In This Week’s Issue:
1. Washington Post: She Thought She’d Pulled Hip Muscles, But Six Doctors Couldn’t Diagnose Her Pain, Click here to read the article.
2. Health Affairs: A Consumer-Centered Framework For Quality: How Do We Get There From Here? Click here to read the blog.
3. PCORnetJoins Forces with Sentinel to Link Data for More Robust Public Health Research, Click here to read the press release.
4. BioPharma DIVE: Can Value-Based Deals Work If Patients Don't Take the Drug? Click here to read the article.
5. Morning Consult: Senate Panel Approves Bill Revamping Medicare for Chronically Ill Patients. Click here to read the article.
6. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, Click here to apply.
7. Upcoming Events and Webinars, see details below
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below.
1. Washington Post: She Thought She’d Pulled Hip Muscles, But Six Doctors Couldn’t Diagnose Her Pain, Click here to read the article.
2. Health Affairs: A Consumer-Centered Framework For Quality: How Do We Get There From Here? Click here to read the blog.
3. PCORnetJoins Forces with Sentinel to Link Data for More Robust Public Health Research, Click here to read the press release.
4. BioPharma DIVE: Can Value-Based Deals Work If Patients Don't Take the Drug? Click here to read the article.
5. Morning Consult: Senate Panel Approves Bill Revamping Medicare for Chronically Ill Patients. Click here to read the article.
6. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, Click here to apply.
7. Upcoming Events and Webinars, see details below
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below.
1. Washington Post: She Thought She’d Pulled Hip Muscles, But Six Doctors Couldn’t Diagnose Her Pain
Sandra Boodman published a piece in The Washington Post highlighting the importance of effective patient-doctor communication. “Because of the duration and impact of Karp’s symptoms and because her scans showed no sign of arthritis — which would require a hip replacement — Wolff proposed reconstructing both labra with tissue from a cadaver and smoothing the femoral head to ensure a proper fit. Karp said that when Wolff told her what was wrong and that her problem was fixable, she felt a mixture of disbelief and excitement. ‘ remember calling my husband on the way out of the office,’ she said. After getting a second opinion, Karp scheduled surgery with Wolff, who performs the 2½ -hour outpatient procedure about 300 times annually. She underwent surgery on her left hip in January; her right hip was fixed in early March. ‘She’s done fantastic,’ Wolff said. ‘The most common thing we see is people trying to push themselves too hard and too quickly’ after surgery.” Click here to read the article.
2. Health Affairs: A Consumer-Centered Framework For Quality: How Do We Get There From Here?
Ann Hwang notes in a Health Affairs blog that when it comes to healthcare, consumers aren’t able to easily able to obtain the few, key summative, consumer-facing measures that could help them understand the quality of their care. “...With sufficient resources and training, consumer leaders and advocates could help the quality measurement enterprise by shaping the creation of a slate of consumer-oriented measures, as well as to push for their implementation and use. It's time for a new paradigm in quality measure development, one that focuses on generating consumer-centered measures, rather than proliferating ever more measures of production.” Click here to read the blog.
3. PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research
Last Thursday, PCORnet announced it was teaming up with Sentinel to promote a more robust public health data network. “...‘We are delighted to be teaming up with the FDA, the Sentinel Initiative, and Reagan-Udall Foundation for this exciting and promising initiative that speaks to the future of patient-centered research and PCORnet's value with researchers and other stakeholders,’ said Joe Selby, M.D., M.P.H., executive director of PCORI. ‘Collaborations like this will be essential if we're going to transform traditional clinical research, conduct definitive studies, and put people and other healthcare stakeholders in the driver's seat to enable better informed healthcare decisions.’” Click here to read the press release.
4. BioPharma DIVE: Can Value-Based Deals Work If Patients Don't Take the Drug?
Ned Pagliarulo reports on one of the most persistent challenges in drug marketing: ensuring patients correctly adhere to their prescription regimens. “...Deals tying adherence to payment, though, have motivated some payers to develop more innovative approaches to identify which patients are most likely to be non-adherent...‘Adherence is a great value,’ said Steve Miller, chief medical officer of Express Scripts, to BioPharma Dive. ‘We put a guarantee around it. It made us innovate. We developed predictive models around adherence for hepatitis C.’” Click here to read the article.
