Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
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  • Blog
    • PIPC Patients' Blog
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    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
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Resource Center

PIPC Submits Comments on ICER Assessment of Sickle Cell Treatments

5/15/2023

 
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In a letter to the Institute for Clinical and Economic Review (ICER), the Partnership to Improve Patient Care (PIPC) submitted comments on ICER's assessment of gene therapies for Sickle Cell Disease (SCD).


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PIPC Submits Comments on Maryland Prescription Drug Affordability Board Draft Regulations

5/3/2023

 
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In a comment letter to the Maryland Prescription Drug Affordability Board, PIPC highlighted concerns of patients and people with disabilities related to the Board's potential use of discriminatory cost-effectiveness analyses.


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Patients and People with Disabilities Urge Robust Engagement, Avoid Use of QALYs and Similar Measures in Drug Negotiation

4/14/2023

 
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On April 14, 2023, 56 organizations representing patients and people with disabilities sent a letter to CMS related to its guidance for implementation of the Medicare Drug Negotiation Program. The letter to CMS provides the following recommendations and comments:


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PIPC Submits Comments on ICER Assessment of NASH Treatment

3/23/2023

 
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In a letter to the Institute for Clinical and Economic Review (ICER), PIPC submitted feedback on ICER's assessment of treatments ​nonalcoholic steatohepatitis (NASH). 

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PIPC Submits Comments on PCORI Stakeholder Views on Components of 'Patient-Centered Value' in Health Care

3/3/2023

 
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In a letter to the Patient-Centered Outcomes Research Institute (PCORI), the Partnership to Improve Patient Care (PIPC) offered feedback on PCORI's draft report entitled "​Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care." 

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PIPC Urges North Dakota Senate to Reject Use of QALYs

1/17/2023

 
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In a letter to North Dakota State Sen. Judy Lee (R-ND), the Partnership to Improve Patient Care (PIPC) offered strong criticism of legislation that would deploy the discriminatory quality-adjusted-life-years (QALY) metric as a means of addressing rising health care costs. 

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More than 40 Leading Organizations Join PIPC Comment Letters on Efforts to Advance Health Equity in Value Assessments

12/16/2022

 
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More than 40 leading groups representing patients, people with disabilities, older adults, and communities of color joined the Partnership to Improve Patient Care (PIPC) in  comment letters to the Institute for Clinical and Economic Review (ICER) and the Innovation and Value Initiative (IVI) regarding the methodological flaws of the health technology assessment (HTA) and its implications for health equity.  

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Oregon Advocates Comment Opposes Options to Use QALYs by HERC

11/1/2022

 
​On November 1, 2022, letters (option 1; option 2) with 36 signatures were provided to the Oregon Health Evidence Review Commission (HERC) related to its proposed guide for use of quality-adjusted life years (QALYs) in HERC’s meeting materials, processes and decisions, particularly related to the prioritized list of services for coverage under Medicaid. 

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Health Advocates Press HERC to Discontinue Using QALYs in Oregon

10/11/2022

 
Advocates in Oregon joined a letter to the Health Evidence Review Commission (HERC) related to their review of proposed policy options to guide the Commission's use of quality-adjusted life years (QALYs) in meeting materials and decision-making. 

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PIPC Joins Over 80 Organizations Urging HHS Civil Rights Office to Ban QALYs Across Federal Programs

10/3/2022

 
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PIPC joined over 80 organizations in signing a letter to the HHS Office for Civil Rights commenting on the proposed rule implementing Section 1557 of the Affordable Care Act. ​The groups support a comprehensive proposed rule seeking to strengthen civil rights protections in federally funded health programs and HHS programs and agreed that the ability to access needed health care fully and free from discrimination is critical and requires action to support and strengthen existing nondiscrimination laws. 


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