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  • About
    • Mission and Priorities
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    • Steering Committee
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    • Contact
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    • International
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    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
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      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
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      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
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      • Value Assessments Briefing
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The PIPC Blog

PIPC Weekly Update: September 18, 2017

9/18/2017

 
In This Week’s Issue:
 
1. PIPC Submits Letter to CMS on Rule Regarding Medicare Shared Savings Requirements, click here to read letter.  
2. KMWorld: Creating a Knowledge Infrastructure for the ‘Learning Health System,’ click here to read the article
3. PatientEngagementHIT: What is the Patient Activation Measure in Patient-Centered Care? Click here to read the article.
4. mHealthIntelligence: PCORI Eyes mHealth, Telehealth Treatments for Multiple Sclerosis, click here to read the article. 
5. HealthInnovation.org: Research Roundup: Patient Engagement Pitfalls and Possibilities, click here to read the article.
6. NHC Webinar: Value Frameworks and Assessment: What do Patient Groups Need to Know? Click here to register.
7. RSVP: Addressing America's Opioid Problem: The Need for Evidence-Based Strategies, click here to RSVP..
8. CMS Measure Development Education and Outreach Series, see details below.
9. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
10. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey. 
11. Lupus: Patient-Focused Drug Development Meeting, click here to register!
12. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply. 
13. Upcoming Events and Webinars, see details below
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.
1. PIPC Submits Comments to CMS on Proposed Rule Regarding Medicare Shared Savings Requirements
 
In a letter to Centers for Medicare and Medicaid Services (CMS) Administrator Seema Verma, Partnership to Improve Patient Care (PIPC) Chairman Tony Coelho expressed his concerns about the latest proposal to the Medicare Shared Savings Program to remove the requirement to submit supporting documentation related to patient-centeredness in their applications. "We are concerned that CMS would propose to remove these requirements and accept attestation in their place," said Chairman Coelho.  "Although we understand that CMS is attempting to lessen the burden on ACO applicants, we believe that it is imperative that ACOs be held to the highest possible standard for patient-centeredness."
 
Chairman Coelho also stated that "A further underlying challenge is that CMS has not set forth a clear definition for what it means for an ACO, or any other alternative payment model (APM), to be patient-centered, nor does the agency have an ongoing relationship with patients who are beneficiaries of ACOs to attest to meeting any definition of “patient-centeredness. The rule proposes to abdicate responsibility for enforcing that ACOs actually be patient-centered, instead of proposing a path to defining patient-centeredness in a manner that is understandable and accepted by all stakeholders." Click here to read the letter
 
Additionally, Chairman Coelho also submitted a letter on behalf of PIPC to CMS, urging a focus on the patient voice when it comes to improving the Quality Payment Program. "Under the proposed rule, it is also important to recognize the reliance on providers to deliver patient-centered care, and to practice in a manner consistent with the measures of success adopted by the program," wrote Chairman Coelho. "Being truly patient-centered will require working closely with providers to ensure that the Quality Payment Program’s complexity does not detract from individualized patient care." Click here to read the letter. 
 
2. KMWorld: Creating a Knowledge Infrastructure for the ‘Learning Health System’
 
David Raths discusses the importance of patient-reported outcomes when it comes to collecting electronic health data. “...Another [clinical decision support-related] project is ramping up to try to speed the process of getting the findings from federally funded patient-centered outcomes research into point-of-care clinical decision support. The Patient-Centered Clinical Decision Support Learning Network is a 4-year project launched in April 2016 with funding from AHRQ to catalyze dissemination of patient-centered evidence and practices via clinical decision support to improve care and outcomes.” Click here to read the article. 
 
3. PatientEngagementHIT: What is the Patient Activation Measure in Patient-Centered Care?
 
Sara Heath breaks down the Patient Activation Measure (PAM) in an article for PatientEngagementHIT.com. “Since its development, the PAM has been licensed by Insignia Health, meaning that healthcare organizations must purchase the survey rights to use it. The survey is for hospital and practice internal use and has no regulatory requirement attached to it. Numerous medical researchers have leveraged the PAM to evaluate the efficacy of certain patient engagement strategies. Using the PAM on this wide scale enables healthcare researchers to develop best practices in patient engagement and patient activation.The PAM can also be used on an individual patient level, helping doctors determine which specific strategies they will deploy with a singular patient. Industry experts from the American Medical Group Association (AMGA) recommend deploying the PAM during patient onboarding using either a paper survey or via the EHR. This allows providers to use the score from the onset when designing care management plans.” Click here to read the article. 
 
