Click here to view the article.
7. FDA’s Califf to Head New Clinical Research Foundation, see details below.
8. Guidelines for Designing Patient-Centered Research Initiatives, Click here to view the article.
9. CMS: Commenting Open on Pediatric Alternative Payment Model Opportunities, Click here to view the announcement.
10. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, Click here to apply.
11. NYT: Informed Patient? Don’t Bet on It, Click here to view the article.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.
1. PIPC Patient Blog: Abigail Lore
In a new post on the PIPC Blog, college student Abigail Lore discusses the challenges of balancing diabetes management with academics. “I had 14 years of diabetes management under my belt when I was a freshman political science student at American University. I prepared and thought about my transition to college for weeks. I had registered with my school’s Academic Support and Access Center for accommodations, scoped out the dining hall offerings, and had the nerve-wracking talk with my roommate about the Emergency Glucagon Pen. But no level of preparation can prepare you for the ups and downs of having diabetes in college.”
“…Every diabetes patient is different, but for me, the hardest part of being at American were my blood sugar management and remembering to give insulin at mealtimes while balancing being a ‘regular college student.’ But more than that, what seemed next to impossible was figuring out the logistics of managing my diabetes supplies. This meant calculating when I had to reorder supplies, how long it would take to be shipped, and how long it would take to process through my university's package system – not to mention any appeals of prior authorizations I would have to facilitate over and over despite years of demonstrating the medical necessity of the supplies that work for me. It’s like having a double major, one in political science and one in diabetes supplies management.”
“…It is easy to feel defeated when you are surrounded by students performing at the best of their abilities. That’s especially true when you know if could just get access to your trusted insulin pump to spend more time in range, you too could feel that good, get those good grades, and land that prestigious internship. That is why comprehensive coverage for the diabetes equipment and supplies that work for each individual patient is vital, especially to college students.” Click here to view the blog post.
2. PCORI Blog: PCORI Projects Put Findings into Action
In a PCORI Blog post, Joanna Siegel, SM, ScD and Christopher Gayer, PhD touch on a new awards program within PCORI for researchers who want to take the next step in having their results influence care. “...As part of our efforts to ensure uptake of useful results in clinical practice, we have launched an awards program to enable teams that have completed a PCORI-funded research project to take the next step toward having their results influence care. These awards, which fund dissemination and implementation activities, help close the gap between research findings and use of that evidence in practice.” Click here to view the blog post.
3. Video: Susan A. Cantrell on the Evolution of Value Frameworks
Susan A. Cantrell appears in a video by The American Journal of Managed Care, noting that value frameworks are one tool that can be used to inform the formulary decision-making process, but transparency in the development of these frameworks is important. “...[W]e know that as far as we've seen, there's not one value framework out there that's perfect and so as these value frameworks continue to evolve, one thing that's important is that they follow principles that have been set out by other organizations—especially the National Pharmaceutical Council has done quite a bit of work in this area—and that they have transparency.” Click here to watch the video.
4. Moving AHRQ Into The NIH: New Beginning Or Beginning Of The End?
Andrew Bindman of Health Affairs Blog comments on the proposal to relocate AHRQ into the NIH. “...The proposal to relocate AHRQ within the NIH is a threatening change, but under the right conditions a reorganization could represent a new beginning with an opportunity to refocus within a larger new home. Organized under the NIH roof with a visible identity and appropriate funding, the reconstituted AHRQ could lead efforts on how to prioritize the allocation of resources for practice-based research and implementation science available throughout the NIH and through other federal investments.” Click here to view the article.
5. 5 Thoughts on Why Value Based Care Will Survive Partisanship Over Healthcare
In a Becker's Spine Review article, Laura Dyrda emphasizes that the value-based movement in healthcare is non-partisan. “While the ACA encouraged the transition toward value-based care, the value movement in healthcare is non-partisan, according to a URAC blog report. Here are five key notes from the report...4. The Medicare Advantage Value-Based Insurance Design Model piloted in several states has reduced costs for enrollees participating in disease management and medication adherence.” Click here to view the article.
