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    • MFN/IPI Webinar 2025
    • QALY Panel
    • QALY Briefing
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      • C & GT Webinar
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      • Value Our Health Briefing
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The PIPC Blog

PIPC Weekly Update - October 6, 2014

10/6/2014

 
In This Week’s Issue:
1. PIPC Chairman Coelho To Moderate Panel at National Conference on Cancer, click here to register for the conference and here to view the blog post.
2. American Institute for Research: Roadmap for Patient & Family Engagement in Healthcare, click here to download the Roadmap and register for the Tuesday webinar.
3. PCORI Board Approves $102 Million in Support for 46 New Research Projects, Bloomberg Reports, click here for the PCORI press release and here to view the Bloomberg article (subscription required).
4. PCORI: See How Patients, Researchers, and Clinicians Are Working Together to Improve Care and Outcomes, click here to view the full post.
5. MedCity News: This Is Why Clinicians Need to Partner With Patients Instead of Seeing Them as Subjects, click here to view the full article.  
6. NEJM: Swimming Against the Current — What Might Work to Reduce Low-Value Care? Click here to view the full article.
7. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research, click here to view the post.
8. The American Journal of Managed Care: Reforming the Healthcare Delivery System, click here to view the full article.
9. WSJ: Design Power: Patients Play Researchers in Drug Trials, click here to view the article.
10. PCORI at Age Four: What We've Achieved and Where We're Headed, click here to view the full post.
11. Health Affairs Blog: The Payment Reform Landscape: Value-Oriented Payment Jumps, And Yet … Click here to view the full article. 
12. PCORI, AHRQ Announce Research Team Selected to Compare Treatments for Uterine Fibroids, click here for the full press release.
​1. Chairman Coelho To Moderate Panel at National Conference on Cancer
This week, PIPC Chairman Tony Coelho will be moderating a panel for the 2014 national conference, Turning The Tide Against Cancer Through Sustained Medical Innovation.  The session will focus on patient-centeredness and include key stakeholders in the cancer community on October 9th in Washington, D.C., "Take part in panel discussions that explore potential policy solutions addressing the challenge of sustaining progress against cancer. In the video below, PMC President Edward Abrahams, Ph.D., sets the stage for the Conference by discussing two of its key themes -- patient-centered care and value in the health care system, not just cost."  Click here to register for the conference.

​Chairman Coelho was also featured in the organization’s blog, The Age of Personalized Medicine. “The rapid pace of medical innovation in oncology is increasing our ability to provide more personalized, patient-centered care (based on their biomarkers, quality of life considerations, etc.). Achieving more efficient delivery of high quality care will require continued medical innovation, including development of new treatments, improvements to existing treatments, and increasing efficiencies in the delivery system that support higher quality care and an overall a reduction in the economic and health burden of disease. But innovation is worthless without access to it.”  Click here for the full blog post.

2. American Institute for Research: Roadmap for Patient & Family Engagement in Healthcare

Hosting a free webinar on Tuesday the 7th, the American Institutes for Research will explain their recent project, The Roadmap for Patient and Family Engagement in Healthcare Practice and Research. "[The Roadmap] provides a unified, strategic approach to patient and family engagement in direct care, organization design, and research and policy. Informed by the input of over 70 individuals and 60 organizations, the Roadmap was developed by the Gordon and Betty Moore Foundation in conjunction with the American Institutes for Research." Click hereto download the Roadmap and register for the webinar.

3. PCORI Board Approves $102 Million in Support for 46 New Research Projects, Bloomberg Reports

In a press release early last week, “The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved 46 new proposals, totaling nearly $102 million, to fund a wide range of patient-centered clinical comparative clinical effectiveness research (CER) projects. The new awards include support for studies focused on two high-impact topics — obesity and the challenges of making smooth transitions as patients move from a hospital to home.” Click here for the full press release.

And Michael D. Williamson of Bloomberg BNA reported, “‘Through its Improving Healthcare Systems program, PCORI has awarded $14.9 million to support a study that will identify which combination of transitional care services improve[s] outcomes that matter most to patients and their caregivers as they leave the hospital and return to their homes,’ it said. Mark V. Williams of the University of Kentucky will lead the transitional care services study.” Click here to view the article (subscription required).

4. PCORI: See How Patients, Researchers, and Clinicians Are Working Together to Improve Care and Outcomes

Susan Sheridan, Director of PCORI’s Patient Engagement, commented in a blog post, “Patients are increasingly becoming active partners in both their own care and efforts to improve the healthcare system. We are learning that this involvement can result in more effective and efficient care and better outcomes. To illustrate this powerful new resource, we provided support to Health Affairs, as part of our support for their 2013 theme issue on patient engagement, to produce three videos about how this engagement is contributing to healthcare decisions and improved care.” Click here to view the full post.

