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  • Home
  • About
    • Mission and Priorities
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    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
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    • International
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    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
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      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
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      • ICER SCD Webinar
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The PIPC Blog

PIPC Weekly Update - June 12, 2017

6/12/2017

 
In This Week’s Issue:
 
1. PIPC Patient Blog: Andrew Sperling, National Alliance on Mental Illness, click hereto read the blog.
2. Chairman Coelho: Patient Engagement: The CHRONIC Care Act, CMMI, and the Future, click here to read the blog.
3. PIPC Outlines Concerns with ISPOR's Value Assessment Frameworks Initiative,click here to read the letter.
4. Healthcare Finance: Racial and ethnic disparities remain consistent at Veterans Health Administration patient-centered medical homes, click here to read the article.
5. AMJC Video: Dr. L. Patrick James Discusses the Continued Move Toward Value-Based Payments, click here to watch the video.
6. PhRMA: Modernizing FDA Regulations to Advance a Value-Driven Health Care System, click here to read the article. 
7. Modern Healthcare: House Lawmakers Ask How Medicare Can Manage Complex Patients Better, click here to read the article.   
8. Hepatitis C Mentor and Support Group Releases Psychological Survey Results,click here to read the report.
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability Click here to apply. 
10. Upcoming Events and Webinars, see details below
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.
1. PIPC Patient Blog: Andrew Sperling, National Alliance on Mental Illness
 
PIPC’s latest patient blog features Andrew Sperling from the National Alliance on Mental Illness. Mr Sperling provides his perspective on the importance of value frameworks in healthcare, and offers his concerns about ICER’s direction. “When organizations conducting value assessments initiate their work without engaging patients in the development of their fundamental research questions, we worry about its ultimate impact on affected patients.  Without the perspective of patients at the table, the real-life benefits and risks of treatment that matter to patients cannot be identified and measured.  Ultimately, if value is not measured from the patient’s perspective, patient access to important or necessary treatments could be impeded.”
 
“While we may worry that the design of ICER’s proposed review for [tardine dyskinesia] TD treatments will result in limited access to potentially promising therapies, we also know that organizations like PIPC, National Health Council, FasterCures, National Patient Advocate Foundation and others are working diligently on patient-centered value frameworks that are aligned with what matters to patients. Moving forward, we hope that ICER will follow PIPC’s lead to make value to the patient the top priority.” Click here to read the blog. 
 
2. Chairman Coelho: Patient Engagement: The CHRONIC Care Act, CMMI, and the Future
 
PIPC Chairman Tony Coelho wrote a new blog for HuffPost, complimenting steps that are being taken that show progress in shifting toward value-based healthcare decisions. “While a tremendous amount of work remains to be done, policymakers took two steps recently that show progress is possible. One was approval by the Senate Finance Committee of the CHRONIC Care Act, a bipartisan bill (yes, they still exist!) whose success is attributable to significant stakeholder engagement and that, if enacted, will help to meet real patient needs.”
 
“We’ve also cheered regulators’ increasing responsiveness to the needs of patients. For example, the Department of Health and Human Services (HHS) recently signaled a small but important step in the right direction when they announced the creation of a patient ombudsman to help promote patient perspectives in Medicare’s shift towards alternative payment models (APMs). The new Alternative Payment Models Beneficiary Ombudsman will play an essential role in helping Medicare beneficiaries understand and navigate new “value-based” payment models developed through the Center for Medicare and Medicaid Innovation (CMMI).” Click here  to read the blog.
 
3. PIPC Outlines Concerns with ISPOR's Value Assessment Frameworks Initiative. 
 
Last week, Partnership to Improve Patient Care (PIPC) Chairman Tony Coelho submitted a letter to the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) Chief Science Officer Richard Willke outlining “strong” concerns about the recent draft of a U.S. Value Assessment Frameworks initiative led by ISPOR. In the letter, Chairman Coelho expresses disappointment with ISPOR’s recommendations, noting that they “do not reflect advancement as indicated to be ISPOR’s mission.” “We understand the challenge of assessing value in health care in a manner that is centered on the characteristics, needs and preferences of the individual patient versus defining value based on what is cost effective for an ‘average’ patient, and appreciate that the work that the ISPOR Special Task Force on Value Assessment has undertaken is difficult,” wrote Chairman Coelho. “That said, we have significant concerns regarding the recommendations that ISPOR outlines in its draft report.” Click here to read the letter. 
 