6. Can Value-Based Purchasing Work with Pharmaceutical Companies?
Health Payer Intelligence ponders whether adding pharmaceutical companies to the value-based purchasing environment is the next horizon for accountable care. “...The move towards value-based drug contracts require payers and manufacturers to focus on monitoring and measuring quality and outcomes, not just the amount of product sold, in order to better align with the value-based care activities taking place in the care delivery market...[A]n investment in data infrastructure, that connects large national clinical data networks could streamline the information necessary to sustain value-based contracts. One existing example of these efforts is PCORnet, the research network developed PCORI.” Click here to view the article.
7. Califf to Head New Clinical Research Foundation
As BioCentury reports, Former FDA Commissioner Robert Califf will be chair of the newly created People-Centered Research Foundation (PCRF). The group was formed by investigators from the National Patient-Centered Clinical Research Network (PCORnet), which is operated by the Patient-Centered Outcomes Research Institute (PCORI), a publicly funded comparative effectiveness research organization. PCORI said Tuesday it will fund the foundation with up to $25.4 million. PCRF will support PCORnet's sustainability and "provide retrospective observational research using its data network, prospective research that collects new data from patients, and high-impact clinical trials," according to its website.
8. Guidelines for Designing Patient-Centered Research Initiatives
Patient Engagement HIT has the scoop on PCORI's Patient Engagement Rubric. “...PCORI created the [PCORI Engagement Rubric] to include the following: principles of engagement; definitions of stakeholder types; key considerations for planning, conducting, and disseminating engaged research; potential engagement activities; and examples of promising practices from PCORI-funded projects...‘[The Rubric] provides a practical resource that distills and prioritizes information from promising practices intended to systematically bring stakeholders into the research process in the most impactful way,’ the researchers said.” Click here to view the article.
9. CMS: Commenting Open on Pediatric Alternative Payment Model Opportunities
According to a recent CMS announcement, “input is being sought on approaches to improve the quality and reduce the cost of care for children and youth enrolled in Medicaid and CHIP. In particular, concepts are being explored that encourage pediatric providers to collaborate with health-related social service providers (e.g., early childhood development programs, child welfare services, and home and community based service providers) at the state and local levels and share accountability for health outcomes for children and youth enrolled in Medicaid and CHIP. Specifically, CMS seeks information from the broad community of child and youth-focused stakeholders on concepts critical to addressing the comprehensive health needs of children and youth, such as (1) Opportunities and impediments to extending and enhancing integrated service model concepts like accountable care organizations (ACOs) to the pediatric population (2) Flexibilities and supports states and providers may need in order to offer such models of care to a state’s pediatric population and (3) Approaches for states and providers to coordinate Medicaid and CHIP benefits and waivers with other health-related social services for children and youth.” Click here to view the announcement.
10. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply.
11. NYT: Informed Patient? Don’t Bet on It
Dr. Mikkael Sekeres and Dr. Timothy Gilligan of the Cleveland Clinic discuss informed consent in a provocative new article in the New York Times. “We want to let you in on a secret… The secret is that informed consent in health care is commonly not-so-well informed. It might be a document we ask you to sign, at the behest of our lawyers, in case we end up in court if a bad outcome happens. Unfortunately, it’s often not really about informing you… Unfortunately the farce of informed consent only worsens in medical research. Before you can enroll in a clinical trial of a cancer drug, we’ll hand you a 25page document that describes the trial’s purpose, its design, the medications you’ll receive, other standard treatments, and the complications you may suffer. Oh, and we’ll tell you that you are responsible for any medical costs not covered by insurance or the trial sponsor. That’s for the lawyers, again. We will then ask you to sign the final page, acknowledging your understanding and your agreement to participate in the trial.”
“A fundamental challenge with this process is that it is often unrealistic to think that you actually could be fully informed of what you’re about to undergo. How can we explain to you the experience of having your chest cracked open, or what it feels like when you go through chemotherapy? Neither of us has undergone heart surgery, or treatment for cancer, and we don’t kid ourselves that any depiction of the experience we provide will be enough… We’ve seen too many patients regret decisions that they made without fully understanding their options, or the possible outcome. We encourage our patients, and our colleagues, to be partners in what are often lifechanging decisions about health care.” Click here to view the article.