5. Morning Consult: Senate Panel Approves Bill Revamping Medicare for Chronically Ill Patients
Jon Reid reports in Morning Consult on the value-based insurance design promoted in new legislation out of the Senate Finance Committee. “The Senate Finance Committee on Thursday unanimously advanced legislation aimed at improving care for people with chronic illnesses...Under the legislation, Medicare Advantage plans in all states would be allowed to test a new payment model from the Centers for Medicare and Medicaid Services called value-based insurance design, which gives companies financial incentives to be more efficient.” Click here to read the article.
PIPC provided comments to the Committee about the bill on January 29, 2016. Click here to view.
6. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply.
7. Upcoming Events and Webinars
Awardee Progress Reporting Webinar
May 24, 2017
Click here for details.
Where Medicaid Stands: From the AHCA to State Waivers
May 24, 2017
Click here for details.
Advisory Panel on Assessment of Prevention, Diagnosis, and Treatment Options Spring 2017 Meeting
May 25, 2017
Click here for details.
Integrating PROs in EHRs: Presentation of a Users' Guide and Discussion of Standardization
May 25-26, 2017
Click here for details.
Facebook Live & Periscope Q&A: Arthritis Awareness Month
May 30, 2017
Click here for details.
ICER: Orphan Drug Assessment and Pricing Summit
May 31, 2017
Click here for details.
Webinar: Observational Research: Gathering Evidence in the 21st Century
June 1, 2017
Click here for details.
Examples from the Field (TENTATIVE Outreach Series)
June 7, 2017
Click here for details.
PCORI Board of Governors Meeting
June 20, 2017
Click here for details.
Eugene Washington PCORI Engagement Awards: Key Information and Updates
June 27, 2017
Click here for details.
Introduction to HEOR: Principles and Practice in Health Care Decision Making
October 5-8
Click here for details.
2017 PCORI Annual Meeting
October 31-November 2
Click here for details.
8. Medical Journal Articles
Laboratory Formulary: A Model for High-Value Evidence-Based Medicine, click here to view.
Lower Risk of Heart Failure and Death in Patients Initiated on SGLT-2 Inhibitors Versus Other Glucose-Lowering Drugs: The CVD-REAL Study, click here to view.
Has Evidence-Based Medicine Ever Been Modern? A Latour-Inspired Understanding of a Changing EBM, click here to view.
‘Pragmatic' and ‘Explanatory' Attitudes to Randomized Trials, click here to view.
Methods and Impact of Engagement in Research, from Theory to Practice and Back Again: Early Findings from the Patient-Centered Outcomes Research Institute, click here to view.
Enhancing Comparative Effectiveness Research With Automated Pediatric Pneumonia Detection in a Multi-Institutional Clinical Repository: A PHIS+ Pilot Study, click here to view.
The Influence of Time Horizon on Results of Cost-Effectiveness Analyses, click here to view.
A Longitudinal Analysis of Data Quality in a Large Pediatric Data Research Network, click here to view.
Effect of Bevacizumab vs Aflibercept on Visual Acuity Among Patients With Macular Edema Due to Central Retinal Vein Occlusion: The SCORE2 Randomized Clinical Trial, click here to view.
May Issue: Journal of Comparative Effectiveness Research, click here to view.
A Real-World Approach to Evidence-Based Medicine in General Practice: A Competency Framework Derived from a Systematic Review and Delphi Process, click here to view.
Comparative Effectiveness of Prostate Cancer Treatments for Patient-Centered Outcomes: A Systematic Review and Meta-Analysis (PRISMA Compliant), click here to view.
AMCP Partnership Forum: Driving Value and Outcomes in Oncology, click here to view.
Real-World Evidence and the Behavioral Economics of Physician Prescribing, click here to view.
Verification of Decision-Analytic Models for Health Economic Evaluations: An Overview, click here to view
Design and Baseline Data from a PCORI-Funded Randomized Controlled Trial of Family-Centered Tailoring of Diabetes Self-Management Resources, click here to view.
9. AHRQ Effective Program Updates
Tympanostomy Tubes in Children with Otitis Media -- Final Report, click here to view
Treatment of Osteoarthritis of the Knee: An Update Review -- Final Report, click here to view.
