In This Week’s Issue:
1. Alliance for Aging Research: Promoting Wellness in Older Adults with Mental Illnesses and Substance Use Disorders: Call to Action to All Stakeholders, click here to read the white paper.
2. Request for Comment: AHRQ Library of Patient-Centered Outcomes Research Resources, click here for details.
3. PCORI Podcast: Asking Questions, Researching Answers to Help Improve Medical Care, click here to listen to the podcast.
4. Video: It All Starts with Patient Engagement, click here to watch the video.
5. Patient EngagementHIT: Walgreens, Humana Partner for Senior Patient Access to Care, click here to read the article.
6. HealthTech Magazine: How Telemedicine Helps Healthcare Organizations Improve Patient Engagement and Satisfaction, click here to read the article.
7. FDA Meeting for Patient-Focused Drug Development on Chronic Pain, click here to register.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
1. Alliance for Aging Research: Promoting Wellness in Older Adults with Mental Illnesses and Substance Use Disorders: Call to Action to All Stakeholders, click here to read the white paper.
2. Request for Comment: AHRQ Library of Patient-Centered Outcomes Research Resources, click here for details.
3. PCORI Podcast: Asking Questions, Researching Answers to Help Improve Medical Care, click here to listen to the podcast.
4. Video: It All Starts with Patient Engagement, click here to watch the video.
5. Patient EngagementHIT: Walgreens, Humana Partner for Senior Patient Access to Care, click here to read the article.
6. HealthTech Magazine: How Telemedicine Helps Healthcare Organizations Improve Patient Engagement and Satisfaction, click here to read the article.
7. FDA Meeting for Patient-Focused Drug Development on Chronic Pain, click here to register.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
1. Alliance for Aging Research: Promoting Wellness in Older Adults with Mental Illnesses and Substance Use Disorders: Call to Action to All Stakeholders
The American Journal of Geriatric Psychiatry has published a white paper co-authored by the Susan Peschin of the Alliance for Aging Research and Dilip Jeste of the Stein Institute that summarizes the current state of knowledge on specific mental illness and substance abuse concerns in older Americans, identifies research gaps, and presents recommendations for health education and public policy. “While there is no one answer for every disease, individualized and person-centered care will have the greatest impact in promoting wellness and longevity. The take-home message is that, while there is still much work to be done, there are many actions that communities, clinicians, and families can take right now to help ensure the latter years of their loved one’s lives are spent in happiness, not hopelessness.” Click here to read the white paper.
2. Request for Comment: AHRQ Library of Patient-Centered Outcomes Research Resources
AHRQ is seeking feedback from researchers, clinicians, policymakers, consumers, and others on its comprehensive Web-based Library of Patient-Centered Outcomes Research (PCOR) resources. “Feedback will be used to assess and potentially revise the layout, design, and content of the library of resources. The library, developed through investments by public, private, nonprofit, and academic organizations, includes PCOR findings and evidence-based tools that have appeared in the published literature, as well as studies and projects in progress. As outlined in a recent Federal Register notice, AHRQ seeks input on how well the library of PCOR resources and its materials meet the needs of users.” Click here for details. Deadline: Friday June 29, 2018.
3. PCORI Podcast: Asking Questions, Researching Answers to Help Improve Medical Care
In an episode of “HealthLink on Air” PCORI Executive Director Joe Selby sat down for a discussion on PCORI’s patient engagement strategies during the research process. “Patients, health care providers and medical insurers are among the groups who may have a question about medical care that cannot be answered with existing research. The Patient-Centered Outcomes Research Institute tackles such questions. The institute's executive director, Joe Selby, MD, explains how the organization's research works to involve and benefit the doctors, patients, caregivers and others affected by a particular medical issue.” Click here to listen to the podcast.
4. Video: It All Starts with Patient Engagement
Ellie Dohoney discusses how her organization, Research!America, focuses on patient engagement in their work. “I think patient engagement actually is the starting point for our efforts at Research!America. If you think about what determines value in medical progress, its relevance. So, it comes back to what serves a patient? What’s in the best interest of them in terms of place, time, location, and impact." Click here to watch the video.
5. Patient EngagementHIT: Walgreens, Humana Partner for Senior Patient Access to Care
In an article for Patient EngagementHIT, Sara Health reports a new partnership between Walgreens and Humana that seeks to drive patient access to care and other wellness services for Medicare beneficiaries. “The clinics will approach patient care using a holistic, patient-centric model. Clinicians aim to move past acute clinical care and work to support chronic disease management. Providers will be tasked with building strong patient-provider relationships that allow providers to deliver targeted, person-centered care to patients. The care sites will also deliver patient outreach and education services. Each clinic will host Humana employees who will work on healthcare navigation, conduct diabetes tests, or identify local support groups for patients. These efforts are aimed at delivering a holistic care experience, Walgreens and Humana asserted. These clinics will not necessarily look like a typical retail clinic, but instead will serve as a medical home for patients.” Click here to read the article.