12. Upcoming Events and Webinars
Lung Cancer Alliance Cocktail Reception
April 3, 2017
6:30-8:30 PM
Cullen Room at Busboys and Poets
1025 5th Street NW
Consortium for Citizens with Disabilities (CCD) Rights TF and The Protect the ADA Coalition Briefing on The Americans with Disabilities Act of 1990 (ADA)
April 4, 2017.
1:00 PM
2253 Rayburn House Office Building
Contact Dara Baldwin – [email protected] for more information.
PCORnet Best Practice Sharing Session: ABOUT GAP Tools
April 4, 2017
Click here for details.
National Quality Forum Annual Conference
April 4 – 5 2017
Click here for details.
Advisory Panel on Patient Engagement Spring 2017 Meeting
April 7, 2017
Click here for details.
Getting to Know PCORI: From Application to Closeout
April 10 - 11, 2017
Click here for details.
Triangle Comparative Effectiveness Research Symposium
April 11, 2017
Click here for details.
Cycle 1 2017 Improving Methods Applicant Town Hall
April 18, 2017
Click here for details.
Evaluating Patient Treatment Options: How Do We Know What Works Best?
April 18, 2017
Click here for details.
PCORI Funding Opportunities and Resources for Rare Disease Organizations
April 20, 2017
Click here for details.
Advisory Panel on Communication and Dissemination Research Spring 2017 Meeting
April 21, 2017
Click here for details.
PCORI Board of Governors Meeting
April 25, 2017
Click here for details.
Advisory Panel on Rare Disease Spring 2017 Meeting
April 26, 2017
Click here for details.
PCORI Peer Review Webinar for Awardees
May 4, 2017
Click here for details.
Integrating PROs in EHRs: Presentation of a Users' Guide and Discussion of Standardization
May 25-26, 2017
Click here for details.
ICER Orphan Drug Assessment and Pricing Summit
May 31, 2017
Click here for details.
13. Medical Journal Articles
Reducing Barriers to Medication Access and Adherence for ACA and Medicaid Participants: A Peer-to-Peer, Community-Based Approach, click here to view.
Impact of a Value-Based Formulary in Three Chronic Disease Cohorts, click here to view.
Association Between Choice of Radical Prostatectomy, External Beam Radiotherapy, Brachytherapy, or Active Surveillance and Patient-Reported Quality of Life Among Men With Localized Prostate Cancer, click here to view.
Big Data: Will It Improve Patient-Centered Care?, click here to view.
A Review of HIV-Specific Patient-Reported Outcome Measures, click here to view.
Impact of Measuring Patient-Reported Outcomes in Dermatology Drug Development, click here to view.
Outcomes in Child Health: Exploring the Use of Social Media to Engage Parents in Patient-Centered Outcomes Research, click here to view.
A Patient and Provider Research Agenda on Diabetes and Hypertension Management, click here to view.
Comparative effectiveness of dual-action versus single-action antidepressants for the treatment of depression in people living with HIV/AIDS, click here to view
Patient-Reported Outcomes Following Treatment for Localized Prostate Cancer: Helping Decision Making for Patients and Their Physicians, click here to view
Vital Directions for Health and Health Care: Priorities From a National Academy of Medicine Initiative, click here to view
Translating Comparative Effectiveness Research Into Practice: Effects of Interventions on Lifestyle, Medication Adherence, and Self-Care for Type 2 Diabetes, Hypertension, and Obesity Among Black, Hispanic, and Asian Residents of Chicago and Houston, 2010 to 2013, click here to view.
Maintaining Primacy of the Patient Perspective in the Development of Patient-Centered Patient Reported Outcomes, click here to view.
Value-Based Insurance Design Benefit Offsets Reductions In Medication Adherence Associated With Switch To Deductible Plan, click here to view.
Doxycycline Versus Prednisolone as an Initial Treatment Strategy for Bullous Pemphigoid: A Pragmatic, Non-Inferiority, Randomised Controlled Trial, click here to view.
14. AHRQ Effective Program Updates
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, click here to view.
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.
Treatments for Adults with Schizophrenia: A Systematic Review, click here to view.
Anxiety in Children, click here to view.
Patient Safety in Ambulatory Settings -- Disposition of Comments Report, click here to view.
