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The PIPC Blog

PIPC Weekly Update - June 9, 2014

6/9/2014

 
In This Week’s Issue:
1. PCORI and NIH Announce Major Study of Patient-Centered Approach to Preventing Fall-Related Injuries in Older Adults, click here to view the press release, click here to view the KHN article.
2. The New England Journal of Medicine: Learning From Big Health Care Data, click here to view the article.
3. PMLiVE: Lilly Joins Clinical Data Sharing Effort, click here to view the article.
4. Bloomberg BNA: Clinical Researchers Exploring New Sources of Patient Health Data, click here to view the story (subscription required).  
1. PCORI and NIH Announce Major Study of Patient-Centered Approach to Preventing Fall-Related Injuries in Older Adults
Last week, The Patient-Centered Outcomes Research Institute (PCORI) and the National Institute on Aging (NIA) of the National Institutes of Health (NIH) announced “a five-year, $30 million national study of the effectiveness of a multi-pronged strategy that includes deploying nurses or nurse practitioners trained as “falls care managers” to provide older adults with individually tailored, evidence-based care plans to help them avoid falls and related injuries.
​
“The award funded by PCORI and made by NIA as part of a first of its kind partnership between the nonprofit institute and the federal agency will support a uniquely patient-centered approach to reducing rates of fall-related injuries among non-institutionalized older adults. The study will be led by several of the country’s leading geriatric experts and conducted in collaboration with older individuals, family caregivers, and other stakeholder partners who will contribute to all phases of the research. Patients, stakeholders, nurses, and primary care physicians will play key roles as partners in implementing the tailored care approach.” Click here to view the press release.

Susan Jaffe of Kaiser Health News commented on the government’s planned study, “While previous studies have identified those older adults most at risk for serious falls and how to prevent them in an experimental setting, Dr. Richard Hodes, director of the National Institute on Aging, said this new research goes several steps further. ‘We think this study will be unique and play a very critical role in taking the research that has existed to date and translating it to a real advantage to the public,’ he said.” Click here to view the article.

2. The New England Journal of Medicine: Learning From Big Health Care Data

Late last week, Dr. Sebastian Schneeweiss of The New England Journal of Medicine wrote about PCORnet’s promise of improved outcomes for patients. “Randomized studies embedded in routine care that assess patient outcomes by means of electronic medical record databases are cost-effective and reduce residual imbalances in patient characteristics at the start of a study. The Patient Centered Outcomes Research Institute recently launched a major initiative to build a nationwide network of health care systems that will use their infrastructure for such pragmatic randomized trials.” Click here to view the article.

3. PMLiVE: Lilly Joins Clinical Data Sharing Effort

Writing for PMLiVE, Phil Taylor reported last week on a leading pharmaceutical company that will be contributing to the recent big data effort.  “Eli Lilly has become the latest pharma company to provide data from clinical trials to a portal that provides anonymised patient-level data on request to qualified researchers. [...] Lilly said it has started sharing data on approved medicines with the portal to ‘increase access to and transparency of clinical trial results with researchers around the world,’ and says it will phase out its existing site at lillyclinicalstudydata.com.” Click here to view the article.  

4. Bloomberg BNA: Clinical Researchers Exploring New Sources of Patient Health Data

Bloomberg BNA’s Alex Ruoff described in an article where data sets for PCORnet will be coming from.  “In 2014, PCORI unveiled its plan for PCORnet, a national network for conducting clinical outcomes research designed as a resource for storing and gathering real-time data collected by researchers and clinicians at various health-care organizations. [...] PCORnet will eventually share data with 11 clinical data networks, health-care systems that have agreed to share EHR data with researchers, and 18 ‘patient-powered networks’ that are operated and governed by groups of consumers willing to share their own health information, [Rachael Fleurence, program director for the Comparative Effectiveness Research (CER) Methods and Infrastructure Program at PCORI] said.” Click here to view the story (subscription required).

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