6. HealthTech Magazine: How Telemedicine Helps Healthcare Organizations Improve Patient Engagement and Satisfaction
In an article for HealthTech Magazine, Brian Eastwood notes that virtual visits don’t just save time, they improve patient quality of life and create more meaningful clinician connections. “Telemedicine technology is already at work improving the patient and provider experience in many innovative organizations. At the Cleveland Clinic, the telemedicine program encompasses a wide range of technology — from connected devices to virtual visits to remote imaging transfers — which are used inside the hospital and in a patient’s home, says Dr. Peter Rasmussen, the organization’s medical director of distance health. ‘The Cleveland Clinic has four pillars of operations: patient access, the patient experience, patient safety and patient retention,’ he says. ‘Telemedicine helps us in all of those regards. We believe that every caregiver can use some kind of digital tech in care delivery.’ For the Cleveland Clinic, Nemours and other healthcare organizations, telemedicine can play a key role in improving both patient engagement — the extent to which patients participate in their own care — as well as patient satisfaction — the degree to which patients recommend an organization’s services. Click here to read the article.
7. FDA Meeting for Patient-Focused Drug Development on Chronic Pain
The FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain on July 9. “FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for chronic pain. FDA is particularly interested in hearing from patients who experience chronic pain that is managed with analgesic medications such as opioids, acetaminophen, nonsteroidal anti-inflammatory drugs (NSAIDs), antidepressants; other medications; and non-pharmacologic interventions or therapies. The questions that will be asked of patients and patient representatives at the meeting are listed below, organized by topic. For each topic, a brief initial patient panel discussion will begin the dialogue. This will be followed by a facilitated discussion inviting comments from other patients and patient representatives in the audience. Webcast participants will also have an opportunity to provide input through webcast comments.” Click here to register.
8. Upcoming Events and Webinars
NPC @ AcademyHealth 2018 Annual Research Meeting
June 24-26, 2018
Click here for details.
DIA 2018 Global Annual Meeting
June 24-28, 2018
Click here for details.
Webinar: Barriers to Paying for Value
June 26, 2018
Click here for details
Why is Mental Health Research Important? A Twitter Chat with Research!America
June 27, 2018
Click here for details
Putting Patients at the Center of Research: Opportunities and Challenges for Ethical and Regulatory Oversight
June 29, 2018
Click here for details
Implementation of Effective Shared Decision Making Approaches in Practice Settings (Cycle 2 2018 PFA) Applicant Town Hall
July 11, 2018
Click here for details.
NPC @ MedCity CONVERGE
July 11-12, 2018
Click here for details.
Examining the Impact of Real-World Evidence on Medical Development: Application
July 17, 2018
Click here for details.
9. Medical Journal Articles
Stakeholder-Driven, Consensus Development Methods to Design an Ethical Framework and Guidelines for Engaged Research, clickhere to view.
The Effect of Medical Technology Innovations on Patient Outcomes, 1990-2015: Results of a Physician Survey, click here to view.
The Impact of Individual Patient Data in a Network MetaAnalysis: An Investigation into Parameter Estimation and Model Selection, click here to view.
Patient Similarity for Precision Medicine: A Systematic Review, click here to view.
Multi-Stakeholder Engagement in Health Services Research, click here to view.
Care Transitions From Patient and Caregiver Perspectives, click here to view.
Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind? Click here to view.
A Framework for Identifying Treatment-Covariate Interactions in Individual Participant Data Network Meta-Analysis, click here to view.
Nursing Research, CER, PICO and PCORI, click here to view.
Comment & Response: Measures of the Burden of Medical Expenses, click here to view.
A New Framework for Patient Engagement in Cancer Clinical Trials Cooperative Group Studies, click here to view.
Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research, click here to view.
Missing Data in Trial-Based Cost-Effectiveness Analysis: An Incomplete Journey, click here to view.
Effectiveness and Safety of Direct Oral Anticoagulants and Warfarin, Stratified by Stroke Risk in Patients with Atrial Fibrillation, click here to view.
Patient-Centered Recruitment and Retention for a Randomized Controlled Study, click here to view.
Pharmaceutical Benefit Managers, Brand-Name Drug Prices, and Patient Cost Sharing, click here to view.
