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The PIPC Blog

PIPC Weekly Update: February 26, 2018

2/26/2018

 
Picture
In This Week’s Issue:
 
1. Chairman’s Corner: Changing the Culture of How We Pay for Care, click here to read the blog. 
2. The PCORI Blog: Which Provides Better Quality of Life: Surgical or Nonsurgical Aortic Valve Replacement? Click here to read the blog. 
3. FDA Public Meeting: Evaluating Inclusion and Exclusion Criteria in Clinical Trials, click here to register.  
4. Patient Engagement HIT: Patient-Centered Opioid Program Improves Patient Access to Care, click here to read the article.
5. Medical Xpress: Less Expensive, Post-Acute Care Options For Seniors Underutilized, click here to read the article.
6. Upcoming Events and Webinars, see details below.
7. Medical Journal Articles, see details below.
8. AHRQ Effective Program Updates, see details below.

1. Chairman’s Corner: Changing the Culture of How We Pay for Care
 
In his latest Chairman’s Corner Blog, PIPC Chairman Tony Coelho lauds the progress that has been made in the patient-centered care movement and outlines steps to ensure that the patient voice remains at the center of the healthcare debate. “I have seen tremendous progress in the patient-centeredness movement, particularly in changing the culture of medical research.  Yet, our leaders should know that we still have a long way to go to give patients, people with disabilities, veterans and caregivers a voice in how we deliver care that patients value.  They deserve a seat at the table in any discussion of health care policy, as well as meaningful opportunities to voice their unique and real experiences.”
 
“While progress has been made to advance a culture of care that is tailored to the individual, more must be done to advance reforms that facilitate access to care that patients value.  People will face substantial uncertainty in the next year accessing health insurance, which presents opportunities to do better as well as challenges. How policymakers address three critical issues will determine whether we continue progress toward care centered around patients and people with disabilities.” Click here to read the blog. 
 
2. The PCORI Blog: Which Provides Better Quality of Life: Surgical or Nonsurgical Aortic Valve Replacement?
 
A new PCORI Blog highlights a nonsurgical method to replace the aortic valve that turned out to be as safe as surgery and allowed more patients to go home from the hospital, rather than to a nursing home or rehabilitation facility. “Strong’s experience was unusual—most patients who undergo valve replacement are much older and recover more slowly. But her remarkable recovery and the gratitude she felt toward her doctors made her want to bring her voice as a patient to research and education about treatment for the condition. She became a patient partner on a PCORI-funded study led by J. Matthew Brennan, MD, a cardiologist at Duke University. The study compares the way she received her valve replacement with an older, more-common, surgical procedure on the heart. Both procedures are safe and effective, Brennan says, ‘but each has its own benefits and risks. We wanted to provide information that would help patients choose between them.’” Click here to read the blog. 
 
3. FDA Public Meeting: Evaluating Inclusion and Exclusion Criteria in Clinical Trials
 
The FDA is folding a public meeting on April 16 to discuss how to improve eligibility criteria for clinical trials to better represent the broader patient population and increase diversity. “Convened by the Duke-Robert J. Margolis, MD, Center for Health Policy at Duke University and supported by a cooperative agreement with FDA, this public event will bring the stakeholder community together to discuss a variety of topics related to eligibility criteria in clinical trials, their potential impact on patient access to investigational drugs, and how they might facilitate the enrollment of a diverse patient population. Other topics that will be addressed during the public meeting include alternative clinical trial designs that may increase enrollment of more diverse patient populations, as well as opportunities for using data from expanded access trials.” Click here to register.  
 
4. Patient Engagement HIT: Patient-Centered Opioid Program Improves Patient Access to Care
 
In Patient Engagement HIT, Sara Heath reports on a patient-centered opioid program that can reduce the amount of opioids chronic pain patients take while cutting out more expensive behavioral health specialists. “A patient-centric approach to opioid dosage tapering can reduce the need for behavioral health specialists, thus improving patient access to the often-costly process of weaning off opioid treatments, according to a research letter published in JAMA Internal Medicine. The healthcare industry is currently facing an imperative to reduce opioid use and potential misuse. In the midst of the opioid epidemic, medical professionals are attempting to reduce prescription and use of opioids to quell potential misuse. For patients with chronic pain, these attempts at reducing opioid prescriptions have included behavioral health counseling and opioid dosage tapering.” Click here to read the article.
 