Data Linkage Strategies To Advance Youth Suicide Prevention -- Disposition of Comments Report, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors -- Research Protocol, click here to view.
Obesity Prevention and Control -- Research Protocol, click here to view.
Telehealth for Acute and Chronic Care Consultations -- Research Protocol, click here to view.
In a new post on the PIPC Blog, college student Abigail Lore discusses the challenges of balancing diabetes management with academics. “I had 14 years of diabetes management under my belt when I was a freshman political science student at American University. I prepared and thought about my transition to college for weeks. I had registered with my school’s Academic Support and Access Center for accommodations, scoped out the dining hall offerings, and had the nerve-wracking talk with my roommate about the Emergency Glucagon Pen. But no level of preparation can prepare you for the ups and downs of having diabetes in college.”
“…Every diabetes patient is different, but for me, the hardest part of being at American were my blood sugar management and remembering to give insulin at mealtimes while balancing being a ‘regular college student.’ But more than that, what seemed next to impossible was figuring out the logistics of managing my diabetes supplies. This meant calculating when I had to reorder supplies, how long it would take to be shipped, and how long it would take to process through my university's package system – not to mention any appeals of prior authorizations I would have to facilitate over and over despite years of demonstrating the medical necessity of the supplies that work for me. It’s like having a double major, one in political science and one in diabetes supplies management.”
“…It is easy to feel defeated when you are surrounded by students performing at the best of their abilities. That’s especially true when you know if could just get access to your trusted insulin pump to spend more time in range, you too could feel that good, get those good grades, and land that prestigious internship. That is why comprehensive coverage for the diabetes equipment and supplies that work for each individual patient is vital, especially to college students.” Click here to view the blog post.
2. PCORI Blog: PCORI Projects Put Findings into Action
In a PCORI Blog post, Joanna Siegel, SM, ScD and Christopher Gayer, PhD touch on a new awards program within PCORI for researchers who want to take the next step in having their results influence care. “...As part of our efforts to ensure uptake of useful results in clinical practice, we have launched an awards program to enable teams that have completed a PCORI-funded research project to take the next step toward having their results influence care. These awards, which fund dissemination and implementation activities, help close the gap between research findings and use of that evidence in practice.” Click here to view the blog post.
3. Video: Susan A. Cantrell on the Evolution of Value Frameworks
Susan A. Cantrell appears in a video by The American Journal of Managed Care, noting that value frameworks are one tool that can be used to inform the formulary decision-making process, but transparency in the development of these frameworks is important. “...[W]e know that as far as we've seen, there's not one value framework out there that's perfect and so as these value frameworks continue to evolve, one thing that's important is that they follow principles that have been set out by other organizations—especially the National Pharmaceutical Council has done quite a bit of work in this area—and that they have transparency.” Click here to watch the video.
4. Moving AHRQ Into The NIH: New Beginning Or Beginning Of The End?
Andrew Bindman of Health Affairs Blog comments on the proposal to relocate AHRQ into the NIH. “...The proposal to relocate AHRQ within the NIH is a threatening change, but under the right conditions a reorganization could represent a new beginning with an opportunity to refocus within a larger new home. Organized under the NIH roof with a visible identity and appropriate funding, the reconstituted AHRQ could lead efforts on how to prioritize the allocation of resources for practice-based research and implementation science available throughout the NIH and through other federal investments.” Click here to view the article.
5. 5 Thoughts on Why Value Based Care Will Survive Partisanship Over Healthcare
In a Becker's Spine Review article, Laura Dyrda emphasizes that the value-based movement in healthcare is non-partisan. “While the ACA encouraged the transition toward value-based care, the value movement in healthcare is non-partisan, according to a URAC blog report. Here are five key notes from the report...4. The Medicare Advantage Value-Based Insurance Design Model piloted in several states has reduced costs for enrollees participating in disease management and medication adherence.” Click here to view the article.
6. Can Value-Based Purchasing Work with Pharmaceutical Companies?
Health Payer Intelligence ponders whether adding pharmaceutical companies to the value-based purchasing environment is the next horizon for accountable care. “...The move towards value-based drug contracts require payers and manufacturers to focus on monitoring and measuring quality and outcomes, not just the amount of product sold, in order to better align with the value-based care activities taking place in the care delivery market...[A]n investment in data infrastructure, that connects large national clinical data networks could streamline the information necessary to sustain value-based contracts. One existing example of these efforts is PCORnet, the research network developed PCORI.” Click here to view the article.