 
4. Healthcare Finance: Racial and ethnic disparities remain consistent at Veterans Health Administration patient-centered medical homes
 
Jeff Lagasse touches on the issue of racial inequity in patient-centered medical homes forHealthcare Finance. “The research, published in Health Affairs, began by examining data from 2009, which is when the Veterans Health Administration, a part of the Department of Veterans Affairs, began implementing patient-centered medical homes on a national scale -- what's known as the Patient Aligned Care Team Initiative. In that year, all groups -- African Americans, Native Americans, Hispanics, Asians and Pacific Islanders -- lagged behind caucasians when it came to care quality.” Click here to read the article.
 
 
5. AMJC Video: Dr L. Patrick James Discusses the Continued Move Toward Value-Based Payments
 
The American Journal of Managed Care released a new video featuring Dr. L Patrick James, who notes that the forces pushing the country toward value-based care will continue regardless of who is in control of Washington. “I attended some sessions yesterday at AHIP [Institute & Expo] and Dr Patrick Conway, chief medical officer of CMS, he avoided talking about what is going on politically right now, but he just reaffirmed that there's just so many things underway now in terms of the forces driving this. If Secretary Price has certain opinions about that, they certainly would get debated and aired in the political forum, but I think many people believe—I heard it over and over again yesterday, too, whether it was Joe Swedish of Anthem or Dr Eric Topol or former Governor Mike Leavitt—I think most experts in the area and all of us in the trenches, feel like these forces will continue. There may be some bumps along the road, but it's probably going to continue because the forces are so strong.” Click here to watch the video.
 
6. PhRMA: Modernizing FDA Regulations to Advance a Value-Driven Health Care System
 
Michelle Drozd comments on the FDA’s push for more value-driven regulations.   “...Allowing for broader communication from biopharmaceutical companies to payers and health care providers about the most current, accurate and comprehensive information available on FDA-approved and investigational medicines can help these key stakeholders make more informed decisions for the benefit of patients. It can also support the move toward value-based contracts for pharmaceuticals by allowing the conversations needed to get to those contracts.” Click here to read the article. 
 
7. Modern Healthcare: House Lawmakers Ask How Medicare Can Manage Complex Patients Better
 
Mara Lee notes that lawmakers probed on how Medicare can manage complex patients better in a Ways and Means subcommittee hearing last week in Modern Healthcare.  “...The other approach discussed was allowing Medicare Advantage plans to charge different co-pays to different groups of patients for certain services, or use co-pays to steer patients to higher-quality providers. Dr. Mark Fendrick, director of University of Michigan's Center for Value-Based Insurance Design, said Congress should give insurers that authority beyond a pilot program. He also suggested lawmakers give insurers the option to reduce or eliminate cost-sharing for people with chronic diseases who are cooperating in a disease management program.” Click here to read the article. 
 
8. Hepatitis C Mentor and Support Group Releases Psychological Survey Results
 
 
The Hepatitis C Mentor and Support Group released its findings from its recent Psychological Survey. “Aside from the physical effects surrounding Hepatitis C, the psychological effects on patients, family, and friends have been overlooked. The Hepatitis C Mentor and Support Group recently conducted a survey focusing on just that. These emotional effects include but are not limited to depression, sadness, denial, worthlessness, anger, stress, a feeling of helplessness, guilt, anxiety and so many more. During this survey HCMSG received hundreds of compelling testimony from those affected, directly and indirectly. HCV does not discriminate.” Click here to read the report. 
 
 
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
 
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply. 
 
10. Upcoming Events and Webinars
 
 
Webinar: Oncology Clinical Pathways: Making Treatment Decisions in the Era of Patient-Centered, Personalized Cancer Care
June 12, 2017
Click here for details.
 
Key Evidence Gaps in Insomnia Research: Can CER Help Answer Questions About Chronic Insomnia? A PCORI Stakeholder Workshop
June 13, 2017
Click here for details.
 
Hidden Figures - The Value of Outcome Data Transparency
June 13, 2017
Click here for details.
 
Webinar: Revamping Value Analysis: Exploring an Evidence-based, Single-source Solution
June 13, 2017
Click here for details.
 