4. mHealthIntelligence: PCORI Eyes mHealth, Telehealth Treatments for Multiple Sclerosis
 
Eric Wicklund reports on PCORI-funded programs using mHealth and telehealth to help MS patients improve their exercise and deal with fatigue. “Three projects to test mHealth and telehealth platforms in the treatment of multiple sclerosis are slated to get more than $14 million in grant funding from the Patient-Centered Outcomes Research Institute (PCORI).The studies are part of a five-program, $38 million effort by the Washington DC-based independent non-profit to tackle a progressive – and unpredictable – neurological disease that affects some 400,000 Americans and 2.3 million globally and costs millions of dollars annually in the US for treatment.” Click here to read the article. 
 
5. HealthInnovation.org: Research Roundup: Patient Engagement Pitfalls and Possibilities
 
Ann Hwang highlighted two research articles on the importance of engaging patients in the healthcare system. “The first article, ‘Perspectives on How to Engage Consumers in Health System Transformation,’ suggests that consumers and their health advocates can be valuable sources of expertise for policy makers and health care organizations looking to improve health care delivery…The second article, ‘Competing Visions for Consumer Engagement in the Dawn of the Trump Administration,’ explores two distinct models of consumer engagement – one which sees patients as partners in health care decision-making and a second that focuses on financial incentives and penalties for patients.” Click here to read the article. 
 
 
6. NHC Webinar: Value Frameworks and Assessment: What do Patient Groups Need to Know?
 
The National Health Council (NHC) is hosting a three-part webinar series on Patient Engagement in Value Assessment. The series will include experts from across the health care community, including patient advocacy organizations, health economics and outcomes researchers, payers, and value framework developers.
 
Part I: An Overview of Value Frameworks
Part II: An Introduction to Health Economics and Value Assessment
Part III: How the Patient Community Can and Should Be Engaged in the Process
 
The first webinar will be held September 20 from 3:00 to 4:00 p.m. ET/ 12:00 to 1:00 p.m. PT. Click here to register.
 
7. RSVP: Addressing America's Opioid Problem: The Need for Evidence-Based Strategies
 
The Patient-Centered Outcomes Research Institute (PCORI) and Anthem are co-hosting a briefing on the need for evidence-based strategies to address America’s opioid epidemic at 3:00 pm on Tuesday, September 19 at the Dirksen Senate Office Building in Washington, D.C. “Guided by patients, caregivers, and other stakeholders, PCORI funds research designed to provide patients, their families, and clinicians with the information needed to make better-informed choices about their healthcare options. The briefing will discuss the importance and need for comparative effectiveness research to support evidence-based practices to address the opioid epidemic. While there are therapeutic alternatives to opioids in managing chronic pain, there is a lack of research on long-term outcomes for these alternatives – as is the case with opioids.” Click here to RSVP.
 
8. CMS Measure Development Education and Outreach Series
 
The Centers for Medicare and Medicaid announced that they are seeking participants for the Measure Development Education and Outreach series, specifically for stakeholders invested in the Quality Payment Program (QPP) quality measurement development. “In partnership with our Measure Management System (MMS) contractor, Battelle, CMS will be hosting a monthly series of educational presentations on the measure development process and related topics that will include the opportunity for open discussion on measure development with CMS and your peer organizations. In addition to these education and outreach sessions, we are also offering groups currently developing QPP quality measures an opportunity to share your proposed measures and measure concepts with CMS through a spotlight series.” Contact [email protected] if you are interested in participating. 
 
9. Register Now! UCP’s Speak for Yourself Workshop
 
On Friday, September 22, UCP will host a day-long workshop in Washington, DC to engage and educate advocates on the Patient-Centered approach and self-advocacy when it comes to the desires and needs of individuals with disabilities in the health care and health research spaces. The event will be held from 8:30 am to 4:30 pm at The National Youth Transitions Center. Click here to RSVP. 
 
10. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions?
 
The Improving Hospital Outcomes through Patient Engagement (iHOPE) Steering Committee needs participants for a survey that will help research teams learn the questions that patients, families, caregivers, and other healthcare stakeholders want answered. “Are you a healthcare provider or a member of a healthcare-related organization? Are there any uncertainties about patient care during and after the hospital stay, or areas where you feel there should be more evidence to guide care? This could include any aspect of care - treatments, processes, decision-making, discharge planning, etc. “ Click here to complete the survey.
 
11. Lupus: Patient-Focused Drug Development Meeting
 
On September 25, 2017, 10:00 am - 4:00 pm at the College Park Marriott Hotel & Conference Center, three lupus organizations will hold a Patient-Focused Drug Development meeting to advance their understanding of the lupus patient perspective.  The goal of the Lupus PFDD Meeting is to inform how FDA officials – particularly those reviewing potential new treatments for lupus – think about this disease. We want agency officials to know what it is like to live with lupus day-in and day-out, how the disease impacts your daily life, what benefits you expect in future treatments and what level of risk you may be willing to accept in exchange for these benefits. Following the meeting, the organizers will write a report summarizing the survey results and the meeting, calling out the most important points and perspectives. This document will be conveyed to the FDA, pharmaceutical developers and researchers to ensure they know how lupus impacts people and families, what our community values most and what we want to see in new treatments. Click here to register!
 
12. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
 
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply. 
 
13. Upcoming Events and Webinars
   
Addressing America's Opioid Problem: The Need for Evidence-Based Strategies
September 19, 2017
Click here for details.
 
Patient and Stakeholder Engagement in Research: Making a Difference in PCORI Projects
September 19, 2017
Click here for details.
 
Lupus Patient-Focused Drug Development (PFDD) Meeting
September 25, 2017
Click here for details.
 
Introduction to HEOR: Principles and Practice in Health Care Decision Making
October 5-8
Click here for details.
 
Dissemination & Implementation Applicant Town Hall - Cycle 3 2017
October 12, 2017 
Click here for details.
 
Virtual Summit: High-Deductible Health Plans, They’re Here to Stay, so How Can Employers Enhance the Experience?
October 12, 2017
Click here for details.
 
ASHRM 2017 Conference and Exhibition
October 15-18
Click here for details.
 
NPC @ AMCP Nexus 2017 and AMCP Foundation Research Symposium
October 16, 2017 
Click here for details.
 
Navigating Research Partnerships that Include Patients with Serious Acute or Medically Complex Conditions
October 17, 2017 
Click here for details.
 
Improving Methods PFA LOI Town Hall - Cycle 3 2017
October 24, 2017 
Click here for details.
 
2017 PCORI Annual Meeting
October 31-November 2
Click here for details.
 
14. Medical Journal Articles
 
Evolution of Patient-Reported Outcomes and Their Role in Multiple Sclerosis Clinical Trials, click here to view. 
 
Multivariate and Network Meta-Analysis of Multiple Outcomes and Multiple Treatments: Rationale, Concepts, and Examples, click here to view. 
 
Towards Evidence-Based Computational Statistics: Lessons from Clinical Research on the Role and Design of Real-Data Benchmark Studies, click hereto view. 
 
Cost-Effectiveness of Evolocumab Therapy for Reducing Cardiovascular Events in Patients With Atherosclerotic Cardiovascular Disease, click here to view. 
 
Using Patient-Reported Outcome Measurement to Improve Patient Care, click here to view. 
 
Different Weights of the Evidence-Based Medicine Triad in Regulatory, Health Technology Assessment, and Clinical Decision Making, click here to view. 
 
Addressing the Social Needs of Hypertensive Patients: The Role of Patient–Provider Communication as a Predictor of Medication Adherence, click hereto view. 
 
Comparing Levels of Evidence Between Choosing Wisely and Essential Evidence Plus, click here to view. 
 
Comparative Effectiveness of Enoxaparin Versus Dalteparin for Thromboprophylaxis After Traumatic Injury, click here to view.
 
Patient-Reported Outcomes in Hematology: Is it Time to Focus More on Them in Clinical Trials and Hematology Practice? Click here to view. 
 
Stakeholders' Views on Data Sharing in Multicenter Studies, click here to view. 
 
Comparative Efficacy and Acceptability of Antidepressants, Psychological Interventions, and Their Combination for Depressive Disorder in Children and Adolescents, click here to view. 
 
 
15. AHRQ Effective Program Updates
 
Management of Insomnia Disorder - Consumer and Clinician Summaries, click here to view
 
Harms of First-Line Depression Treatment in Older Adults, click here to view. 
 
Management of Renal Masses and Localized Renal Cell Carcinoma: Current State of the Evidence - Clinician Summary, click here to view. 
 
Stroke Prevention in Atrial Fibrillation Patients: A Systematic Review Update, click here to view. 
 
Venous Thromboembolism Prophylaxis in Major Orthopedic Surgery: Systematic Review Update, click here to view. 
 
Nonsurgical Treatments for Urinary Incontinence in Adult Women: A Systematic Review Update -- Research Protocol, click here to view. 
 
Drug Therapy for Early Rheumatoid Arthritis in Adults – An Update -- Research Protocol, click here to view.
 
Psychological and Pharmacological Treatments for Adults with Posttraumatic Stress Disorder (PTSD): A Systematic Review Update -- Research Protocol, click here to view 
 
Tympanostomy Tubes in Children with Otitis Media -- Final Report, click here to view 
 
Treatment of Osteoarthritis of the Knee: An Update Review -- Final Report, click here to view. 
 
Assessment Tools for Palliative Care -- Final Report, click here to view. 
 
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
 
The Role of Immunotherapy in the Treatment of Asthma, click here to view


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