7. Califf to Head New Clinical Research Foundation
As BioCentury reports, Former FDA Commissioner Robert Califf will be chair of the newly created People-Centered Research Foundation (PCRF). The group was formed by investigators from the National Patient-Centered Clinical Research Network (PCORnet), which is operated by the Patient-Centered Outcomes Research Institute (PCORI), a publicly funded comparative effectiveness research organization. PCORI said Tuesday it will fund the foundation with up to $25.4 million. PCRF will support PCORnet's sustainability and "provide retrospective observational research using its data network, prospective research that collects new data from patients, and high-impact clinical trials," according to its website.
8. Guidelines for Designing Patient-Centered Research Initiatives
Patient Engagement HIT has the scoop on PCORI's Patient Engagement Rubric. “...PCORI created the [PCORI Engagement Rubric] to include the following: principles of engagement; definitions of stakeholder types; key considerations for planning, conducting, and disseminating engaged research; potential engagement activities; and examples of promising practices from PCORI-funded projects...‘[The Rubric] provides a practical resource that distills and prioritizes information from promising practices intended to systematically bring stakeholders into the research process in the most impactful way,’ the researchers said.” Click here to view the article.
9. CMS: Commenting Open on Pediatric Alternative Payment Model Opportunities
According to a recent CMS announcement, “input is being sought on approaches to improve the quality and reduce the cost of care for children and youth enrolled in Medicaid and CHIP. In particular, concepts are being explored that encourage pediatric providers to collaborate with health-related social service providers (e.g., early childhood development programs, child welfare services, and home and community based service providers) at the state and local levels and share accountability for health outcomes for children and youth enrolled in Medicaid and CHIP. Specifically, CMS seeks information from the broad community of child and youth-focused stakeholders on concepts critical to addressing the comprehensive health needs of children and youth, such as (1) Opportunities and impediments to extending and enhancing integrated service model concepts like accountable care organizations (ACOs) to the pediatric population (2) Flexibilities and supports states and providers may need in order to offer such models of care to a state’s pediatric population and (3) Approaches for states and providers to coordinate Medicaid and CHIP benefits and waivers with other health-related social services for children and youth.” Click here to view the announcement.
10. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply.
11. NYT: Informed Patient? Don’t Bet on It
Dr. Mikkael Sekeres and Dr. Timothy Gilligan of the Cleveland Clinic discuss informed consent in a provocative new article in the New York Times. “We want to let you in on a secret… The secret is that informed consent in health care is commonly not-so-well informed. It might be a document we ask you to sign, at the behest of our lawyers, in case we end up in court if a bad outcome happens. Unfortunately, it’s often not really about informing you… Unfortunately the farce of informed consent only worsens in medical research. Before you can enroll in a clinical trial of a cancer drug, we’ll hand you a 25page document that describes the trial’s purpose, its design, the medications you’ll receive, other standard treatments, and the complications you may suffer. Oh, and we’ll tell you that you are responsible for any medical costs not covered by insurance or the trial sponsor. That’s for the lawyers, again. We will then ask you to sign the final page, acknowledging your understanding and your agreement to participate in the trial.”
“A fundamental challenge with this process is that it is often unrealistic to think that you actually could be fully informed of what you’re about to undergo. How can we explain to you the experience of having your chest cracked open, or what it feels like when you go through chemotherapy? Neither of us has undergone heart surgery, or treatment for cancer, and we don’t kid ourselves that any depiction of the experience we provide will be enough… We’ve seen too many patients regret decisions that they made without fully understanding their options, or the possible outcome. We encourage our patients, and our colleagues, to be partners in what are often lifechanging decisions about health care.” Click here to view the article.
12. Upcoming Events and Webinars
Lung Cancer Alliance Cocktail Reception
April 3, 2017
6:30-8:30 PM
Cullen Room at Busboys and Poets
1025 5th Street NW
Consortium for Citizens with Disabilities (CCD) Rights TF and The Protect the ADA Coalition Briefing on The Americans with Disabilities Act of 1990 (ADA)
April 4, 2017.
