Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • MFN/IPI Webinar 2025
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010
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    Stop Use of Measures that Devalue People With Disabilities

    Policymakers are considering referencing countries that use QALYs and cost-effectiveness thresholds to devalue people with disabilities and serious chronic conditions and ration their access to care as models for U.S. policy.​
    Learn More
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    Insurers and PBMs: Don't Discriminate on Care

    Policymakers, insurers and pharmacy benefit managers are increasingly offering up troubling proposals that tell patients what they’re worth instead of asking them what they value.
    Learn More
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    Open Letter: Reject Health
    ​Policies That Discriminate

    PIPC is proud to have joined over 90 patient and disability advocates in an open letter urging policymakers to reject policies that reference QALYs and similar metrics, which reinforce health inequities, devalue people with disabilities and chronic conditions, older adults and communities of color. ​
    Learn More
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    Chairman's Corner

    PIPC Chairman Tony Coelho, a former congressman from California and primary author of the Americans with Disabilities Act, offers frequent insights and opinions on issues that matter to patients and people with disabilities. 
    Read the Blog

PIPC In the News

Until Missouri Congressman's Bill to Ban [QALYs] Becomes Law, ‘State Level Action’ is Needed
Tony Coelho’s Statement Supporting the Protecting Health Care for All Patients Act, H.R. 485
Chairman Coelho: Better Research Can Prevent Discriminatory Outcomes
Statement from PIPC Chairman Tony Coelho on the Proposed Section 504 Rule
PIPC Statement on Selection of Drugs Under Medicare Drug Price Negotiation Program Guidance

The PIPC Blog

Chairman's Corner: In Medicare Drug Price Negotiations, Avoid Metrics Steeped In Stigma
PIPC Weekly Update - May 5, 2025
Patients and People with Disabilities Urge Robust Engagement, Avoid Use of QALYs and Similar Measures in Drug Negotiation
Over 40 Leading Organizations Join PIPC Comment Letters on Efforts to Advance Health Equity in Value Assessment
Chairman's Corner: Chairman Coelho Testifies in Oregon Against Use of QALYs

Steering Committee

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Tweets by PIPCpatients

Meet the Chair

PIPC Chairman Tony Coelho is a former United States congressman from California, and primary author and sponsor of the Americans with Disabilities Act. 
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Image of PIPC Chairman Tony Coelho
By 1994, the U.S. Census Bureau reported that some 800,000 more people with severe disabilities had found employment than were employed when his bill was first enacted.

In March 2009, Tony was named as Chairperson for the Partnership to Improve Patient Care (PIPC). In this capacity, Tony works to amplify the voice of the Partnership’s diverse members, including people with disabilities, racial and ethnic communities and older adults, among others.
More About Tony
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