PCORI Board of Governors Meeting
June 20, 2017
Click here for details.
 
Awardee Progress Reporting Webinar
June 21, 2017
Click here for details.
 
HHS Federal Partners Integrated Care Meeting
June 22-23, 2017
Click here for details.
 
PCORI at AcademyHealth's Annual Research Meeting 2017
June 25-27, 2017
Click here for details.
 
Eugene Washington PCORI Engagement Awards: Key Information and Updates
June 27, 2017
Click here for details.
 
Bonnie: An eCQM Testing Tool.
June 28, 2017
Click here for details.
 
PCORI Dissemination & Implementation Funding Opportunities Webinar
July 11, 2017
Click here for details.
 
Introduction to HEOR: Principles and Practice in Health Care Decision Making
October 5-8
Click here for details.
 
2017 PCORI Annual Meeting
October 31-November 2
Click here for details.
 
11. Medical Journal Articles
 
Delivery of Meaningful Cancer Care: A Retrospective Cohort Study Assessing Cost and Benefit with the ASCO and ESMO Frameworks, click here to view. 
 
Harmonizing Health Technology Assessment Practices in University Hospitals: To What Extent Is the Mini-HTA Model Suitable in the French Context?, click here to view.
 
Developments in Value Frameworks to Inform the Allocation of Healthcare Resources, clickhere to view.
 
Real-World Effectiveness of Antipsychotic Treatments in a Nationwide Cohort of 29,823 Patients With Schizophrenia, click here to view.
 
Comparative Effectiveness of Oral Antiplatelet Agents in Patients with Acute Coronary Syndrome, click here to view. 
 
The Value of Pragmatic and Observational Studies in Health Care and Public Health, click hereto view.
 
From Evidence-Based Medicine to Personalized Medicine, with Particular Emphasis on Drug-Safety Monitoring, click here to view.
 
Impact of a Value-Based Insurance Design for Physical Therapy to Treat Back Pain on Care Utilization and Cost, click here to view.
 
Value-Based Insurance Design Pharmacy Benefits for Children and Youth With Special Health Care Needs: Principles and Opportunities, click here to view.
 
Refining Our Understanding of Value-Based Insurance Design and High Cost Sharing on Children, click here to view.
 
Optimization of Medication Use at Accountable Care Organizations, click here to view. 
 
Effect of Bevacizumab vs Aflibercept on Visual Acuity Among Patients With Macular Edema Due to Central Retinal Vein Occlusion: The SCORE2 Randomized Clinical Trial, click here to view.
 
Why Patients Should Be Involved in Health Technology Assessment, click here to view.
 
Health Care Professionals' Attitudes Towards Evidence-based Medicine in the Workers' Compensation Setting: A Cohort Study, click here to view 
 
Why Value Framework Assessments Arrive at Different Conclusions: A Multiple Myeloma Case Study, click here to view.
 
Laboratory Formulary: A Model for High-Value Evidence-Based Medicine, click here to view. 
 
Lower Risk of Heart Failure and Death in Patients Initiated on SGLT-2 Inhibitors Versus Other Glucose-Lowering Drugs: The CVD-REAL Study, click here to view. 
 
Has Evidence-Based Medicine Ever Been Modern? A Latour-Inspired Understanding of a Changing EBM, click here to view. 
 
‘Pragmatic' and ‘Explanatory' Attitudes to Randomized Trials, click here to view.
 
 
12. AHRQ Effective Program Updates
 
Nonsurgical Treatments for Urinary Incontinence in Adult Women: A Systematic Review Update -- Research Protocol, click here to view. 
 
Drug Therapy for Early Rheumatoid Arthritis in Adults – An Update -- Research Protocol, clickhere to view.
 
Psychological and Pharmacological Treatments for Adults with Posttraumatic Stress Disorder (PTSD): A Systematic Review Update -- Research Protocol, click here to view 
 
Tympanostomy Tubes in Children with Otitis Media -- Final Report, click here to view 
 
Treatment of Osteoarthritis of the Knee: An Update Review -- Final Report, click here to view. 
 
Assessment Tools for Palliative Care -- Final Report, click here to view. 
 
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
 
The Role of Immunotherapy in the Treatment of Asthma, click here to view
 
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
 
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, clickhere to view.
 
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
 
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
 
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
 
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.

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