1:00 PM
2253 Rayburn House Office Building
Contact Dara Baldwin – [email protected] for more information.
PCORnet Best Practice Sharing Session: ABOUT GAP Tools
April 4, 2017
Click here for details.
National Quality Forum Annual Conference
April 4 – 5 2017
Click here for details.
Advisory Panel on Patient Engagement Spring 2017 Meeting
April 7, 2017
Click here for details.
Getting to Know PCORI: From Application to Closeout
April 10 - 11, 2017
Click here for details.
Triangle Comparative Effectiveness Research Symposium
April 11, 2017
Click here for details.
Cycle 1 2017 Improving Methods Applicant Town Hall
April 18, 2017
Click here for details.
Evaluating Patient Treatment Options: How Do We Know What Works Best?
April 18, 2017
Click here for details.
PCORI Funding Opportunities and Resources for Rare Disease Organizations
April 20, 2017
Click here for details.
Advisory Panel on Communication and Dissemination Research Spring 2017 Meeting
April 21, 2017
Click here for details.
PCORI Board of Governors Meeting
April 25, 2017
Click here for details.
Advisory Panel on Rare Disease Spring 2017 Meeting
April 26, 2017
Click here for details.
PCORI Peer Review Webinar for Awardees
May 4, 2017
Click here for details.
Integrating PROs in EHRs: Presentation of a Users' Guide and Discussion of Standardization
May 25-26, 2017
Click here for details.
ICER Orphan Drug Assessment and Pricing Summit
May 31, 2017
Click here for details.
13. Medical Journal Articles
Reducing Barriers to Medication Access and Adherence for ACA and Medicaid Participants: A Peer-to-Peer, Community-Based Approach, click here to view.
Impact of a Value-Based Formulary in Three Chronic Disease Cohorts, click here to view.
Association Between Choice of Radical Prostatectomy, External Beam Radiotherapy, Brachytherapy, or Active Surveillance and Patient-Reported Quality of Life Among Men With Localized Prostate Cancer, click here to view.
Big Data: Will It Improve Patient-Centered Care?, click here to view.
A Review of HIV-Specific Patient-Reported Outcome Measures, click here to view.
Impact of Measuring Patient-Reported Outcomes in Dermatology Drug Development, click here to view.
Outcomes in Child Health: Exploring the Use of Social Media to Engage Parents in Patient-Centered Outcomes Research, click here to view.
A Patient and Provider Research Agenda on Diabetes and Hypertension Management, click here to view.
Comparative effectiveness of dual-action versus single-action antidepressants for the treatment of depression in people living with HIV/AIDS, click here to view
Patient-Reported Outcomes Following Treatment for Localized Prostate Cancer: Helping Decision Making for Patients and Their Physicians, click here to view
Vital Directions for Health and Health Care: Priorities From a National Academy of Medicine Initiative, click here to view
Translating Comparative Effectiveness Research Into Practice: Effects of Interventions on Lifestyle, Medication Adherence, and Self-Care for Type 2 Diabetes, Hypertension, and Obesity Among Black, Hispanic, and Asian Residents of Chicago and Houston, 2010 to 2013, click here to view.
Maintaining Primacy of the Patient Perspective in the Development of Patient-Centered Patient Reported Outcomes, click here to view.
Value-Based Insurance Design Benefit Offsets Reductions In Medication Adherence Associated With Switch To Deductible Plan, click here to view.
Doxycycline Versus Prednisolone as an Initial Treatment Strategy for Bullous Pemphigoid: A Pragmatic, Non-Inferiority, Randomised Controlled Trial, click here to view.
14. AHRQ Effective Program Updates
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, click here to view.
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.
Treatments for Adults with Schizophrenia: A Systematic Review, click here to view.
Anxiety in Children, click here to view.
Patient Safety in Ambulatory Settings -- Disposition of Comments Report, click here to view.
Data Linkage Strategies To Advance Youth Suicide Prevention -- Disposition of Comments Report, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors -- Research Protocol, click here to view.
Obesity Prevention and Control -- Research Protocol, click here to view.
Telehealth for Acute and Chronic Care Consultations -- Research Protocol, click here to view.
