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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • MFN/IPI Webinar 2025
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
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Resource Center

PIPC Urges Washington PDAB to Reject Discriminatory Value Assessments

10/16/2024

 
PIPC submitted a comment letter to the Washington Prescription Drug Affordability Board (PDAB) highlighting the concerns of patients and people with disabilities related to the PDAB’s potential use of discriminatory cost effectiveness analyses. 
The letter calls on the Washington PDAB to reject the use of studies relying on one-size-fits-all metrics like the quality-adjusted-life-years (QALYs) and the equal value of life years gained (evLYG). PIPC is very very concerned that entities including the Program on Regulation, Therapeutics, and Law (PORTAL) and the Institute for Clinical and Economic Review (ICER) publicly view the QALY as the gold standard for measuring cost effectiveness, a fact that will undermine the trust of patients and people with disabilities if they continue to be consulted in the PDAB’s work.

"Across other states, PDABs have struggled and too often failed to meaningfully incorporate patient perspectives or respond to their questions and concerns," wrote PIPC Chair Tony Coelho. "We are hopeful Washington State’s PDAB will do better."
pipc_washington_pdab_2024.pdf
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