Assessment Tools for Palliative Care -- Final Report, click here to view.
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
The Role of Immunotherapy in the Treatment of Asthma, click here to view
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, clickhere to view.
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.
Treatments for Adults with Schizophrenia: A Systematic Review, click here to view.
Anxiety in Children, click here to view.
Patient Safety in Ambulatory Settings -- Disposition of Comments Report, click here to view.
Sandra Boodman published a piece in The Washington Post highlighting the importance of effective patient-doctor communication. “Because of the duration and impact of Karp’s symptoms and because her scans showed no sign of arthritis — which would require a hip replacement — Wolff proposed reconstructing both labra with tissue from a cadaver and smoothing the femoral head to ensure a proper fit. Karp said that when Wolff told her what was wrong and that her problem was fixable, she felt a mixture of disbelief and excitement. ‘ remember calling my husband on the way out of the office,’ she said. After getting a second opinion, Karp scheduled surgery with Wolff, who performs the 2½ -hour outpatient procedure about 300 times annually. She underwent surgery on her left hip in January; her right hip was fixed in early March. ‘She’s done fantastic,’ Wolff said. ‘The most common thing we see is people trying to push themselves too hard and too quickly’ after surgery.” Click here to read the article.
2. Health Affairs: A Consumer-Centered Framework For Quality: How Do We Get There From Here?
Ann Hwang notes in a Health Affairs blog that when it comes to healthcare, consumers aren’t able to easily able to obtain the few, key summative, consumer-facing measures that could help them understand the quality of their care. “...With sufficient resources and training, consumer leaders and advocates could help the quality measurement enterprise by shaping the creation of a slate of consumer-oriented measures, as well as to push for their implementation and use. It's time for a new paradigm in quality measure development, one that focuses on generating consumer-centered measures, rather than proliferating ever more measures of production.” Click here to read the blog.
3. PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research
Last Thursday, PCORnet announced it was teaming up with Sentinel to promote a more robust public health data network. “...‘We are delighted to be teaming up with the FDA, the Sentinel Initiative, and Reagan-Udall Foundation for this exciting and promising initiative that speaks to the future of patient-centered research and PCORnet's value with researchers and other stakeholders,’ said Joe Selby, M.D., M.P.H., executive director of PCORI. ‘Collaborations like this will be essential if we're going to transform traditional clinical research, conduct definitive studies, and put people and other healthcare stakeholders in the driver's seat to enable better informed healthcare decisions.’” Click here to read the press release.
4. BioPharma DIVE: Can Value-Based Deals Work If Patients Don't Take the Drug?
Ned Pagliarulo reports on one of the most persistent challenges in drug marketing: ensuring patients correctly adhere to their prescription regimens. “...Deals tying adherence to payment, though, have motivated some payers to develop more innovative approaches to identify which patients are most likely to be non-adherent...‘Adherence is a great value,’ said Steve Miller, chief medical officer of Express Scripts, to BioPharma Dive. ‘We put a guarantee around it. It made us innovate. We developed predictive models around adherence for hepatitis C.’” Click here to read the article.
5. Morning Consult: Senate Panel Approves Bill Revamping Medicare for Chronically Ill Patients
Jon Reid reports in Morning Consult on the value-based insurance design promoted in new legislation out of the Senate Finance Committee. “The Senate Finance Committee on Thursday unanimously advanced legislation aimed at improving care for people with chronic illnesses...Under the legislation, Medicare Advantage plans in all states would be allowed to test a new payment model from the Centers for Medicare and Medicaid Services called value-based insurance design, which gives companies financial incentives to be more efficient.” Click here to read the article.
PIPC provided comments to the Committee about the bill on January 29, 2016. Click here to view.
6. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply.
7. Upcoming Events and Webinars
Awardee Progress Reporting Webinar
May 24, 2017
Click here for details.
Where Medicaid Stands: From the AHCA to State Waivers
May 24, 2017
Click here for details.
Advisory Panel on Assessment of Prevention, Diagnosis, and Treatment Options Spring 2017 Meeting
May 25, 2017
Click here for details.