10. AHRQ Effective Program Updates
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Registries for Evaluating Patient Outcomes: A User’s Guide Call for Case Examples, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
Mobile Health Applications for Self-Management of Diabetes, click here to view.
Role of Immunotherapy in the Treatment of Asthma, click here to view.
Library of Common Data Definitions: Atrial Fibrillation, click here to view.
Library of Common Data Definitions: Asthma, click here to view.
Patient or Participant Generated Registries, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors, click here to view.
Prioritization and Selection of Harms for Inclusion in Systematic Reviews, click here to view.
Attention Deficit Hyperactivity Disorder: Diagnosis and Treatment in Children and Adolescents, click here to view.
A Framework for Conceptualizing Evidence Needs of Health Systems, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Adult Women: A Systematic Review Update, click here to view.
Drug Therapy for Early Rheumatoid Arthritis: A Systematic Review Update, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors, click here to view.
The American Journal of Geriatric Psychiatry has published a white paper co-authored by the Susan Peschin of the Alliance for Aging Research and Dilip Jeste of the Stein Institute that summarizes the current state of knowledge on specific mental illness and substance abuse concerns in older Americans, identifies research gaps, and presents recommendations for health education and public policy. “While there is no one answer for every disease, individualized and person-centered care will have the greatest impact in promoting wellness and longevity. The take-home message is that, while there is still much work to be done, there are many actions that communities, clinicians, and families can take right now to help ensure the latter years of their loved one’s lives are spent in happiness, not hopelessness.” Click here to read the white paper.
2. Request for Comment: AHRQ Library of Patient-Centered Outcomes Research Resources
AHRQ is seeking feedback from researchers, clinicians, policymakers, consumers, and others on its comprehensive Web-based Library of Patient-Centered Outcomes Research (PCOR) resources. “Feedback will be used to assess and potentially revise the layout, design, and content of the library of resources. The library, developed through investments by public, private, nonprofit, and academic organizations, includes PCOR findings and evidence-based tools that have appeared in the published literature, as well as studies and projects in progress. As outlined in a recent Federal Register notice, AHRQ seeks input on how well the library of PCOR resources and its materials meet the needs of users.” Click here for details. Deadline: Friday June 29, 2018.
3. PCORI Podcast: Asking Questions, Researching Answers to Help Improve Medical Care
In an episode of “HealthLink on Air” PCORI Executive Director Joe Selby sat down for a discussion on PCORI’s patient engagement strategies during the research process. “Patients, health care providers and medical insurers are among the groups who may have a question about medical care that cannot be answered with existing research. The Patient-Centered Outcomes Research Institute tackles such questions. The institute's executive director, Joe Selby, MD, explains how the organization's research works to involve and benefit the doctors, patients, caregivers and others affected by a particular medical issue.” Click here to listen to the podcast.
4. Video: It All Starts with Patient Engagement
Ellie Dohoney discusses how her organization, Research!America, focuses on patient engagement in their work. “I think patient engagement actually is the starting point for our efforts at Research!America. If you think about what determines value in medical progress, its relevance. So, it comes back to what serves a patient? What’s in the best interest of them in terms of place, time, location, and impact." Click here to watch the video.
5. Patient EngagementHIT: Walgreens, Humana Partner for Senior Patient Access to Care
In an article for Patient EngagementHIT, Sara Health reports a new partnership between Walgreens and Humana that seeks to drive patient access to care and other wellness services for Medicare beneficiaries. “The clinics will approach patient care using a holistic, patient-centric model. Clinicians aim to move past acute clinical care and work to support chronic disease management. Providers will be tasked with building strong patient-provider relationships that allow providers to deliver targeted, person-centered care to patients. The care sites will also deliver patient outreach and education services. Each clinic will host Humana employees who will work on healthcare navigation, conduct diabetes tests, or identify local support groups for patients. These efforts are aimed at delivering a holistic care experience, Walgreens and Humana asserted. These clinics will not necessarily look like a typical retail clinic, but instead will serve as a medical home for patients.” Click here to read the article.
6. HealthTech Magazine: How Telemedicine Helps Healthcare Organizations Improve Patient Engagement and Satisfaction
In an article for HealthTech Magazine, Brian Eastwood notes that virtual visits don’t just save time, they improve patient quality of life and create more meaningful clinician connections. “Telemedicine technology is already at work improving the patient and provider experience in many innovative organizations. At the Cleveland Clinic, the telemedicine program encompasses a wide range of technology — from connected devices to virtual visits to remote imaging transfers — which are used inside the hospital and in a patient’s home, says Dr. Peter Rasmussen, the organization’s medical director of distance health. ‘The Cleveland Clinic has four pillars of operations: patient access, the patient experience, patient safety and patient retention,’ he says. ‘Telemedicine helps us in all of those regards. We believe that every caregiver can use some kind of digital tech in care delivery.’ For the Cleveland Clinic, Nemours and other healthcare organizations, telemedicine can play a key role in improving both patient engagement — the extent to which patients participate in their own care — as well as patient satisfaction — the degree to which patients recommend an organization’s services. Click here to read the article.
