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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
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    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
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    • Roundtables
    • White Papers
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    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
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The PIPC Blog

PIPC Weekly Update - September 13, 2013

9/13/2013

 
In This Week’s Issue:
1. Roll Call: PIPC Chairman: Patients Will Compare Treatment Options, as Long as They Are Pertinent to Them, click here to view the article.
2. PCORI Approves $114 Million for Patient-Centered Outcomes Research, click here to view the press release.
3. PCORI Awards $9 Million Contract to Harvard Group to Coordinate National Patient-Centered Clinical Research Network, click here to view the press release.
4. PCORI Blog: Strength is in the Networks: Memphis Regional Engagement Workshop, click here to view the article.
5. Forbes: Can We Save Money And Lives With More Accessible Patient Health Information?, click here to view the column.
1. Roll Call: PIPC Chairman: Patients Will Compare Treatment Options, as Long as They Are Pertinent to Them
In an opinion article published in Roll Call, PIPC Chairman Tony Coelho discusses how patients will compare treatment options utilizing the results of comparative effectiveness research. Chairman Coelho writes, "central to this mission is doing research on the questions that matter to patients, engaging patients and physicians in their decision-making and communicating research findings in a way that helps doctors and patients make good health care decisions."  He goes on to say, “Although PCORI initially adopted a funding process similar to other federal agencies, it is a significant step in the right direction that PCORI is shifting research funding toward topics that are driven by patients and clinical experts through advisory panels and by convening stakeholders in roundtables. This is the kind of research that patients and providers are most likely to use, if communicated effectively.”  Click here to view the article.

​2. PCORI Approves $114 Million for Patient-Centered Outcomes Research

The Patient-Centered Outcomes Research Institute (PCORI) has approved 71 awards, totaling more than $114 million over three years, to fund comparative clinical effectiveness research (CER). According to a press release from PCORI, “All 71 projects were approved by the Board pending completion of a business and programmatic review by PCORI staff and completion of a formal award contract. ‘These studies were selected from among hundreds of applications for their scientific rigor and their potential to fill important information gaps and help patients and their caregivers make more informed decisions about their care,’ said PCORI Executive Director Joe Selby, MD, MPH.” Click here to view the press release.

3. PCORI Awards $9 Million Contract to Harvard Group to Coordinate National Patient-Centered Clinical Research Network

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors has selected a consortium led by the Harvard Pilgrim Health Care Institute to serve as the Coordinating Center for the National Patient-Centered Clinical Research Network.  In a press release, PCORI writes, “The Coordinating Center will provide technical and logistical support to the proposed new National Patient-Centered Clinical Research Network. The initiative's goal is to improve the nation's capacity to conduct CER efficiently and learn from the healthcare experiences of millions of Americans by creating a large network of health data representative of patients from across the country.” Click here to view the press release.

4. PCORI Blog: Strength is in the Networks: Memphis Regional Engagement Workshop

In a post on the PCORI Blog, Celeste Brown and Gregory Martin of PCORI’s Stakeholder Engagement staff comment that their recent Regional Engagement Workshop “affirmed that patient-centered outcomes research is a powerful method of improving health outcomes and addressing disparities among underserved communities. The site visit to Helena-West Helena was the capstone experience of this trip because we learned directly from people in the Deep South how PCORI's goals can improve the vision of patients and stakeholders as partners in CER.” Click here to view the article.

5. Forbes: Can We Save Money And Lives With More Accessible Patient Health Information?
In a Forbes.com article, John Osborn comments, “I am skeptical that the incentive mechanisms and government bodies created by the Affordable Care Act ostensibly to drive down costs (e.g., Accountable Care Organizations, the Patient Centered Outcomes Research Institute) actually will succeed in bending the curve… But suppose a patient is diagnosed with a particularly virulent type of cancer, and the standard treatment regimen has been evaluated against a new medicine or other protocol which has shown to be more efficacious for certain patient profiles.  Suppose further that these study results have been reported in the New England Journal of Medicine or another leading medical journal. Oncologists read these journals, but it might be useful to remind the treating physician of the relevant medical literature with hypertext links in a dashboard format that presents a summary alongside the patient profile.” Clickhere to view the column.

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