Integrating PROs in EHRs: Presentation of a Users' Guide and Discussion of Standardization
May 25-26, 2017
Click here for details.
Facebook Live & Periscope Q&A: Arthritis Awareness Month
May 30, 2017
Click here for details.
ICER: Orphan Drug Assessment and Pricing Summit
May 31, 2017
Click here for details.
Webinar: Observational Research: Gathering Evidence in the 21st Century
June 1, 2017
Click here for details.
Examples from the Field (TENTATIVE Outreach Series)
June 7, 2017
Click here for details.
PCORI Board of Governors Meeting
June 20, 2017
Click here for details.
Eugene Washington PCORI Engagement Awards: Key Information and Updates
June 27, 2017
Click here for details.
Introduction to HEOR: Principles and Practice in Health Care Decision Making
October 5-8
Click here for details.
2017 PCORI Annual Meeting
October 31-November 2
Click here for details.
8. Medical Journal Articles
Laboratory Formulary: A Model for High-Value Evidence-Based Medicine, click here to view.
Lower Risk of Heart Failure and Death in Patients Initiated on SGLT-2 Inhibitors Versus Other Glucose-Lowering Drugs: The CVD-REAL Study, click here to view.
Has Evidence-Based Medicine Ever Been Modern? A Latour-Inspired Understanding of a Changing EBM, click here to view.
‘Pragmatic' and ‘Explanatory' Attitudes to Randomized Trials, click here to view.
Methods and Impact of Engagement in Research, from Theory to Practice and Back Again: Early Findings from the Patient-Centered Outcomes Research Institute, click here to view.
Enhancing Comparative Effectiveness Research With Automated Pediatric Pneumonia Detection in a Multi-Institutional Clinical Repository: A PHIS+ Pilot Study, click here to view.
The Influence of Time Horizon on Results of Cost-Effectiveness Analyses, click here to view.
A Longitudinal Analysis of Data Quality in a Large Pediatric Data Research Network, click here to view.
Effect of Bevacizumab vs Aflibercept on Visual Acuity Among Patients With Macular Edema Due to Central Retinal Vein Occlusion: The SCORE2 Randomized Clinical Trial, click here to view.
May Issue: Journal of Comparative Effectiveness Research, click here to view.
A Real-World Approach to Evidence-Based Medicine in General Practice: A Competency Framework Derived from a Systematic Review and Delphi Process, click here to view.
Comparative Effectiveness of Prostate Cancer Treatments for Patient-Centered Outcomes: A Systematic Review and Meta-Analysis (PRISMA Compliant), click here to view.
AMCP Partnership Forum: Driving Value and Outcomes in Oncology, click here to view.
Real-World Evidence and the Behavioral Economics of Physician Prescribing, click here to view.
Verification of Decision-Analytic Models for Health Economic Evaluations: An Overview, click here to view
Design and Baseline Data from a PCORI-Funded Randomized Controlled Trial of Family-Centered Tailoring of Diabetes Self-Management Resources, click here to view.
9. AHRQ Effective Program Updates
Tympanostomy Tubes in Children with Otitis Media -- Final Report, click here to view
Treatment of Osteoarthritis of the Knee: An Update Review -- Final Report, click here to view.
Assessment Tools for Palliative Care -- Final Report, click here to view.
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
The Role of Immunotherapy in the Treatment of Asthma, click here to view
Preventing Complications and Treating Symptoms of Diabetic Peripheral Neuropathy -- Final Report, click here to view.
Systematic Review of Intermittent Inhaled Corticosteroids and of Long-acting Muscarinic Antagonists for Asthma, clickhere to view.
Interventions to Prevent Age-Related Cognitive Decline, Mild Cognitive Impairment, and Clinical Alzheimer's-Type Dementia -- Final Report, click here to view
First- and Second-Generation Antipsychotics in Children and Young Adults: Systematic Review Update -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Disposition of Comments, click here to view.
Physiologic Predictors of the Need for Trauma Center Care: A Systematic Review -- Research Protocol, click here to view.
Treatments for Adults with Schizophrenia: A Systematic Review, click here to view.
Anxiety in Children, click here to view.
Patient Safety in Ambulatory Settings -- Disposition of Comments Report, click here to view.
