PIPC is pleased to provide resources to the rare disease community highlighting how QALYs as used in health care value assessments devalue the lives of people with rare diseases and conditions.
Rare Disease Toolkit: Resources for the Rare Disease Community Fighting to Value Our Health
- QALYs Devalue Children and Adults with Rare, Disabling Diseases: Learn More Here.
- International Stories: Learn More From International Patients Here.
- Support Banning QALYs Across Federal Programs: One Pager About the Protecting Health Care for All Patients Act. Details.
- Bipartisan Support for Banning QALYs: Chair Coelho and Rep. Cathy McMorris Rodgers Speak Up. Read.
- Value for Whom? Incorporating Patient Perspectives into Value Assessment for Novel Cell and Gene Therapies: View the Paper Here.
- The Speak Foundation Shares Rare Disease Concerns About Florida Legislation Importing QALYs from Foreign Countries: View the Letter Here.