5. MedCity News: This Is Why Clinicians Need to Partner With Patients Instead of Seeing Them as Subjects

MedCity News’ Stephanie Baum makes the case for patient-centeredness; “The desire by patients to take control of their data combined with the growth of personalized medicine raises an interesting question? What's the best way for doctors to give patients genetic test results?...Those issues are at the heart of two Patient-Centered Outcomes Research Institute grant-funded projects at Geisinger Health System and Johns Hopkins University Schools of Medicine. A panel at ENGAGE offered a glimpse of some ways in which clinicians can work with patients to make some headway on some of these complex medical dilemmas.” Click here to view the full article.  

6. NEJM: Swimming Against the Current — What Might Work to Reduce Low-Value Care?

Last week in The New England Journal of Medicine, “Patient cost sharing in commercial insurance has been increasing, but it can diminish use of low-value care in a targeted way only if patients are given enough support to make good decisions. In contrast to cost sharing that is undiscriminating, value-based insurance benefits are designed to communicate to consumers distinctions between high- and low-value services. This benefit structure has been shown to boost use of effective care when out-of-pocket costs are lowered.” Click here to view the full article.

7. PCORI: What Our Workshop Participants Are Teaching Us about Patient-Centered Research

Recently, Kristen Konopka, PCORI's Senior Program Associate for Engagement, commented in the agency’s blog, “To date, nearly 200 participants, or 35 percent of those who attended our five regional workshops, have responded to the six-month follow-up survey. We know these responses don't necessarily reflect the experiences of all participants, and that those who responded may be more likely to be currently involved in supporting PCOR than those we didn't hear from. However, the surveys still provide valuable information and inspiring stories.” Click here to view the post.

8. The American Journal of Managed Care: Reforming the Healthcare Delivery System

Laura Joszt reported last week in The American Journal of Managed Care, “[Dr. Patrick Conway, CMS] announced that CMS is likely going to put out a request for information for health plan innovation.[…] ‘We're thinking about things like plan design, including but not limited to value-based insurance design; thinking about care delivery issues, like telehealth and hospice; we're thinking about beneficiary and provider engagement, and are there ways we can adjust to allow you to achieve higher quality and lower cost for beneficiaries,’ Dr. Conway said.” Click here to view the full article.

9. WSJ: Design Power: Patients Play Researchers in Drug Trials

In the Wall Street Journal last week, Amy Dockser Marcus, reported, “A driving force in the effort to make patients equal partners in designing clinical trials is a nonprofit group called the Patient-Centered Outcomes Research Institute, or PCORI.[…] ‘What patients really bring is the relevance of the research. Is this really meaningful to the patient community?’ says Susan Sheridan, director of patient engagement at PCORI.” Click here to view the article.

10. PCORI at Age Four: What We've Achieved and Where We're Headed

Executive Director Joe Selby wrote a post for the PCORI Blog last week. “This coming year will see us start to harness the potential of PCORnet, our collaboration of research networks based in both large health systems and patient groups. Our goal is to use the power of large sets of healthcare data, under policies developed with the help of patients, to enable more rapid and cost-effective clinical research.” Click here to view the full post. 

11. Health Affairs Blog: The Payment Reform Landscape: Value-Oriented Payment Jumps, And Yet … 

Suzanne Delbanco commented in Health Affairs Blog last week, “Today, Catalyst for Payment Reform (CPR) unveiled some potentially exciting news: Our 2014 National Scorecard on Payment Reform tells us 40 percent of commercial sector payments to doctors and hospitals now flow through value-oriented payment methods, defined as payment methods designed to improve quality and reduce waste.  This is a dramatic increase since 2013 when the figure was just 11 percent.” Click here to view the full article.

12. PCORI, AHRQ Announce Research Team Selected to Compare Treatments for Uterine Fibroids 

PCORI also announced last week, “‘Having little evidence on uterine fibroids therapies' comparative effectiveness means that women, their families, and their clinicians face significant uncertainties when deciding on a course of treatment,’ said PCORI Executive Director Joe Selby, MD, MPH. ‘We are pleased to partner with AHRQ on supporting research on this important patient-centered topic. And we are also very pleased with the selection of a very able research team led by Dr. Myers that will carry out this large project,’ he added.” Click here for the full press release.

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