5. Medical Xpress: Less Expensive, Post-Acute Care Options For Seniors Underutilized
 
An article in MedicalXpress highlights a PCORI study that examines less expensive long-term care options for long-term acute care. “Post-acute care is the single largest increase in and source of variation in Medicare spending nationally, and LTACs are the fastest growing and most expensive type of post-acute care. Researchers hope the findings in JAMA Internal Medicine highlight an opportunity to improve healthcare value by prompting doctors to consider transferring less ill patients to high-quality skilled nursing facilities that can still offer an appropriate and effective level of care.The study, based on national Medicare data from 2010 to 2012, also showed that certain regions of the country have far higher rates of LTAC use, in part because of differences in long-term acute care availability.”  Click here to read the article.
 
6. Upcoming Events and Webinars 
  
PCORI Board of Governors Meeting
February 27, 2018
Click here for details.
 
IBI Webinar on "Toward Better Value: Employer Perspectives on Managing Prescription Drug Benefits"
March 5, 2018
Click here for details.
 
PCORnet Best Practice Sharing Session – Lessons Learned in ADAPTABLE: Recruitment, Retention, and Endpoint Ascertainment
March 7, 2018
Click here for details.
 
Preventing and Treating America's Number One Killer: The Need for Evidence-Based Strategies in Cardiovascular Disease
March 14, 2018
Click here for details.
 
PCORI Board of Governors Meeting
March 20, 2018
Click here for details.
 
Advisory Panel on Rare Disease Spring 2018 Meeting
March 21, 2018
Click here for details.
 
Webinar: Health Care Coverage Challenges: New Treatments With High Upfront Costs, Long-term Benefits and Delayed Savings
March 29, 2018
Click here for details.
 
DIA 2018 Global Annual Meeting
June 24-28, 2018
Click here for details.
 
7. Medical Journal Articles
 
PCORnet's Collaborative Research Groups, click here to view. 
 
Increasing Uptake of Comparative Effectiveness and Patient-Centered Outcomes Research Among Stakeholders: Insights from Conference Discussion, click here to view. 
 
Comparative Effectiveness and Patient-Centered Outcomes Research: Enhancing Uptake and Use by Patients, Clinicians and Payers, click here to view. 
 
Comparative Effectiveness Research Requires Competitive Effectiveness, click here to view. 
 
What Parents of Children With Complex Medical Conditions Want Their Child’s Physicians to Understand, click here to view. 
 
PCORnet's Collaborative Research Groups, click here to view. 
 
Guidelines for Patient-Reported Outcomes in Clinical Trial Protocols, click here to view. 
 
Ensuring the Patient Voice in Quality: An Educational Program for Patient Groups and Advocates, click here to view. 
 
Patient-Reported Outcomes: Design with the End in Mind, click here to view. 
 
Beliefs, Critical Thinking and Evidence-Based Medicine, click here to view. 
 
Changes in patient-centered attitude and confidence in communicating with patients: a longitudinal study of resident physicians, click here to view. 
 
January Issue: Journal of Comparative Effectiveness Research, click here to view. 
 
Toward Patient-Centered Outcomes for Cognitive Evaluations: The Perspective of Those Affected by Parkinson's Disease, click here to view. 
 
Viewpoint: Funding Innovation in a Learning Health Care System, click here to view. 
 
Including the Patient Voice in Patient-Centered Outcomes Research in Integrative Oncology, click here to view. 
 
Patient and Provider Perspectives on Shared Decision Making: A Systematic Review of the Peer-Reviewed Literature, click here to view. 
 
Gene Therapy: Evidence, Value and Affordability in the US Health Care System, click here to view.  
 
8. AHRQ Effective Program Updates
 
Prioritization and Selection of Harms for Inclusion in Systematic Reviews, click here to view. 
 
Attention Deficit Hyperactivity Disorder: Diagnosis and Treatment in Children and Adolescents, click here to view. 
 
A Framework for Conceptualizing Evidence Needs of Health Systems, click here to view. 
 
Nonsurgical Treatments for Urinary Incontinence in Adult Women: A Systematic Review Update, click here to view. 
 
Drug Therapy for Early Rheumatoid Arthritis: A Systematic Review Update, click here to view. 
 
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors, click here to view. 
 
Management of Insomnia Disorder - Consumer and Clinician Summaries, click here to view
 
Harms of First-Line Depression Treatment in Older Adults, click here to view. 
 
Management of Renal Masses and Localized Renal Cell Carcinoma: Current State of the Evidence - Clinician Summary, click here to view. 
​

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