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The PIPC Blog

PIPC Weekly Update - January 13, 2014

1/13/2014

 
In This Week’s Issue
1. PCORI Hires AHRQ Director to Head Communication and Dissemination Efforts, click here to view the press release.
2. PCORI Director Joe Selby: Network Will Aid Effectiveness Studies, click here to view the blog post (subscription required).
3. MedPage Today: Is a Single Patient Representative in a Group Sufficient?, click here to view the article.
4. AHRQ Director Richard Kronick: “We coordinate very closely with PCORI…”, click here to view the entire interview
5. American College of Surgeons: Patient-Centered Outcomes Research: Is this Really Something New?, click here to view the article.
1. PCORI Hires AHRQ Director to Head Communication and Dissemination Efforts
According to a recent press release, “Jean Slutsky, PA, MSPH, will join the Patient-Centered Outcomes Research Institute as Director of PCORI’s Communication and Dissemination Research Program. She comes to PCORI from the U.S. Agency for Healthcare Research and Quality (AHRQ) where she has directed the Center for Outcomes and Evidence since 2003. In her new role at PCORI, Slutsky will be responsible for leading a program that has committed more than $43 million to research on how to most effectively communicate and disseminate research results among patients, caregivers, clinicians and other critical health and healthcare decision-makers. With her arrival on Monday, Feb. 17, PCORI will have senior leaders for all six of its scientific programs.”  Click here to view the press release.

​2. PCORI Director Joe Selby: Network Will Aid Effectiveness Studies

In a guest blog post in Modern Healthcare, PCORI’s Executive Director Dr. Joe Selby recently wrote, “Once the network is fully connected, in about 18 months, it will support a variety of large-scale studies. Of greatest importance to PCORI are pragmatic clinical trials that are affordable and sufficiently large to examine subgroup differences in treatment effectiveness...By funding research today and building capacity for greater research tomorrow, we're using our investments in comparative effectiveness research to improve the volume and usability of information available to the healthcare community—and create a sustainable national research infrastructure.” Click here to view the blog post (subscription required).

3. MedPage Today: Is a Single Patient Representative in a Group Sufficient?

Dr. Jessie Gruman, founder and president of the Center for Advancing Health, recently commented on MedPage Today’s KevinMD.com, “Efforts are currently underway by PCORI to develop research skills among patients so that they are able to participate in the grant review process. This work extends the pioneering efforts of the Department of Defense and the National Breast Cancer Coalition that have been successful in building a cadre of potential patient reviewers and patient advocates. While these skills are critical for some forms of patient representation, none of these approaches offer the equal opportunity for patient representatives to gain critical knowledge about the range of experiences we — infants, kids, teens, adults, older people, rich, poor, insured, underinsured, Vietnamese, Puerto Rican, educated, non-literate — face in finding health care and making good use of it.” Click here to view the article.

4. AHRQ Director Richard Kronick: “We coordinate very closely with PCORI…”

Dr. Richard Kronick is the new director of the Agency for Healthcare Research and Quality at HHS, succeeding Dr. Carolyn Clancy, who held the position for nearly a decade. Modern Healthcare recently sat down for an interview with Dr. Kronick who said, “We coordinate very closely with our colleagues at PCORI. I and many staff members are in frequent contact with staff at PCORI. You know the statute provides some help in understanding the prospective roles of PCORI and AHRQ. PCORI's primary role is to conduct patient-centered outcomes research to try to figure out whether treatment A works better than treatment B. And AHRQ's primary roles are in dissemination, training and development of methods to conduct this outcomes research. And the first priority that I discussed outlines a way in which we would use the resources from the Patient-Centered Outcomes Research Trust Fund for a major initiative to test what effective methods of dissemination of patient-centered outcomes research would be.” Click here to view the entire interview

5. American College of Surgeons: Patient-Centered Outcomes Research: Is this Really Something New?

Dr. Caprice Greenberg, Dr. George J. Chang, and Dr. Heidi Nelson, recently commented in the Bulletin of the American College of Surgeons, “These studies represent an important new approach to research—one in which patients and providers together identify the most pressing research questions… Furthermore, a major challenge exists in translating knowledge generated by research into clinical practice. By addressing the cancer care delivery research question that is the most relevant to patients and their providers and refining the study design based on stakeholder input we hope to improve the relevance of both the research question and the study outcomes to maximize the potential for incorporation into daily practice… Over the next few years, we can anticipate a continued increase in the support and focus on health services research, including patient-centered outcomes, comparative effectiveness, and cancer care delivery research.” Click here to view the article.


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