7. FDA Meeting for Patient-Focused Drug Development on Chronic Pain
The FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain on July 9. “FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for chronic pain. FDA is particularly interested in hearing from patients who experience chronic pain that is managed with analgesic medications such as opioids, acetaminophen, nonsteroidal anti-inflammatory drugs (NSAIDs), antidepressants; other medications; and non-pharmacologic interventions or therapies. The questions that will be asked of patients and patient representatives at the meeting are listed below, organized by topic. For each topic, a brief initial patient panel discussion will begin the dialogue. This will be followed by a facilitated discussion inviting comments from other patients and patient representatives in the audience. Webcast participants will also have an opportunity to provide input through webcast comments.” Click here to register.
8. Upcoming Events and Webinars
NPC @ AcademyHealth 2018 Annual Research Meeting
June 24-26, 2018
Click here for details.
DIA 2018 Global Annual Meeting
June 24-28, 2018
Click here for details.
Webinar: Barriers to Paying for Value
June 26, 2018
Click here for details
Why is Mental Health Research Important? A Twitter Chat with Research!America
June 27, 2018
Click here for details
Putting Patients at the Center of Research: Opportunities and Challenges for Ethical and Regulatory Oversight
June 29, 2018
Click here for details
Implementation of Effective Shared Decision Making Approaches in Practice Settings (Cycle 2 2018 PFA) Applicant Town Hall
July 11, 2018
Click here for details.
NPC @ MedCity CONVERGE
July 11-12, 2018
Click here for details.
Examining the Impact of Real-World Evidence on Medical Development: Application
July 17, 2018
Click here for details.
9. Medical Journal Articles
Stakeholder-Driven, Consensus Development Methods to Design an Ethical Framework and Guidelines for Engaged Research, clickhere to view.
The Effect of Medical Technology Innovations on Patient Outcomes, 1990-2015: Results of a Physician Survey, click here to view.
The Impact of Individual Patient Data in a Network MetaAnalysis: An Investigation into Parameter Estimation and Model Selection, click here to view.
Patient Similarity for Precision Medicine: A Systematic Review, click here to view.
Multi-Stakeholder Engagement in Health Services Research, click here to view.
Care Transitions From Patient and Caregiver Perspectives, click here to view.
Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind? Click here to view.
A Framework for Identifying Treatment-Covariate Interactions in Individual Participant Data Network Meta-Analysis, click here to view.
Nursing Research, CER, PICO and PCORI, click here to view.
Comment & Response: Measures of the Burden of Medical Expenses, click here to view.
A New Framework for Patient Engagement in Cancer Clinical Trials Cooperative Group Studies, click here to view.
Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research, click here to view.
Missing Data in Trial-Based Cost-Effectiveness Analysis: An Incomplete Journey, click here to view.
Effectiveness and Safety of Direct Oral Anticoagulants and Warfarin, Stratified by Stroke Risk in Patients with Atrial Fibrillation, click here to view.
Patient-Centered Recruitment and Retention for a Randomized Controlled Study, click here to view.
Pharmaceutical Benefit Managers, Brand-Name Drug Prices, and Patient Cost Sharing, click here to view.
10. AHRQ Effective Program Updates
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Registries for Evaluating Patient Outcomes: A User’s Guide Call for Case Examples, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
Mobile Health Applications for Self-Management of Diabetes, click here to view.
Role of Immunotherapy in the Treatment of Asthma, click here to view.
Library of Common Data Definitions: Atrial Fibrillation, click here to view.
Library of Common Data Definitions: Asthma, click here to view.
Patient or Participant Generated Registries, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors, click here to view.
Prioritization and Selection of Harms for Inclusion in Systematic Reviews, click here to view.
Attention Deficit Hyperactivity Disorder: Diagnosis and Treatment in Children and Adolescents, click here to view.
A Framework for Conceptualizing Evidence Needs of Health Systems, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Adult Women: A Systematic Review Update, click here to view.
Drug Therapy for Early Rheumatoid Arthritis: A Systematic Review Update, click here to view.
Effects of Dietary Sodium and Potassium Intake on Chronic Disease Outcomes and Related Risk Factors, click here to view.
